Irritable Bowel Syndrome (IBS)

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Irritable Bowel Syndrome (IBS)
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We're so glad you're here. Scroll down to find some of the Crohn's conversations happening in our community. The more, the merrier—jump in anytime!

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10 reasons to join the Crohn’s and Colitis Support Group

1. It’s full of other people with connections to IBD.
2. It’s a safe forum to ask any and all IBD questions.
3. It’s a way to connect with others on the Mighty community.
4. I’m one of the group leaders (living with #UlcerativeColitis ), and I’m pretty cool.
5. We want to normalize talking about poop.
6. We do Q&As with partners like Girls with Guts.
7. It’s a small but “Mighty” community that we want to grow.
8. It’s supportive.
9. Why not?
10. Do it today!

You can search the groups to join. #CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness #IrritableBowelSyndromeIBS

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The Mighty's Crohn's Disease community is 76,000+ people strong, but there's always room for more. Follow along or join in today—whatever is comfortable for you!
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What is something you wish people knew about living with Crohn's?

What is something you wish people knew about living with Crohn's?

Your response may be used in an article or video on The Mighty.

#CrohnsDisease #ChronicIllness

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looking for advice!

hope i can find some advice on here!
any idea on what could be causing all this?

i started having symptoms in February 2023, my first symptom was Abdominal pain. (These aren’t all my symptoms but most of the ones that affect me the worst)
these are some of my current symptoms
abdominal pain (February 16) (achy,stabbing, sharp, cramps, /sometimes spasms)
temperatures/ fevers (99.0-102.1)
joint pain
heart palpitations when standing
dizziness
feeling extremely full after eating something small
nonexistent appetite at times
vomiting/nausea
upper stomach pain (achy/cramps)
abdominal pain getting worse after eating (about an hour after)
Upper stomach pain getting worse after eating (30-40 minutes)
(lower and middle)back pain (cramps and achy)
SOB when standing or sitting up too fast
lightheadedness when standing or sitting up too fast/ everything going black
stomach hurting/ feeling full after a sip of water
waking up with weak arms/legs
my hands feel like puffy and stiff when i wake up?
Salt cravings
Headaches upon waking up and last for a couple days
lower back pain/ back pain
shaking (my arm shakes a lot randomly)

i have been diagnosed with joint hypermobility, Fibromyalgia, and IBS.
possible EDS as well
i don’t fully believe the IBS because i continuously get undiagnosed and then diagnosed with it/ my doctors don’t agree on anything.
i was also diagnosed with somatic symptom disorder but have been cleared from that.
my psychiatrist says they don’t believe it’s “my mind causing my symptoms” because our “minds are powerful but not to this point”

i have seen a GI doctor, rheumatologist, and awaiting to see an endocrinologist.
i have had fevers since i got sick, i believe my highest one was 105F (this happened while i was in a helicopter being transported)
i had abnormal labs back in March 2023 and some of them are still a little strange.
(i think these are all?)
lab work:
low WBC
low MCH
high RDW
low neutrophils
low lymphocytes
high CRP
mildly elevated ESR
low Ferritin (has gone up now though)

i have had 4 CT scans (some doctor claimed he saw inflammation in my right side, however i have been told that is not true)
MRE
brain MRI
colonoscopy
Endoscopy
Ultrasounds
HIDA scan
i also have been tested for POTS but was told everything was normal and i will grow out of it

i am starting to feel like maybe everything is just in my head and i won’t ever find an answer 😞

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A disorder to consider including on The Mighty - Pelvic Floor Dysfunction

Pelvic floor dysfunction can happen with different causes and histories. Cerebral Palsy (which I have) is one of the conditions where it can happen. It is tight and/or spasming muscles and abnormal nerve function in the pelvic floor, those that affect the bladder, bowel, and sexual functions. It can affect men and women, more common in women.

I was told for years that I had IBS, that started strangely enough after a fall and broken ankle. I had every test, diet, supplement, doctor and whatnot, to no avail, no relief. Years later (within the past year) I learned it was PFD causing the nearly constant painful symptoms. It is a condition that is not well enough known. There are medications and treatments, including pelvic floor physical therapy. I am slowly getting some improvement and relief.

Most troubling for me is lower abdominal pain and tenesmus. This is the very distressing sensation of feeling a need to poop whether really needing to or not and it feels the same either way. I learned that PFD can be triggered surprisingly by a foot injury due to the way the nerve pathways work. I did notice the problem soon after that injury. It took 10 years to learn this is cause of my distress. Medical professionals need to be more aware of this.

So if anyone of you has something affecting the pelvic area and it is not resolving, look into this and find the right doctors and therapists to work with and hopefully save some time, money, and suffering and get relief. I hope this story is helpful to some of you.

#pelvic Floor Dysfunction

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Stripes & Stars of Rare Disease by Melanie R. #RareDisease #ChronicFatigue #MitochondrialDisease #IdiopathicIntracranialHypertension #ChronicPain #InsideTheMighty

Stripes & Stars of Rare Disease
By Melanie R.

Our faith as our anchor.
Our hope’s guiding light!

Amidst all the struggle,
we share in our plight.

Bringing awareness;
to comfort and guide.

To face rare disease
locked arms-
side-by-side.

A journey set forth,
uneven terrain.

Traveling on suffering,
forged purpose in pain.

A chorus of voices
uniting in song-
ring out together,
but battles go on…

Our trials and triumphs,
resilience and strength,
brought us all here
on rare disease day!

So join us in chorus,
wear stripes to support-
our healing begins,
it starts in our heart.

For stripes shine like stars,
by stripes we are healed,
Restoral by scars
Our voices they hear.

Remember Rare Disease Day is February 29th, 2024!
We share in the suffering and the glory!
Stay strong and God bless you all in a mighty, mighty way!

#ChronicIllness #ChronicPain #IrritableBowelSyndromeIBS #ComplexRegionalPainSyndrome #AxonalNeuronalNeuropathies #InsideTheMighty #MightyPoets #MightyTogether #christiansonmighty

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😳What Said What?!😳

When you live with a chronic health condition or disability, especially if you’re a younger looking person, young adult, or an ambulatory wheelchair user, there’s a good chance that you will have been unfortunate enough to have experienced some negative & hurtful comments from people.
There’s the classic comments that people living with Invisible Disabilities will have heard, for example “You don’t look sick.” & “It’s all in your head.”
Then there’s the unfortunate comments that people living with Mental Health conditions such as Depression & Anxiety will have heard, for example “Cheer up.” & “Stop worrying about it.”
And if you’re an Ambulatory Wheelchair User? Wow! The looks alone can be upsetting! I’ve lost count of the number of times I’ve been met by judgemental looks from people when we park our car in a Disabled Parking Space (I am a valid Blue Badge/Disabled Parking Permit holder) because I “don’t look sick/disabled” when I’m sitting in a car. These looks soon change when these people see my wheelchair but by then I’ve already started feeling awkward, embarrassed & like I have done something wrong when all that’s really “wrong” is that I have a neurological disorder which causes debilitating symptoms. It may be a brief moment of prejudice but that is still a brief moment too long in my books. It’s so important that we continue to raise awareness of the various chronic conditions & disabilities because it’s only through making people more aware these issues that change can happen & hopefully people with disabilities & chronic illnesses won’t have to deal with such rude, inappropriate & often upsetting remarks. In the meantime, when we heard comments that are hurtful or prejudice looks, we need to do our best not to let these remarks cause us any further damage or embarrassment – which is something that I definitely still struggle with a lot.
Stay strong, stay Mighty & by the best ‘you’ that you can be!
🧡💙💜💝
#ChronicIllness #ChronicPain #MentalHealth #Anxiety #Arthritis #BackPain #ChronicFatigue #ChronicFatigueSyndrome #FunctionalNeurologicalDisorder #ChronicDailyHeadache #ChronicLungDisease #Disability #ChronicObstructivePulmonaryDisease #ComplexRegionalPainSyndrome #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS #Lupus #Fibromyalgia #Grief #ADHD #AnorexiaNervosa #Endometriosis #MightyTogether #MightMinute

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