Mast Cell Activation Disorder

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Mast Cell Activation Disorder
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    Feeling rejuvenated

    <p>Feeling rejuvenated</p>
    18 people are talking about this
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    Any advice for covid with EDS, POTS, MCAS?

    #COVID19 #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome

    I have hypermobile type EDS, POTS, and suspected MCAS, and i just got diagnosed with Corona for the first time (2x boosted on top of Moderna). My whole body is on fire, my joints are all angry and I've got a gnarly migraine. Any advice or warning signs that i should contact my PCP? I'm temporarily living in a foreign country by myself too so i don't have a lot of my normal coping tools.

    6 people are talking about this
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    Community Voices

    What do you do for self-care to prepare for a difficult day?

    <p>What do you do for self-care to prepare for a difficult day?</p>
    32 people are talking about this
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    Comorbities with POTS

    I was diagnosed with dysautonomia/neurocardiogenic syncope in 2003. I was recently retested and diagnosed with POTS. I have suspected I may have hypermobile EDS for the past year (I am very flexible and have been all my life. I’m talking turning my arm all the way around so my hand faces forward again) and possibly mast cell activation syndrome since I have sporadic, unexplained rashes, among other things. Has anyone else been diagnosed with these conditions too, and if so, what doctor diagnosed you and what testing was involved? I’m still learning how to advocate for myself and who to even talk to about all these things.

    2 people are talking about this
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    Good doctors and a good birthday 🩺💜🎂💜

    <p>Good doctors and a good birthday 🩺💜🎂💜</p>
    55 people are talking about this
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    What would your superhero name and power be?

    <p>What would your superhero name and power be?</p>
    17 people are talking about this
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    What do you do when you can’t sleep?

    <p>What do you do when you can’t sleep?</p>
    2 people are talking about this
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    Spoon Bouquet

    <p>Spoon Bouquet</p>
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    Welcome! 💜

    <p>Welcome! 💜</p>