I have hypermobile type EDS, POTS, and suspected MCAS, and i just got diagnosed with Corona for the first time (2x boosted on top of Moderna). My whole body is on fire, my joints are all angry and I've got a gnarly migraine. Any advice or warning signs that i should contact my PCP? I'm temporarily living in a foreign country by myself too so i don't have a lot of my normal coping tools.
What do you do for self-care to prepare for a difficult day?
Comorbities with POTS
I was diagnosed with dysautonomia/neurocardiogenic syncope in 2003. I was recently retested and diagnosed with POTS. I have suspected I may have hypermobile EDS for the past year (I am very flexible and have been all my life. I’m talking turning my arm all the way around so my hand faces forward again) and possibly mast cell activation syndrome since I have sporadic, unexplained rashes, among other things. Has anyone else been diagnosed with these conditions too, and if so, what doctor diagnosed you and what testing was involved? I’m still learning how to advocate for myself and who to even talk to about all these things.
Good doctors and a good birthday 🩺💜🎂💜
What would your superhero name and power be?
What do you do when you can’t sleep?