Mixed Connective Tissue Disease (MCTD)

Hi all
I started with pain, slipped disks, joint and skint problems from a very young age, I’ve had knee ops, carpal tunnel ops all sorts, about to years ago my symptoms went crazy, fatigue, pain, swelling, rashes, migraines, pins and needles, shooting pains, feet goin floppy and unable sometimes to walk, I barely sleep because of the pain in my hips, knees, shoulders and feet, I have raynauds really bad, I’ve had to give up my career, my life as I know it is over, I’m symptomatic but still don’t have markers in blood, I’m seeing numerous specialists that think I have MCTD but r unable to isolate what and how many autoimmune diseases I have, I have 1000,s of picture that I take daily and a log to show my specialist, it’s rubbish, now they have also diagnosed fibromyalgia, I’m on extremely strong pain meds but so far because of clear bloods they can’t find anything to help with my symptoms, the worst thing I get off people is ‘well you don’t look ill’ trying to now work out who I am because I really don’t know anymore, so hard without a definitive diagnosis. The depression hits hard and I no longer make plans with friends and become so anxious when leaving the house.

Hi, my name is anomaly1980.

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #RheumatoidArthritis , mixed connective tissue disease, still having constant tests as I’m symptomatic and still have clear bloods, I’ve had to give up my career, my life as I knew it is over, I’m exhausted all the time in pain, covered in rashes daily, swelling the list goes on and my doctors are still baffled, I have to take pictures of everything that happens to my body due to nothing showing up in my bloods, feels like I’m going insane

Hi, my name is ImaginativePanda87. I'm here because

#MightyTogether #Anxiety #Depression #MixedConnectiveTissueDiseaseMCTD

Hi, my name is ewewhu. I'm here because I have MCTD, my oldest daughter has Lupus/fibromyalgia and my youngest has fibromyalgia. Looking for whatever info to help any of us.

#MightyTogether

I have just returned to my job in a supermarket and I have experienced my lupus rash appearing on my face, does anyone find that the lights in supermarkets trigger it for them ? #Lupus #MixedConnectiveTissueDiseaseMCTD
#SystemicLupusErythematosus

Hi, my name is MoniCat. I've been diagnosed with SLE and Sjogrens. Possibly MCTD with dematamyositis after feeling like garbage for years. I have relief now that I finally know I’m not crazy but now I’m scared because I’m not crazy and there is something wrong with me. I need to connect to learn how to manage, what helps, what hurts, and find support.

#MightyTogether #Lupus

Hi, my name is Westerfeld_S. I'm here because I’ve been learning and dealing with several new medical diagnosis.

#MightyTogether #Migraine #Fibromyalgia #ADHD #Depression #Anxiety #Lupus #MixedConnectiveTissueDiseaseMCTD #Arthritis #ChronicKidneyDisease