Mystery

Join the Conversation on
43 people
0 stories
6 posts
Note: The hashtags you follow are publicly viewable on your profile; you can change this at any time.
  • Explore Our Newsletters
  • What's New in
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Community Voices

    Treating Symptoms and Finding Answers

    This is my first post, but I am hoping to get some opinions from people. I have battling chronic illness for years and it has recently gotten bad. I have a lot of blood work/tests that indicates a problem, but is very unspecific. I'm starting a new medication to treat the pain I experience (assuming it works), but I am experiencing some cognitive dissonance about the whole thing. I want the pain to go away, but I desperately want an answer, a reason for the pain. If my pain goes away, I am afraid doctors will stop helping me try to find an answer. Do I NEED an answer? Or do I just want an answer to make myself feel better mentally? If the medication works, should I stop looking for an answer? I don't want the past 5 years to be chalked up to nothing and just be stuck taking random pills. Any thoughts/advice is appreciated.#LymeDisease #ChronicIllness #AutoimmuneDisease #Undiagnosed #Mystery #AbsenceSeizures #Nervedamage

    5 people are talking about this
    Community Voices

    What I am currently reading

    <p>What I am currently reading<br></p>
    Community Voices

    I can no longer control my body

    On Friday i spent the night in the er, I had developed sudden tics that had no explanation and still have none. I have seen countless doctors and have been contacted by all of my family every day trying to ask questions. I have no idea whats wrong with my body and I am so so so so exhausted #tic   #Unknown   #tired #Mystery #ouch #Anxiety #Depression

    1 person is talking about this
    Community Voices

    Has anyone else experienced this? Today I went for a walk this rash appeared.

    <p>Has anyone else experienced this? Today I went for a walk this rash appeared.</p>
    7 people are talking about this
    Community Voices

    Neurology report

    I finally had my neurology appointment. My fiancé drove me an hour and was with me in the room for my four hour appointment. We went to the nearest research hospital which specializes in MS. I knew I didn’t have MS, but I was desperate for an appointment somewhere.

    I was interviewed by 4 doctors, and the last was the one whom I had emailed my medical PowerPoint to. She made me explain in length how I had come to be prescribed 25 different medications at age 27.

    I explained that when I was 12, I was bullied for having curly hair. I tried telling this to my parents, but they didn’t believe me. Full of anxiety and hatred for my hair, I began pulling my hair out until I had a bald spot. My mom took us to the family doctor who referred me to a child psychiatrist. I was given antidepressants, which didn’t work, then mood stabilizers and antipsychotics. After this I was slapped with a bipolar diagnosis.

    The neurologist explained that she believed my diagnosis was unfounded and that I may have social anxiety, but not bipolar, and needed to come off my meds. The antibodies, inflammation, and pain in my body that lead to my undiagnosed autoimmune mess was caused to a huge overprescribing of medication that I did not need and was treatment resistant to because I was not bipolar.

    This was not the first time I had heard this. I often felt throughout my life that my existence was destroyed by being put in a psychiatrist’s office. However, I’m a bit conflicted because I know how hard going off medication is, and I have no idea who I am underneath the meds. I stopped being a person after my diagnosis; as a kid it hit me hard.

    My fiancé texted me a while ago that drug induced lupus exists which would explain why I have #Lupus antibodies. Still, this is a bit weird to me. I do not want to be bipolar or be in that marginalized group. That’s for sure. I do not want my relationships and my grades to get hijacked by going off medication during midterms. But do I want to be cured? Hell yeah!

    #Bipolar2Disorder #ChronicIllness #ChronicPain #Mystery illness

    Community Voices

    Has anyone heard of a condition that causes progressive muscle and connective tissue tightening and jaw pain? #Mystery #Tmd #Fibromyalgia

    1 person is talking about this