newdiagnosis

I’m overwhelmed with thoughts, emotionally exhausted, and tired. I spent 1 hour of my 2.5 hour appointment going over only part of my medical history.

During my appointment I was asked if the symptoms I discussed lower my quality of life or inhibit my life. My answer was “Yes, when symptoms are present my quality of life is lowered and inhibits me from doing things that I want to get done during my day”. On top of that I was asked if I have any stress in my life (HAHAHA). I’ve been stressed my whole life, I’ve been chronically ill dealing with eye surgeries, a suppressed immune system, etc for the past 17 years. Oh and on top of that my mom is newly diagnosed with Parkinson’s and vents to me about her health. Oh and my job has a lot of stress lately, we formed a union, difficulties with supervisor, etc. I do my best to limit stress by working out and meditating but that doesn’t seem to be enough.

You know what the doctor said? “Well seems like it’s vasolvagal syncope/neurocardiogenic syncope and you’re already doing everything we’d recommend. You’ll get over this and out grow it. But for some reason if you don’t, you can make another appointment”.

Yes I’m happy my heart is healthy. Yes I’m happy I’m resourceful and know how to listen to my body. But I wish there was something more I could be doing to limit these episodes. I live in fear and anxiety for weeks after an episode wondering why it happened, what could I have done differently so it didn’t happen, and when is it going to happen again? I think any chronically ill person can relate - I just want 365 days of stability, “remission”, and no new medical conditions.

Thanks for letting me rant, I’m going to go take a bath and do my nails to distract me the rest of the day.
#NeurocardiogenicSyncope #HypothyroidismUnderactiveThyroidDisease #MentalHealth #Anxiety #MedicalStress #newdiagnosis

Hi guys! I FINALLY was able to see a rheumatologist two days ago. The two doctors were pretty confident, that I have an inherited disease of the connective tissue. The possible diagnosis EDS was mentioned as well. I will now go to a sub-specialist for further evaluations. They said even if I had no inherited disease, my joint pain could be fully explained by my hypermobility. My main problems are: -joint pain in many joints
-Hip pain
-back pain& possibly a slipping vertebrae
-getting blisters very very easily
-my skin tends to „rip off“ very easily e.g. when tying shoes just from the lace
-selective antibody deficiency (according to doctor this could be related)
-other things

Do you have any tips for me? Thanks in advance !

I just got diagnosed with BPD not too long ago… not sure how to feel.. how to process it.. how to accept it..

Diagnosed severe ADHD at 31. I’m not sure how to handle this but, looking back, my life is starting to make so much sense. #ADHD #newdiagnosis #imtoooldforthis

I was finally given another label that seems to make more sense for what I'm experiencing. I never felt bipolar really fit me but I knew it was somewhere in that ballpark. I am just so grateful to finally have a name even though it's not official YET since I still need to complete my evaluations #CyclothymicDisorder #newdiagnosis

2 years ago, when I was 39, during the Kavanaugh hearing, memories of sexual assaults from decades ago came flooding back to me. In therapy, I was diagnosed with C-PTSD, due to consistent emotional neglect throughout my childhood. I’m still adjusting to this diagnosis. I feel isolated and freakish. Tell me—will this feeling good away? Thank you in advance :) #CPTSD #newdiagnosis #Childhoodemotionalneglect

I've been dealing with anxiety and depression for a long time. Over the last few months, I've been dealing with some unexplained physical symptoms, and I started seeing a doctor to figure it out. My hands have been constantly swollen, and they get weak and achy with use. I tested negative for RA and the doctor thought that it was just a regular injury that needs to heal since it was brought on by a sports incident. The only problem is it's spread to my feet too and seems to be getting worse, not better. I've been crocheting more lately and had to stop because my hands were getting so swollen and weak, and I had to stop running because my feet couldn't take it. So here I am trying to juggle the anxiety of it all while also trying to control my urge to self-harm through agitation of my injuries. On the one hand, I don't want to risk permanent damage, but on the other hand, I want it to be "serious enough" to warrant a second look by the doctor. On the third hand, I'm just miserable and aggravating its beats cutting myself over the thought of never getting to do anything that I love ever again.

I go back to the doctor in a couple of days to check-in and I'm thinking about the reality of how long these things take to diagnose and sort through a proper treatment plan. I told myself when I first went in that I just needed to tell the doctor what was going on and he would figure it out easy-peasy. I'm struggling to still trust the doctor, but thinking about the long road ahead has got me struggling not to spiral. I have been making some progress with TMS for my depression so it felt like I was finally getting better, and now there is this. I just feel awful about it all.

#Depression #Anxiety #newdiagnosis #ChronicIllness #lost #Doctors

Today after two years trying to find a cause for extreme fatigue cognitive changes, speech,muscle spasms, dysphasia, and occasional inability to walk along w loss of muscle strength and feeling my doc decided this is the diagnosis in the absence of any other diagnosis that can be made. I’m frustrated at no treatment and curious what everyone else has tried?
#MyalgicEncephalomyelitis #newdiagnosis

I'm 21 and up until I was 20 I was under the impression that the pain I was experiencing was normal. I honestly though I was being a baby about it and that I wasn't as strong as others. Now that I have a few different diagnoses I have a clearer understanding of how not-normal I am. I'm amazed that people can go through a day and not feel pain, I'm constantly curious about what it would be like and ask questions frequently about their daily lives. I'm getting better about not pushing myself an listening to my body. I still have a long way to go but my family is making it hard. They're constantly comparing me now to how I was when I was killing myself to keep up. They don't what to hear about my pain or my limitations.
That felt really good to get out! #venting #newdiagnosis #getitoffyourchest