Finally Diagnosed: Living with Akathisia
This week, I finally received a diagnosis that feels real: akathisia. For over 20 years, I’ve been on psychiatric medications and endured intense reactions, restlessness, pacing, rocking, moving my feet and legs, and an internal fear and terror that never stops. For years, doctors misdiagnosed me, dismissed my symptoms, or even told me I was faking it.
Akathisia is not just a movement disorder. It is life-altering and life-threatening. The physical restlessness is exhausting, but the emotional and internal turmoil is even harder. The fear, panic, and terror build constantly. It has contributed to self-harm, suicide attempts, and feeling like I’m not real or living in a dream-like state. It affects walking, sleep, relationships, work, and overall quality of life.
Finally having a diagnosis is a relief, but it also brings anxiety. I’m afraid to take any medications, worried that even a single pill could trigger the unbearable inner restlessness again. Living with akathisia is like being trapped in your own body and mind, unable to find peace, yet forced to keep moving and survive each day.
I share this because akathisia is more than just movement. It invades every part of life. If you’re struggling with this disorder or similar movement disorders, you are not alone. Your experiences are valid, and speaking out matters.