sjogrensdisease

Post

Yesenia

•

@forfrodo

sjogrens 5y

Sent from app

See full photo

Handle your 💩

I often feel like I’m losing my mind and I can not tell what is a symptom of illness or what is made up by my old pal anxiety (good morning heartache). My concerns have always been dismissed by my friends, family, and medical teams and I just sort of dealt with it (momma didn’t believe in sick days) and pushed forward. I’m hitting the wall now folks. Things are progressing more rapidly and forcefully and I need help. So I’m at work feeling like freaking Uma Thurman Kill Bill Vol 1 getting to the Pussy Wagon, and Co Star comes thru with this gem. I always handle mine and this is no different. We move forward and onward y’all. Bless up #sjogrens #sjogrensdisease #HypothyroidismUnderactiveThyroidDisease #PolycysticOvarySyndrome #UndifferentiatedConnectiveTissueDisease #Anxiety #Latina #Forfrodo

Post

•

RheumatoidArthritis 5y

Sent from app

Two weeks till I go on disability for a month

Not sure if I’ll want to come back if the doctors can’t help me should I go on assistant like disability even thou I like to work but not sure if I can keep going and I’m a single mom of a 1yr #RheumatoidArthritis #sjogrensdisease #UndifferentiatedConnectiveTissueDisease

Post

•

sjogrens 5y

Does anyone with Sjögren’s also deal with aquagenic wrinkling of the palms?

I assume it’s due to Sjögren’s. I could be wrong.

Warm water between 5-10 min (like a shower); one hand worse than the other. It started suddenly a few weeks ago (I was diagnosed w Sjo’s last October) and was curious if anyone else has had this problem. It’s a matter of annoyance only, at this point. Any thoughts are greatly appreciated 💭💕

#sjogrens #AquagenicWrinkling #ChronicIllness #sjogrens #sjogrensdisease #confused #DermProbs

1 comment

Save

Post

A SingLee

•

@asinglee

Allergies 6y

#Lupus #Fibromyalgia #sjogrensdisease #FlareUps

Hi Guys, I've been diagnosed with Sjograns, Lupus and Fibromalgia,
I've been having crazy flares for the past 4 weekends, I work during the week so weekends is the only time I get to rest. 4 weeks ago, when these weekend flares started, I got a puppy. When I was younger I had blood tests done and it showed that I am allergic to dog's, cat's and any furry pets. I thought I outgrew this. I am not getting any allergy rashes (other than the lupus butterfly rash) I am not getting any pet allergies.
Could my flares be caused by my puppy? please help! these flares are really bad!
#Allergies #chronic

Post

•

ChronicIllness 6y

What has your reaction been when people tell you you need to “get some sun” etc?

I am looking to write a piece surrounding comments to those of us with chronic illnesses that also make us photosensitive and/or the sun causes painful flares. I have had my indoor hobbies “knocked” for a long time, but I have built a life indoors for a good reason.

#ChronicIllness #Methotrexate #Fibromyalgia #Lupus #sjogrensdisease #raynauds

11 comments

Save

Handle your 💩

Two weeks till I go on disability for a month

Does anyone with Sjögren’s also deal with aquagenic wrinkling of the palms?

#Lupus #Fibromyalgia #sjogrensdisease #FlareUps

What has your reaction been when people tell you you need to “get some sun” etc?

Feed for