Advice needed after rheumatology evaluation please

Advice needed after rheumatology evaluation please
Random Itchy Rashes of Unknown Origin
What is this thing called "Hope"? #seekingknowledge
What is this thing called hope? Yes, this is a serious question. What frame of reference do you use to explain something to someone who has never know or seen hope? We liken the situation to finding a single Waldo in a swarm of people who all look slightly like Waldo. But none ARE Waldo.
We are, at this point, 47 days into our 2 new Antidepressants, 21 days into our Antipsychotic and no change other than we sleep an added 1 to 2 hours a night. We are grateful for that. Our meds are increased every 2 weeks. I, since none of the other want to attend at this time, do video chat with at least 3 Doctors every week. The all tell me that hope will help us in this wait and see pattern we currently find ourselves stuck within.
We believe that everything in our universe has a counter balance. Night has Day. These are concrete, provable, repeatable facts available to establish what distinguishes Night from Day. Where "Hope" along with, it's 1st cousins the other emotions and "feeling" are all abstract concepts not grounded by facts.
What reference points does one use when trying to describe abstract concept of "hope" to one who has never seen or experienced it in their lifetime. How would you describe colours to a person who has never seen them? We have as little insight into what "hope" or any of the "emotions" are, at this point. What is this thing called "Hope" and where do we find it?
#SexualAbuse #SexualAssault #Childhoodneglect #DomesticAbuse #DID #raynauds #Fibromyalgia #MyalgicEncephalomyelitis #RheumatoidArthritis #DegenerativeDiscDisease #Hypertension #Trichiasis #irritableboweldisease #GeneralizedAnxietyDisorder #AnxietyDisorders #PanicAttacks #Agoraphobia #Insomnia #Rosacea #Claustrophobia #heartmurmur #ComplexPosttraumaticStressDisorder #Allergies #Dyslexia #OCD #Trichotillomania #cleithrophobia , #IntrusiveThoughts #SuicidalIdeation #haphephobia #EatingDisorder #MajorDepressiveDisorder #SocialPhobia #Acrophobia #Psychosis #DissociativeDisorder #audiohallucinations #visualhallucinations #intervert #raynauds
Which would you pick, seasonal allergies or the common cold?
What’s your experience with taking antihistamines for migraine pain?
New group for selective antibody deficiency
Hi guys I‘ve set up a new group for people with selective antibody deficiency( also called impaired polysaccharide responsiveness or specific antibody deficiency). I‘d love to see some of you over there that either have this primary immunodeficiency themselves /know someone with it or just want to chat about related topics. The name of the group is „selective antibody deficiency“.
I will use this opportunity to talk about this disease and spread awareness. Selective antibody deficiency (SAD/SADNI) is a primary immunodeficiency. In SAD-patients the immunesystem fails to produce IgG antibodies towards polysaccharide encapsuled bacteria. The consequences are many recurrent infections of the upper respiratorytract, sinuses, ears and much more that are hard to clear. This can lead to end organ damage (e.g. bronchiectasis) In about 80% of SAD cases the Patients suffer allergies, asthma and/or other atopic manifestations. This doesn’t mean that you should worry you have SAD just because you have asthma or allergies. SAD is (like all other primary immunodeficiencies) a rare disease and it is much more likely that you just have asthma / allergies.
Only so it is clear: I‘m not a doctor what so ever, this is only to spread awareness.
#PrimaryImmunodeficiency #ImmuneSystem #Allergies #Asthma #Bronchiectasis #sad
Highly allergic, hate travelling🌻🌱☀️
Hay Fever.
Adhesive on Dressings, Cannula Coverings & Plasters is Hell for Sensitive Skin | #Allergies #Surgery #abscess #Infection #Eczema