Hi. Here's my deal:
#ThoracicOutletSyndrome #HypermobileTypeEDS #PosturalOrthostaticTachycardiaSyndrome #CervicalSpondylosis #Scoliosis #Tendonitis #EustachianTubeDysfunction #Asthma #Allergies #ChronicMigraines #Narcolepsy #ARFID #ObsessiveCompulsiveDisorder #ADHD #Autism #Anxiety #PersistentDepressiveDisorder
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allergywest.com is a renowned website that assists you in what to do before allergy testing. An allergy test is an exam performed by a trained allergy specialist to determine whether your body has an allergic reaction to a known substance. For further details, please get in touch with us.
hi. i’m a 21 year-old. i suffer from quite a few things, but what is concerning me most right now is my allergies. for most of my life, i didn’t have any allergies. now i have 43 and counting, two of them lethal, and one of those airborne. i’m finding more and more things to cause serious reactions by the day. i also had to stop eating meat because it was wreaking havoc on my digestive system. i have eaten soy and peanuts all my life, but within the last six months or so, they have escalated from no reaction, to mild reaction, to anaphylactic shock. yesterday i dipped my finger in sesame oil and put it on my tongue. it felt like i had put acid on it and my throat swelled soon after. not enough to kill me, but enough to hinder my breathing. now granola does the same. between the meat intolerance, seafood intolerance, soy allergy, and nut allergies, i don’t have many ways to get protein, and i struggle to find recipes and meals at restaurants that are safe. im terrified, and the worst part is that i am alone. i have searched and searched, but the only story i found of someone with a similar plight ended up escalating to the point of being unable to be in a room with any fruit or nut without going into anaphylactic shock. i can’t live like that. if someone has a similar experience, please share. ideally i’d like to find a study to enter so that i can figure out what’s wrong with me. if you made it this far, thanks for listening #Allergies #lethalallergies #anaphylacticshock
Food Allergies
#Allergies #IBS #Fibromyalgia #GERD
I have been having increased allergy symptoms which i believe are partly due to worsening wheat/gluten sensitivities/allergies. I am waiting for my first appointment with an immunologist at the end of November for ?Mast Cell Activation Syndrome?. The symptoms are requiring me to take Benadryl. I also was having trouble swallowing (even when allergy symptoms were pretty much gone.) My esophagus is working too slowly and your and water are taking a long time to make it to my stomach. All swallow tests in the past were "normal." I had a hiatal hernia repair and fundoplication which look normal in scans.
I have seen pics on the Mighty of EDSers with NG tubes. Are the symptoms I described those which led to people needing an NG tube? Have any of you also experienced these symptoms and what have you done for it?
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Ten months after first asking my primary doctor for a rheumatology referral, I finally had an appointment with one yesterday. It didn’t go as well as I had hoped. I have a lot of different symptoms and pain in every area of my body. I have seen a neurologist, gastroenterologist, and orthopedist. I do have tendon tears that are causing pain, but it doesn’t account for most of my symptoms. My ortho and physical therapist think there might be a systemic tendon issue. My doctors ruled out many things with lots of tests. They only want to cover up symptoms, so I was persistent for an answer and finally got a referral to a rheumatologist. Unfortunately, he was pretty dismissive. He said he read my medical records from my primary care, he asked me questions, and he gave me a physical exam. He asked if I had a prostate exam (I am a transgender man) and didn’t know most of my current diagnoses. I also realized later that he didn’t ask me about my cognitive symptoms or check anything but the areas I already know there are tears and push on a few of my vertebrae. I asked about pain management because I am allergic to corn and derivatives which are in most pharmaceuticals. He didn’t know anything about compounding medications or herbal supplements. He recommended physical therapy and to “figure out what works for you.” At the end of the appointment he said he was ordering 4 blood tests. Repeating the 2 inflammatory markers my doctor has tested a few times and were normal, a different RA test, and one to check for muscle degeneration. He said that if those come back normal than I don’t need to follow up with him. He said to follow up with my ortho because my pain is likely due to injuries and micro traumas. And to see an endocrinologist, even though I already had a lot of hormones checked with my primary and doctor who prescribes my testosterone. And to continue with the heart monitor I’m wearing this week and the cardiologist because I could have postural tachycardia. I was nervous and felt pressured to say that plan was fine.
I got the blood work results via the lab’s app today and they were all normal. I am so upset. The doctor said someone would call me with the results. I am not a doctor, but I know there are other tests, blood and otherwise, that can be done to further investigate my symptoms. I’ve been researching my symptoms and connective tissue diseases for over a year. I feel like most medical professionals don’t care enough to dig deep into what’s going on and just pass me off to others or give me meds for symptoms.
I don’t know what to do. Do I tell the person who calls from the doctor’s that I want to follow up anyway and ask the rheumatologist for more testing? Do I go back to the ortho and have him check all of my joints, back, neck, hands and feet? Do I ask my primary for another referral to a different rheumatologist, when she didn’t even want to refer me in the first place? The original referral said “low suspicion of rheumatic cause, patient requested eval.” I don’t know.
I am just so exhausted, feel defeated, and want to give up.
#Undiagnosed #ChronicPain #ChronicIllness #CPTSD #Depression #GeneralizedAnxietyDisorder #Anxiety #ObsessiveCompulsiveDisorder #AvoidantPersonalityDisorder #SuicidalIdeation #CarpalTunnelSyndrome #TriggerFinger #Bursitis #Tendinitis #rotatorcufftears #labraltears #sciatica #Migraine #IrritableBowelSyndromeIBS #SleepApnea #Asthma #GastroesophagealRefluxDisease #Allergies #Folliculitis
Hi, hope y’all are well! So, I’ve been getting these random rashes for a while now and don’t know what’s causing them :( the itching drives me crazy and sometimes scratch to the point of bleeding cause I just can’t help it. Just took a Benadryl, so hopefully it helps 🤞 I struggle with chronic inflammation and a weakened immune system, so that might be why my histamine response is overactive. Any ideas?
What is this thing called hope? Yes, this is a serious question. What frame of reference do you use to explain something to someone who has never know or seen hope? We liken the situation to finding a single Waldo in a swarm of people who all look slightly like Waldo. But none ARE Waldo.
We are, at this point, 47 days into our 2 new Antidepressants, 21 days into our Antipsychotic and no change other than we sleep an added 1 to 2 hours a night. We are grateful for that. Our meds are increased every 2 weeks. I, since none of the other want to attend at this time, do video chat with at least 3 Doctors every week. The all tell me that hope will help us in this wait and see pattern we currently find ourselves stuck within.
We believe that everything in our universe has a counter balance. Night has Day. These are concrete, provable, repeatable facts available to establish what distinguishes Night from Day. Where "Hope" along with, it's 1st cousins the other emotions and "feeling" are all abstract concepts not grounded by facts.
What reference points does one use when trying to describe abstract concept of "hope" to one who has never seen or experienced it in their lifetime. How would you describe colours to a person who has never seen them? We have as little insight into what "hope" or any of the "emotions" are, at this point. What is this thing called "Hope" and where do we find it?
#SexualAbuse #SexualAssault #Childhoodneglect #DomesticAbuse #DID #raynauds #Fibromyalgia #MyalgicEncephalomyelitis #RheumatoidArthritis #DegenerativeDiscDisease #Hypertension #Trichiasis #irritableboweldisease #GeneralizedAnxietyDisorder #AnxietyDisorders #PanicAttacks #Agoraphobia #Insomnia #Rosacea #Claustrophobia #heartmurmur #ComplexPosttraumaticStressDisorder #Allergies #Dyslexia #OCD #Trichotillomania #cleithrophobia , #IntrusiveThoughts #SuicidalIdeation #haphephobia #EatingDisorder #MajorDepressiveDisorder #SocialPhobia #Acrophobia #Psychosis #DissociativeDisorder #audiohallucinations #visualhallucinations #intervert #raynauds
Let's start off with some honesty, I'm writing this in an allergy-induced haze so I may be biased on the answer to this question.
So many of us, myself included, are managing chronic conditions or ones that require maintenance often, so when a cold or seasonal allergies kick in it's no big deal, right?
But now on top of normal brain fog and fatigue, I get the 'Special Edition' version that comes with even more of both + the addition of new things like fever, sneezing, coughing, general 'I don't know where I am'-ness. A cold or allergies don't usually knock me out, but they do knock me around the ring for longer than I'd like.
If you had to have one, which would you pick and why?
🌿 Seasonal allergies
OR
🌡 The common cold
P.S. I'm voting for🌡 as I skip off to close my eyes and hoping my allergy-relief meds kick in soon 🤞🏻.
#Allergies #CommonCold #CheckInWithMe #ChronicIllness #Fatigue #Disability #MentalHealth #RareDisease
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