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    Community Voices

    Is there any help for someone on SSDI and needs a vehicle fixed?

    Hi there. I’m laying in bed crying, stressed TF out big time. I am on SSDI and unable to work due to medical reasons. I don’t get very much every month in my disability payment.

    Tonight I ended up with a flat tire. It was then I realized I barely have money to afford my basics every month. And now needing a new tire has me stressed. I also need my motor mounts replaced, new brakes, an oil change, and of course the other 3 tires as well. I don’t have the credit to pay that way. I don’t have family or friends that can help.

    I don’t know what I’m going to do. I need my vehicle to get me to appointments, medication pick ups, shopping, etc…

    Does anyone know of any help someone who’s on disability can get with these repairs? I live in Phoenix, Arizona if it helps.

    #Ssdi #Disabled #Crying #finances #Auto #MiniVan

    Community Voices

    The financial hell that is applying for SSI while your body is still falling apart

    I have really been going through it health wise lately. Six months ago I had to apply for SSI (I do not qualify for SSDI) and I feel like I've lost all hope in life. I've been sick my entire adulthood (I am 27 now), and the past two years in particular have dramatically declined in ways I cannot fathom. I have been in and out of the ER due to complications from so many health problems, and right now I might have to go back. I have hypermobile ehlers-danlos syndrome, POTS, hashimoto's disease, small fiber neuropathy, fibromyalgia, CFS/ME, severe GI issues, and mental illness on top of it. Most of my health problems all stem from the ehlers-danlos. I am currently suffering from severe GI complications potentially needing to be hospitalized as well as struggling greatly financially because you are given no support during the social security application process. For those of you who have applied for SSI, how did you get through the financial hell on top of your declining health? I am on the verge of losing my apartment because of how poor I am and I seriously do not know how anyone does it. The application process is so grueling, terrifying, and long I do not know how much longer I can take like this. How did you get through it and survive? I am starting to lose hope both in my stability physically and how im gonna survive this insurmountable loss of financial/housing stability.#SocialSecurity #Ssi #Ssdi #Disability #EhlersDanlos #hypermobileehlerdanlossyndrome #POTS #Neuropathy #GI

    14 people are talking about this

    When I Was Judged for Being on Disability Due to My Mental Health

    For the past few years, I have been focusing on my health due to various mental and physical illnesses, as well as a nervous breakdown. I see a therapist three times a week, a psychiatrist every two weeks to one month, and I am in the process of applying for a scholarship to help me afford a nutritionist for my eating disorders. I am also currently seeing various doctors to try and determine what treatment I need for some eating disorder-related bodily harm that I am experiencing. I am on disability and spend a large majority of my time trying to cope with my mental and physical illness symptoms, but writing articles about my experiences and education on mental and physical health have become my purpose. I have been doing well with showing up in therapy, attending doctor’s appointments, partaking in medical tests, and managing my medications. I have grown a lot over the course of the past few years, and I am proud of everything I have done. Unfortunately, something happened recently that caused me a lot of pain. Someone close to me told me that they felt they couldn’t tell their friends about me and what I do because I’m on disability and I am not making traditional progress (such as having a career, house, independence, etc.) They told me that they don’t see why I need to be on disability, and when I told them how I have been working so hard in therapy and on my health to try and find some stability, they told me that they don’t see my progress. They don’t think I am working hard for my health because they can’t see it, and they don’t understand what I go through on a day-to-day basis. Being told this was absolutely heartbreaking. I admire this person’s opinion and hearing their disappointment in me felt like they derailed all of the work I have done and trivialized what I am going through. I then went on to explain why what they said hurt me so much and they backtracked on their words, but the original hurt I felt didn’t disappear. A week has gone by and it is still just as painful. However, after talking this over with my therapist and working through the pain, they told me that maybe it is time I validate myself and create my own markers for success. They told me that it is time I stop looking outside of myself for acceptance and acknowledgment of growth. Only I know my experience and what I am going through, and if I only look to myself for guidance, the more I will be able to be at peace with my situation. Or at least feel neutral about where I am right now in my journey. Hearing this from my therapist was a breakthrough for me because it made me realize how I am always looking to others for approval, and in doing so, I am causing myself unnecessary pain. I can’t control how others view me, but I can control how I feel about myself. And even though I am still a long way from fully accepting myself, my health, and the new direction my journey is taken, I have faith that I will be able to give myself the love and acceptance I need. Those who don’t have firsthand experience with mental or physical health issues simply can’t understand fully what we go through. Many people try to be empathetic, but our experiences are our own. Even though this was an incredibly painful situation for me, it woke me up to the fact that I can give myself validation and understanding so I don’t rely on others for both of these things. Building up my self-confidence is going to be a long journey, but I already feel as though I am stronger than I was.

    Community Voices

    How I Won My Disability Case Without Representation

    I wanted to share with others how I won my disability insurance (SSDI) case without representation. I see stories daily where people are waiting to be approved for either SSI or SSDI. It is a long, undignified process that can be very difficult, both emotionally and physically. I hope my story can help someone out there.                                                                          I was able to win my case not only without the representation of an attorney, but I also won it on an "On the Record" request without having to go to court. I was actually denied representation by 3 different lawyers who did not feel that they could win my case. I decided at that point to represent myself and "push forward". I am glad in the end that I did.
    I am not advising anyone to not seek representation. My hope is to provide a real life example of an alternative for those who might need one. When three lawyers declined to represent me, it was heartbreaking and depressing. But, I knew my story and life better than they did and I also had a significant amount of documentation to support my case. I began the process of researching on-line how to proceed and was able to win my case independent of anyone helping me.  
    Here is what I did:
    1. Luckily for me, I had kept documentation from past employment and notes from medical providers who had either advocated for me to take a medical leave or for the workplace to provide accommodations. I turned in quite a bit of documentation that detailed years of employment that lasted for brief periods due to my disability. These even included unemployment insurance documents that showed I often won my unemployment due to having the just cause of quitting for health reasons. These documents were helpful, but what I did next was what won my case.
    2. I used what is called a Residual Functioning Capacity Form (RFC), a form that is often requested by the Social Security Administration that demonstrates the maximum you can do in spite of your physical/psychological impairment(s). I provided 2 of these: one from my therapist at the time and the other from the Nurse Practitioner who prescribed my medication. Both forms demonstrated my limited capacity for work.
    3. Lastly, I took these 2 forms and wrote a letter asking the judge (who was assigned to adjudicate my case) to do an "On the Record" request. This is a request for the judge to make a decision based on the documentation provided in the record without having to go to court.
    To my surprise, I was granted my benefits quickly thereafter, less than a month.
    I just wanted to share my story because it might help someone out there. You also can always ask an attorney to do an "OTR" and if they feel you have enough documentation to win, they might proceed with writing a letter for you.
    For anyone still waiting, my thoughts and prayers are with you. I know how difficult the process is! #Ssdi #Disability   #Ssi #BipolarDisorder

    11 people are talking about this
    Community Voices

    12 people are talking about this
    Community Voices

    Lost my SSDI hearing

    I found out a couple of weeks ago that I lost my hearing for social security disability. This was after 2+yrs of fighting, getting denied twice and then finally getting an attorney for my hearing. I am so discouraged and don't know what to do. I applied for fibromyalgia, depression, anxiety, ADHD, and chronic hand/wrist pain. I had very thorough records, but I happened to get a very very tough judge; my lawyer thinks I would have had a decent shot
    if I'd had a different judge. I haven't been able to support myself in years, I've been relying on friends and family, which I feel so guilty over. I'm so sick of fighting for scraps and of making this into my whole life, but I don't know what I'm supposed to do. I have tried everything I could to support myself. My options are to file a new application and go through the whole process all over again, appeal the decision (very unlikely to work according to my lawyer), or give up altogether. I honestly felt suicidal when I first got this decision, I just couldn't imagine a path forward. Still can't, but plan on sticking around anyway. Not sure why I'm posting here, just feeling exhausted and discouraged. I don't want to give up but I'm so tired. #Fibromyalgia #Ssdi #Disability

    41 people are talking about this
    Community Voices

    Feeling pretty hopeless at the moment

    <p>Feeling pretty hopeless at the moment</p>
    28 people are talking about this
    Community Voices

    Free phone & cell service if on disability - Anybody know about this?

    <p>Free phone & cell service if on disability - Anybody know about this?</p>
    2 people are talking about this
    Community Voices
    Community Voices