I’m new here!
Hi, my name is NinaWillebois and currently living in the Netherlands. I've been diagnosed with SUNCT/SUNA which has made my life very small. I barely get out of the house small tasks have become horrendous. I lost my job had to give up on my friends or they gave up on me and now live a solitary life alone with my cat in an appartment that I rarely leave. It’s been hard to say the least. With my form of SUNA I have permanent pain always in my face fluctuating which also sometimes switches from side. Some days I really don’t think it’s worth it anymore, I’m lonely and exhausted. I’m hoping to find some community here.