Systemic Lupus Erythematosus

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    birdiejones
     • 
    ·
    @mleighjones
    May 15, 2023

    New here!

    Hi! I’m new here. I downloaded the app about a year ago, but never used it. I am not a big fan of anything social media related or adjacent. Lol. But…I decided this would be good. I’m still trying to figure it out and how to use it. Haha. I’m sure I’ll get there…eventually.

    #PosturalOrthostaticTachycardiaSyndrome #AutonomicDysfunction #EhlersDanlosSyndrome #CommonVariableImmuneDeficiency #MastCellActivationDisorder #chronicmigraine #ADHD #longcovid #Asthma #SystemicLupusErythematosus #RheumatoidArthritis

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    jdamron18
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    ·
    @jdamron18
    May 7, 2023

    I’m new here!

    Hi, my name is jdamron18. I'm here because I am battling Lupus SLE and looking for advice and support

    #MightyTogether #Anxiety #Depression #Migraine #ADHD #Lupus

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    vi-blssd4ever
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    @vi-blssd4ever
    March 31, 2023
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    vi-blssd4ever
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    @vi-blssd4ever
    March 31, 2023
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    tabathabroaden52
     • 
    ·
    @tabathabroaden52
    March 31, 2023

    I'm new here!

    Hi, my name is tabathabroaden52. I've been diagnosed with
    Lupus SLE
    #MightyTogether #Anxiety #BorderlinePersonalityDisorder #Fibromyalgia #Migraine #PTSD #Depression

    8 reactions • 4 comments
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    Bri Lauren
     • 
    ·
    @brilauren
    March 14, 2023
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    The Flare

    Even when you do every thing right... sometimes things still go wrong.

    I take my medications religiously, every day at 7am and 7pm. I began to eat a gluten free diet 3 weeks ago. I started walking and exercising more. I began attending church, Bible Study, and journaling more.

    Today, I woke up and I couldn't stand on my own two feet- literally.

    It started two days ago. Two days ago I noticed that my left foot was hurting, the same left foot that had plantar fasciitis back in 2019. The same left foot that lead the doctors to discover that I had lupus.

    But my only thought was that my shoe inserts were wearing out and I needed to get new ones.

    I didn't think that two days later I would be lying on the ground, crying from the pain that radiated up my legs.

    Illnesses know no age or gender.

    So here I am, once more, using a walker to get around at the old age of 26.

    Is anyone else sick and tired of being sick and tired?

    How many more times will I have to peel myself off the floor? Fall down 7 times... stand up 8. #SystemicLupus #ChronicIllness #Bipolar1Disorder #Lupus #SLE

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    Bri Lauren
     • 
    ·
    @brilauren
    March 14, 2023
    See full photo

    The Flare

    Even when you do every thing right... sometimes things still go wrong.

    I take my medications religiously, every day at 7am and 7pm. I began to eat a gluten free diet 3 weeks ago. I started walking and exercising more. I began attending church, Bible Study, and journaling more.

    Today, I woke up and I couldn't stand on my own two feet- literally.

    It started two days ago. Two days ago I noticed that my left foot was hurting, the same left foot that had plantar fasciitis back in 2019. The same left foot that lead the doctors to discover that I had lupus.

    But my only thought was that my shoe inserts were wearing out and I needed to get new ones.

    I didn't think that two days later I would be lying on the ground, crying from the pain that radiated up my legs.

    Illnesses know no age or gender.

    So here I am, once more, using a walker to get around at the old age of 26.

    Is anyone else sick and tired of being sick and tired?

    How many more times will I have to peel myself off the floor? Fall down 7 times... stand up 8. #SystemicLupus #ChronicIllness #Bipolar1Disorder #Lupus #SLE

    10 reactions
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    Bri Lauren
     • 
    ·
    @brilauren
    March 14, 2023
    See full photo

    The Flare

    Even when you do every thing right... sometimes things still go wrong.

    I take my medications religiously, every day at 7am and 7pm. I began to eat a gluten free diet 3 weeks ago. I started walking and exercising more. I began attending church, Bible Study, and journaling more.

    Today, I woke up and I couldn't stand on my own two feet- literally.

    It started two days ago. Two days ago I noticed that my left foot was hurting, the same left foot that had plantar fasciitis back in 2019. The same left foot that lead the doctors to discover that I had lupus.

    But my only thought was that my shoe inserts were wearing out and I needed to get new ones.

    I didn't think that two days later I would be lying on the ground, crying from the pain that radiated up my legs.

    Illnesses know no age or gender.

    So here I am, once more, using a walker to get around at the old age of 26.

    Is anyone else sick and tired of being sick and tired?

    How many more times will I have to peel myself off the floor? Fall down 7 times... stand up 8. #SystemicLupus #ChronicIllness #Bipolar1Disorder #Lupus #SLE

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    LeotheDragon13
     • 
    ·
    @leothedragon13
    February 27, 2023

    I’m new here!

    Hi, my name is LeotheDragon13. I'm here because I have been fighting a chronic illness since I was a child. Original diagnosed with Dermatomyositis, in my teens developed JRA which then lead to full in arthritis all over my body. now I live with Lupus SLE & Fibromyalgia and RA. living with a chronic condition has felt like living several different lives. the part of me when I was “healthier” and able to move around. still have fun and not have to recover for 2 weeks. the part of me that could vacation and not have to cancel every invite. now I just don’t know how I will feel from day to day.

    #MightyTogether #Lupus #Fibromyalgia #AutismSpectrumDisorder #RheumatoidArthritis #Anxiety #ADHD

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    Nimo Warobi
     • 
    ·
    @nimowarobi
    Lupus Groupies February 24, 2023

    Help: chronic fatigue, lupus warrior

    I am suffering at the moment. My hydroxychloriquine was stopped in December last year after a 30 day stint in hospital. Recently my pain came full blast in my hips, butt and up and down my spine. I now have fatigue that leaves me anxious and almost breathless. Has anyone experienced this and what did you do? I arm so tired of this, #ChronicFatigue #MyalgicEncephalomyelitis #SystemicLupusErythematosus #Fibromyalgia #FibroFog

    5 reactions • 5 comments
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