I'm 22 and was diagnosed with SLE this past summer after dealing with Raynaud's, poor circulation, and fatigue (that I mistook as depression/laziness) that progressed for over a year. More recently, I've been dealing with long-lasting migraines, brain fog, and dizziness that's been affecting my ability to read/drive. Because I'm still figuring out how to deal with this on a daily (and because I'm a writer getting my MFA at Virginia Commonwealth University), I'm I'm interested in doing a creative nonfiction piece for publication centered around how people cope with their symptoms/treatments.
I was wondering if anyone in this group would be open to chatting with me for about 30 minutes over Zoom to talk about their experience with lupus? Because SLE has significantly impacted my mental health, it would be great to speak with others who have that shared experience, but if you're mentally vibing and jiving and just want to talk physical symptoms, that's okay, too!
If interested, you can respond to me here or email me at firstname.lastname@example.org.