visual impairment

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    Community Voices

    A Miracle, A Solution… I am so happy! #Photophobia #VisualImpairment #Blindness #Migraines

    Update: A miracle has occurred sooner than expected! My new corrected tinted filter and filter cap for my glasses are in and am very grateful as insurance covered the cost. All I need to do now is get over this cold so I can pick them up! This is such a huge relief as I haven’t been able to go out in months without #Migraines , #Photophobia , eye pain, meaning I wasn’t really going out. And now I can be pain free very soon! Now I just need to advocate and figure out how to get the other custom pair that is for everything else that isn’t distance magnification or telescopic use covered!

    Community Voices

    Music student with CP...sharing my story!

    Hi! I've been lurking on this site for a few years but felt like sharing something today. I'm going into my senior year of a music degree, living with #CerebralPalsy #ObsessiveCompulsiveDisorder #Anxiety and #VisualImpairment . If anyone's interested, I'd love to share more about my experiences, and to meet other people in similar situations!

    8 people are talking about this
    Community Voices

    In July 2020 I was diagnosed with Macular Degeneration. According to my Eye Doctor, my risk factors put me at risk of "vision loss" at 60% in the next 5 to 10 years.

    That was a massive pill to swallow considering I was 30yo with 3 small kids and had never even heard of MD before. I did a ton of research and could not find any articles or medical journals related to MD in people younger than 50yo. Hence the name "Age Related Macular Degeneration"

    After a 2nd opinion at a facility known for their state of the art technology, it was confirmed. And yet, I find myself wondering ... how can this be?

    I go back and forth between believing it, and then freaking myself out if I feel like I'm noticing visual changes to Total denial and not noticing a damn thing.

    Am I crazy? Am I just losing my shit? Am I really seeing visual changes and ignoring them? Or manifesting visual changes because I'm thinking about MD?

    Is there anyone else around my age with this condition? I need to know I am not crazy or making this up.

    3 people are talking about this
    Community Voices

    Angel Therapy

    Over the past two weeks, I have consistantly been running into the topic of Angel Therapy. Generally, when these types of occurances happen to me, it is some realm of existance attempting to enlighten me. It doesn’t matter to me what name one elects to assign to this occurance be it spiritual, universal, a religious, or alternative health care. It only matters that I pay attention!

    I decided I needed to research Angel Therapy. I simply can’t tolerate having a conversation with myself and not knowing what I am talking about. Angel Therapy has existed since the 1980s. There are actually Angel Therapy practitioners. It is a art form connected to Reiki Therapy in some manner but a non-denominational method of connecting with our angels. This type of therapy, requires one to be open minded about ones angel beliefs. So, the researching is underway.

    Since joining The Mighty, I have been plagued with one consistent thought. That is how do we stop the pain and fatigue that is robbing us of all life’s quality. I must take pause and explore this topic. I now seek Mighties who have heard of this therapy and are a bit or largely knowledgable about Angel Therapy and or tried Angel therapy. Share what you know of this modality.

    #Rheumadoid Arthritis, #SystemicLupusErythematosus #PsoriaticArthritis #CrohnsDisease #UlcerativeColitis #Upallnight #Disability #BipolarDepression #ServiceDogs #communityleader #Deaf #VisualImpairment #MentalHealth #ChronicPain #AutoimmuneDisease #RareDisease

    6 people are talking about this
    Community Voices
    Mehak Siddiqui

    5 Things Not to Ask Me About My Visual Impairment

    I live in India and have albinism. While that attracts plenty of questions of its own, it’s the ones about my visual impairment that I usually find more difficult to answer. Particularly these: 1. “What do you see?” It’s difficult to explain. And the answer often depends on a range of extraneous factors like the time of day or the lighting in the room. Sometimes, I can recognize you from a distance; other times, I don’t even notice when you’re right in front of me. Also, I may be extremely myopic, but I can still make my way around without my glasses on. So please don’t gawk. And whatever you do, never wave your fingers in front of my face asking me, “How many?” That’s about the most annoying thing you could possibly do. 2. “Why are you squinting?” Because I need to. Sometimes, I just can’t see very well, despite having my glasses on. And there’s no doctor or surgery that can fix that at the moment, so please don’t recommend your ophthalmologist. I’ve lived with my condition for 28 years. I’ve done all the research there is to do and seen the best doctors I can afford. I go for regular check-ups and get updates about the latest procedures available, so please keep your advice/suggestions to yourself, no matter how well-intended they may be. This holds true even if you are a doctor yourself or related to one. 3. “Do you need help?” If I do, I’ll ask for it. At least most of the time. Usually for things like crossing busy roads or reading menus printed on walls at fast food joints. But when you try to help me without me asking, it is incredibly offending, like you are making me feel inadequate. I can manage most tasks completely well; I just take a little longer to do them. For instance, at the ATM, I’m a little slow with pushing all the right buttons. That doesn’t mean you have to try to help me. Chances are you’ll just end up confusing me and I’ll take even longer than usual. 4. “Why don’t you drive?” Because I love myself and respect others too much to risk causing an accident. Driving is great, it is empowering. I would love to drive myself around, but the truth is that my eyesight just isn’t good enough. Public transport can be very empowering in its own way — it gives me extra time to read or check emails or just plain daydream. And it’s kinder to the planet. 5. “Didn’t you see me smile/wave/gesture at you?” No, I didn’t. And I wasn’t snubbing you. I will never understand you unless I come right up to you and stare at whatever signs you are making, which kind of defeats the purpose of gestures, I suppose. So no, please don’t put me through that. If you want to get my attention, speak to me. My hearing is sharper than my sight. Follow this journey on Mehak Siddiqui’s blog. The Mighty is asking the following: Create a list-style story of your choice in regards to disability, disease or illness. It can be lighthearted and funny or more serious — whatever inspires you. Be sure to include at least one intro paragraph for your list. If you’d like to participate, please send a blog post to community@themighty.com. Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Submit a Story page for more about our submission guidelines.