macular degeneration

Join the Conversation on
macular degeneration
78 people
0 stories
5 posts
  • Explore Our Newsletters
  • What's New in macular degeneration

    Macular Degeneration at 31? #MacularDegeneration #VisualImpairment #VisionLoss #Blindness

    In July 2020 I was diagnosed with Macular Degeneration. According to my Eye Doctor, my risk factors put me at risk of "vision loss" at 60% in the next 5 to 10 years.

    That was a massive pill to swallow considering I was 30yo with 3 small kids and had never even heard of MD before. I did a ton of research and could not find any articles or medical journals related to MD in people younger than 50yo. Hence the name "Age Related Macular Degeneration"

    After a 2nd opinion at a facility known for their state of the art technology, it was confirmed. And yet, I find myself wondering ... how can this be?

    I go back and forth between believing it, and then freaking myself out if I feel like I'm noticing visual changes to Total denial and not noticing a damn thing.

    Am I crazy? Am I just losing my shit? Am I really seeing visual changes and ignoring them? Or manifesting visual changes because I'm thinking about MD?

    Is there anyone else around my age with this condition? I need to know I am not crazy or making this up.


    I was wondering if there were others who suffer from Advanced Macular Degeneration who can tell me what to expect.



    How to get help? Can't get an ASL interpreter for a doctor's appointment?! Aren't they required by law to provide one?

    I'm Deaf on my right side HoH on my left... I speech read to supplement my hearing... even with a crossover device. Now that everyone is wearing face masks, I'm at a loss... and I was told "we don't do anything like that here" when I asked about getting an interpreter for my next appointment! Aren't they required by law to provide one when a patient requests it? It's hard enough getting my questions answered... but I can't understand the dr even if he will answer. #Deaf #HearingLoss #PTSD #rheumatiodarthritis #retinaldetatchment #MacularDegeneration #Fibro #Migraine #Anxiety #Disabled #ASL


    I have macular degeneration... and vitriol detachment

    #MacularDegeneration #RA #ChronicPain
    I developed a hole in my vision tonight... in my "good" eye... possible start of retinal detachment... I'm terrified. With everything else I'm dealing with, I don't know how I will get thru this... calling eye dr tomorrow. I'm feeling so lost and helpless and hopeless ... and I'm usually fairly optimistic #Migraine #Fibro #Anxiety #PTSD