benign hypermobility joint syndrome

Has anyone heard of prolotherapy, or has done it themselves? I’m interested to hear more about its’ effectiveness, pros/cons, etc. #BenignHypermobilityJointSyndrome #prolotherapy #Opinion

I have been housebound/bedbound for years with unrelenting pain & spontaneous subluxations, dislocations of my joints. The worst are my shoulders and hips as even laying down causes dislocations. I have widespread instability & bone deformaties. When I try to walk my hip curves, subluxate & knees twist inwards painfully, outside leg bone on right leg moves & knocks as I try to use my feet normally. I cant stand for no more than 10 mins on very rare "better" days before my pain around the si joint, back & heels starts flaring severely making me fall with faitgue & balance issues, along with skin rashes & blood vessels burning as my blood pressure shoots along with my heartbeat, causing dizziness, sweating & muscular fatigue. My doctors are not helping me currently regarding joint issues. I use heat, ice often & medical cannabis has been my saving grace as all pain pharmaceutical medications have caused GI complications. #HypermobileType #ChronicIllnessEDS #BenignHypermobilityJointSyndrome

Hey everyone, I’ve been considering applying for a service/assistance dog, but I am just very unaware of anyone who has one, or knows someone with one that could tell me anything about it? Its just such a big decision I’d like all information possible so I make the right decision 😬😊 #assistancedog #ServiceDogs #MobilityAids #Decisions #Fibromyalgia #BenignHypermobilityJointSyndrome #Dysautonomia #MyalgicEncephalomyelitis #Depression #Anxiety #PanicDisorder

Has anyone gone through the process of applying for the Disability Support Pension in Australia It's so very confusing and any guidance or suggestions would be greatly appreciated #BenignHypermobilityJointSyndrome #Dysautonomia #Fibromyalgia #MyalgicEncephalomyelitis #University #Australia

In the past, I've always been able to deal with my limitations positively, but with less than three months of school left, my health rapidly going downhill and realising I probably won't be able to follow my dreams. I'm really struggling with my increasingly limited mobility, loss of independence and loss of future prospects.

It's just becoming very overwhelming and my normal resourcefulness and stubbornness isn't working anymore.

#CheckInWithMe #BenignHypermobilityJointSyndrome #Fibromyalgia #Dysautonomia #MyalgicEncephalomyelitis #University

I asked my rheumatologist this yesterday but her answer didn't make it any clearer tbh. She gave me a booklet on hypermobility but that didn't really answer my question either
#BenignHypermobilityJointSyndrome #HEDS

#BenignHypermobilityJointSyndrome