benign hypermobility joint syndrome

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benign hypermobility joint syndrome
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    Joint Hypermobility

    Joint hypermobility (and Ehlers Danlos) is more common amongst neurodivergent people than the general population. I didn’t learn this until adulthood, but it has had an impact on my overall health all my life nonetheless. Due to hypermobility, my right shoulder pops out of its socket while I sleep— not a fun way to wake up!!

    Do you have joint hypermobility or consider yourself to be double-jointed? How does it affect you?

    #BenignHypermobilityJointSyndrome #EhlersDanlosSyndrome #Hypermobility #AspergersSyndrome #bhjs #EDS #InvisibleDisability #bendy #ConnectiveTissueDisorder

    9 comments
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    Prolotherapy

    Has anyone heard of prolotherapy, or has done it themselves? I’m interested to hear more about its’ effectiveness, pros/cons, etc. #BenignHypermobilityJointSyndrome #prolotherapy #Opinion

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    I was diagnosed hEDS at the end of November. Can you share your tips & management advice? It would be highly appreciated #EhlersDanlosSyndrome

    I have been housebound/bedbound for years with unrelenting pain & spontaneous subluxations, dislocations of my joints. The worst are my shoulders and hips as even laying down causes dislocations. I have widespread instability & bone deformaties. When I try to walk my hip curves, subluxate & knees twist inwards painfully, outside leg bone on right leg moves & knocks as I try to use my feet normally. I cant stand for no more than 10 mins on very rare "better" days before my pain around the si joint, back & heels starts flaring severely making me fall with faitgue & balance issues, along with skin rashes & blood vessels burning as my blood pressure shoots along with my heartbeat, causing dizziness, sweating & muscular fatigue. My doctors are not helping me currently regarding joint issues. I use heat, ice often & medical cannabis has been my saving grace as all pain pharmaceutical medications have caused GI complications. #HypermobileType #ChronicIllnessEDS #BenignHypermobilityJointSyndrome

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    Co-Occurring Conditions

    If you have one, you are 50% more likely to have at least one additional condition. How many do you have? Comment your own to add to the list! #Autism #ADHD #MentalHealth #ObsessiveCompulsiveDisorder #BenignHypermobilityJointSyndrome #BodyFocusedRepetitiveBehaviors #Epilepsy #BipolarDisorder

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    doe anyone have experience with assistance dogs?

    Hey everyone, I’ve been considering applying for a service/assistance dog, but I am just very unaware of anyone who has one, or knows someone with one that could tell me anything about it? Its just such a big decision I’d like all information possible so I make the right decision 😬😊 #assistancedog #ServiceDogs #MobilityAids #Decisions #Fibromyalgia #BenignHypermobilityJointSyndrome #Dysautonomia #MyalgicEncephalomyelitis #Depression #Anxiety #PanicDisorder

    9 comments
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    Australian Disability Support Pension

    Has anyone gone through the process of applying for the Disability Support Pension in Australia It's so very confusing and any guidance or suggestions would be greatly appreciated #BenignHypermobilityJointSyndrome #Dysautonomia #Fibromyalgia #MyalgicEncephalomyelitis #University #Australia

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    Kinda sad mumblings

    In the past, I've always been able to deal with my limitations positively, but with less than three months of school left, my health rapidly going downhill and realising I probably won't be able to follow my dreams. I'm really struggling with my increasingly limited mobility, loss of independence and loss of future prospects.

    It's just becoming very overwhelming and my normal resourcefulness and stubbornness isn't working anymore.

    #CheckInWithMe #BenignHypermobilityJointSyndrome #Fibromyalgia #Dysautonomia #MyalgicEncephalomyelitis #University

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    What's the difference between benign joint hypermobility syndrome and hEDS?

    I asked my rheumatologist this yesterday but her answer didn't make it any clearer tbh. She gave me a booklet on hypermobility but that didn't really answer my question either
    #BenignHypermobilityJointSyndrome #HEDS

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    Is familial benign hyper mobility the same thing as hyper mobile ehlers-danlos (hEDS)? My son was diagnosed with familial benign hyper mobility.

    #BenignHypermobilityJointSyndrome

    3 comments