Changes to improve sleep with BMS
I have had BMS since 2018. Over the past two weeks it became unbearable; like fiberglass in my mouth & down my throat. Overall, I made 30+ changes in my life over the past couple weeks to calm the pain as I wasn’t sleeping or eating much (lost 5 lbs). QOL was very poor. Here is a list. ** means I think they were the most beneficial for ME.
I am in close contact with my PCP.
Burning mouth syndrome - fiberglass in mouth/ throat
Changes to improve sleep
**1.) Added CBD capsules/ gummies - CBD has anti-inflammatory properties
**2.) Added trazodone 50mg then 25mg (experimenting to find lowest effective dose)
**3.) Ear plugs
**4.) Close windows/ air quality/ comfortable room temp
**5.) No TV - for weeks (I have TBI)
**6.) Minimal screens- phone hours before bed
7.) Finch app
**8.) Belly breathing during day/ at night
9.) Calm time hours before bed- vagus nerve stimulation (YouTube videos/ massage ear, throat, etc)
**10.) Tea before bed - chamomile/ MudWTR/ Ginger w/ honey& lemon
**11.) Decreased fluid intake significantly starting around 4 pm -6 pm (except 1 glass tea) so not waking up to pee
12.) decreased basal rates (less chance of alarms- I have Type 1 Diabetes)
******13.) Oxyfresh Premium Pro Relief Dental Gel with Zinc –Infused with Aloe Vera, Chamomile and xylitol
******14.) dry mouth Xylimelts
15.) stopped 50% meds/ supplements in case some weird toxicity/ sensitivity . I am a pharmacist so I felt comfortable. Do NOT do this without talking to Healthcare professional!
16.) stopped Symbicort in case of thrush. Again, speak to PCP
17.) added creatine to coffee - I have TBI so it may help decrease overall body/ brain inflammation
18.) added molasses to coffee in case low iron
**19.) added ALA 600mg / Tumeric capsules back in .
20.) decreased SSRI by 50% to decrease dry mouth (again talk to PCP)
21.) magic mouthwash compound
**22.) (stopped eating because of mouth pain lost 5 lbs) So started Ayurvedic cleanse- made Kitchari . Basmati rice, yellow mung beans, & kitchari spice.
**23.). Positive thinking/ gratitude journal/ self love.
**24.) rest!!! Calm activities
**25.) lots of lemon/ honey in warm water sipped throughout the day
26.) leisurely walks at night while drinking bedtime tea
**27.) cold cubed watermelon daytime
**28.) hacky sack held in hand at night for stress relief
29.) gave up coffee (take time released caffeine capsule). Added Teccino Dandelion herbal tea coffee alternative
30.) stopped maca powder in oatmeal as part of detox
31.) warm water first thing in AM to wake up digestive system
32.) added 1 tsp apple cider vinegar to warm water (supposedly reduces blood sugar). work up to 1 TBSP
**33.) gabapentin 300mg then 100mg. Then 200mg for nerve pain. (Experimenting to find lowest effective dose)
34.) baking soda/ water rinse
I have tried clonazepam susp in past and feels good while it’s in my mouth, but didn’t last too long. I have ordered organic cayenne extract but it’s not here yet. Please don’t give up! Keep trying things until you find something that works!! 💕