The hockey player on the right side of the picture, Bryan Bickell , donated to our Skydiving for MS fundraisers.
So many details and so much variety: different sports, different disease courses, different approaches to treatment.
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
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"Managing and Treating Gait and Balance"
If you miss it live, no problem: They are all recorded and available here, along with links to today's and future programs. Watch your step!
www.nationalmssociety.org/resources/get-support/education-pr...
#MultipleSclerosis #we Are #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
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It's definitely a conversation-starter, or a conversation-ender. Out of the blue, my heal and knee start bucking or tapping very rapidly up and down, like Morse code: tap-tap-tap-tap-tap times 100. My cat opens an eye, disturbed from her nap, then looks at me and we are both thinking the same thing: Is my leg possessed?
No, this is clonus, a rhythmic muscle spasm brought on by crazy, out-of-place signals coming from my Swiss-cheese-like brain/central nervous system. Once again, that's clonus, brought to you by our sponsor — #MultipleSclerosis.
Truthfully now, my friends, how many of you get clonus? Or do I need to see an exorcist?
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
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The lasting impact of living through a global pandemic — and its ongoing physical, emotional, and psychological effects — is something many of us are still managing and navigating in one way or another. Yet, it’s a topic that isn’t talked about nearly enough.
📋 What’s your experience with COVID-19 and the vaccine? How has it continued to impact your life, even now? We’re working on a story and would love to hear your experience.
Let us know in the comments below! You can also check out Mighty staffer @vycao post here regarding sharing your experience: Share your experience with COVID-19
#COVID19 #MentalHealth #CheckInWithMe #longcovid #ChronicIllness #Caregiving #Vaccine #RareDisease #Depression #Anxiety #PosturalOrthostaticTachycardiaSyndrome #ChronicPain #Spoonie #Disability
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Some come to talk or watch a movie together, others to chat with the counselor on duty, and some just to enjoy the free cup of warm Ramen noodles (South Korean comfort food) and leave. The hangout spaces are much more popular than the Seoul city government thought they would be.
Reach out and touch someone today. That's what we do here at the Mighty, where there is always a light on and somebody to connect with.
www.bbc.com/news/articles/cgkrge6e0z4o
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
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But summer doesn’t have to be miserable. Be cool, my buds, with these tips and helpful heat hacks.
www.nationalmssociety.org/news-and-magazine/momentum-magazin...
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
4 reactions Hi, my name is TessAmara. I'm here because caregiving—especially at the end of life—is both the hardest and most sacred work I've ever done.I’ve spent countless nights holding my mother’s hand through sundowning, pain, and silence.I wrote a book called Let the Weak Be Strong to preserve the truth of those moments—the love, the grief, the fight to stay present.I'm looking for others who understand what it means to show up when everything hurts.I believe in legacy, emotional honesty, and the power of storytelling to heal.#MightyTogether #Caregiving #Grief #Hospice #Memoir
#MightyTogether
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I always hear a punk rock song: DUM-DUM-DUM-DUM tap-tap, DUM-DUM-DUM-DUM tap-tap (Well, you've got to do something! :)
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
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There are few treatments for progressive MS and those have side effects. But there's a new oral treatment on the way. Only don't ask me how to say the name!
Here's tolebrutinib: multiplesclerosisnewstoday.com/tolebrutinib-multiple-sclerosis
BTW is anyone out there like me, unable to take current DMTs?
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
5 reactions After five years of fighting untold hours and endless meetings a pricy educational advocate we finally finalized my sons out- of- district placement for the upcoming school year. For the non Americans let me explain: the local public school is obligated to provide an education for every child within their district. If you choose private great, but otherwise they must accommodate you. If they are unable they must place your child in a school/ or with a district that is able and willing. The problem happens when they think they can but you disagree. Thank god we are here. #Autism zebra #unusual #Worn out
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