Chronic Fatigue

I been in excruciating pain in my lower back down my left leg 11hours now. It’s relentless and I can’t sleep. I can’t focus. I can try type. I want to chop my leg off. Took all meds I could for the pain. Nothing holding it. I listened to guided meditation and all. My QL is spasms all the time. I’m so tired. I wanna cry. Anyone put up with pain or flare long? I tried stretching too. Nothing. Sorry for the rant. I’m really suffering I need it to stop

If anyone has done the DNRS and Gupta practice please tell the core technique of it? I really need it and have gone to their website before but you need to purchase it in order to do it and I've done the Gupta free trial but they also don't let you see the core technique before purchasing it. It's disgusting how they are profiting off desperate and sick people like me but I really can't afford the cost they want. I do know that it's supposed to be a sort of visualization where you visualize yourself as a healthy person but I'm really unsure. Can anyone please help me? I'm geniunely really desperate and would be immensely greatful if you can let me know the core technique if you've done this before.
#Fibromyalgia #ChronicFatigue #ChronicIllness #ChronicPain #MultipleChemicalSensitivity #MajorDepressiveDisorder #MastCellActivationDisorder #IrritableBowelSyndromeIBS

If your like me you might still be awake due to your condition...the pain does not sleep. But I thought I'd share my first video as a chronic health therapist. Im going to try a post weekly. What do you think and what topics would you want a therapist to talk about?

www.youtube.com/watch

#ChronicFatigue #MentalHealth #ChronicFatigueSyndrome #ChronicPain #Fibromyalgia #SUNCTHeadache #TrigeminalNeuralgia #Lupus #ThyroidDisease

A diagnosis of HIV can be the beginning of a rollercoaster of health related issues; especially as one ages with HIV. Having lived with this virus for a number of years, one can say that comorbidity and HIV are a single package; one of life expectancy and the quality of life. The deterioration of one’s health can come in various ways, and as does disability.

Disability is a challenge physically, mentally, emotionally, and spiritually. A person is to be independent, self-sufficient and provide for themselves; as well as for others. Therefore, to accept one’s own disability jeopardizes independence, self-sufficiency, and the ability to provide.

Disability tears at the fabric of one’s perceived self-worth and dignity, in light of the possible negative perception of others and society; in the falsehood of becoming nothing more than a burden on others, because care and assistance must be provided for on a regular or daily basis. Yet, everyone who has been blessed with having a life lived will be cared for, treated, and or need assistance to get about and accomplish things in daily life, at some point; a reality each one of us must accept.

My immune system is one of those which are more susceptible to outside elements; and combined with HIV infection and long term immune system response (inflammation) it has made me more susceptible to comorbidity, seen in older senior adults; as a result I have comorbidities. Antiviral therapy is keeping me undetectable with a healthy CD4 count, keeping the virus at bay; but it isn’t preventing the toll living with HIV is taking on my body.

The first signs of typical aging are immobility and frailty. HIV is showing that the signs and impact of aging does not have a number. My number is age 45. Yet, think back to the many people who have died due to the development of AIDS, because there wasn’t antiviral therapy. They did not have the benefit and opportunity to be undetectable, and to age with HIV, regardless of comorbidity.

I go on living regardless of my quality of life, which can definitely be alot worse. The big picture is about living my life to the fullest, regardless of my circumstances and any disability. This is my mind set as I venture forth in my personal circumstances.

My HIV related peripheral neuropathy is not completely reversible nor is it easy to treat. I am receiving treatment, but it has also resulted in chronic pain coupled with chronic fatigue, which varies in the degree of discomfort and debilitating effects on a daily basis; from getting about with relative ease with minimal discomfort and pain, to needing to stay off my feet.

When my chronic pain due to neuropathy is at its worst sitting down and standing, kneeling down, making my way up and down a pair of stairs, and walking in general, is a nearly impossible painful challenge. These days are farther and fewer in between. The most important thing is that I am still mobile.

I was diagnosed with osteoporosis after breaking my wrist in a situation where it normally doesn’t happen, and raised a red flag. This was worrisome and unexpected news, to be at a high risk for bone fractures, and the relative ease it can happen with a single fall or wrong turn of my body with a slip on the rug.

That being said, I am currently receiving treatment for osteoporosis as well. The chronic pain from my neuropathy complicates my treatment plan for osteoporosis; in regards to my exercising to strengthen my muscle and bones.

Therefore, I have taken precautions to prevent any accidents. I make use of a cane and walker if needed (I currently live alone) and have installed railings in my shower and bathroom. I also keep a strict food and drink diet, along with nutritional supplements, medication adherence, and the managing of my level of activity due to my chronic fatigue.

It is not easy living with HIV as you get older, but life is a journey and a challenge; with happiness victorious if you let it.

Written by James Cotromanes

I've been feeling lately like my few commitments are too much. I'm so, so tired, and I feel like I can't ever get enough rest. I have both physical and mental health conditions that occasionally flare up and become disabling... Still, I find myself unsure of what to do next, even knowing the reasons for my exhaustion. I feel guilty that I can't just rise above this.

I'm really feeling quite emotional because I've been debating dropping out of grad school. I never thought I'd even speak those words, but here I am. I'm feeling too exhausted to achieve the goals that once made me so happy and motivated me to push through difficult days. Part of me just wants peace, space to enjoy life, and finally, after so many years, a life without homework or commitments that haunt me after I leave work. But part of me is also so afraid that I'd be giving up on my potential. I imagine myself wondering, years from now, if I made the right choice. I imagine myself telling my future children what I do for a living, and... I feel ashamed of admitting that I just want to step back and recover from this stress that I cannot shed.

Any and all advice is appreciated. Thank you.

#InflammatoryArthritis #Autism #ChronicFatigue #Anxiety

I'd really love to know if anyone has a good method for tracking their symptoms. In the past I've used a bullet journal but it gets so overwhelming to keep up with. I'd love an easier system or even an app or something. I want to track for myself to find patterns and hopefully some relief, but also for my doctors as I work towards a diagnosis. Any tips are greatly appreciated. 💜 #Fibromyalgia #Undiagnosed #ChronicPain #ChronicFatigue

Hi, my name is rachel newport. I'm here because I have fibromyalgia, chronic fatigue, & ptsd. I would like to learn from, and also help, others like me.

#MightyTogether #Fibromyalgia #Depression #Fibromyalgia #PTSD #ADHD