ChronicIllnessConfessions

My husband is an amazing man. He's everything I could want.
He cooks, does the laundry, irons school uniforms, washes the dishes, drives me to work and takes the kids across town to school. He is an amazing father.
He makes sure I have everything I need. He checks on my medication and massages my cramping muscles.
He is kind and loving and still pays me lots of attention physically with kisses and hugs and wandering hands.
I'm a 32 year old woman with muscular dystrophy. My face is young but my body is old. I'm in daily chronic pain and often need to stay in bed all day at weekends or all evening after work. I'm gaining weight because my mobility is poor and I get short tempered due to the pain.
I use canes and a scooter already.
How does he find me attractive?
How do I deserve this man who is beautiful both inside and out? I don't feel worthy.

#ChronicIllnessConfessions

I am jealous of your working pancreas
while mine
is placeholder
for revolutionary scientific breakthrough
yours is saving room for dessert
mine is a reminder of brokenness
yours is normal
a foreign concept
to me. #MightyPoets #ChronicIllnessConfessions

#ChronicIllnessConfessions - With receiving only 60 percent of my income. I lost hundreds of $ & had to take high interest loans out or borrow from family to just pay rent and bills. My husband and I had 4 hospitalizations this year. Noto mention getting takeout due to myself and husband not feeling well to cook. We both have chronic illness. In addition, I am constantly worried that we are going to lose everything. Where would we go? I also have to pay a portion of my health insurance because I am on medical leave. When my fmla expires, I have to pay the full cost of medical benefits. Luckily, my ortho dr. office covers visits 3 months after surgery (per global health care initiative). I will have to pay for casts, and wound dressings though.

I don't shower for days 😞 My hair get knotted up from being in a bun. My teeth don't get brushed as often as they should. I eat horribly and I take too much otc anti-inflammatories. Even though I wash up every night, I can not fathom the thought of taking a shower most days. It's awful, but that's chronic pain & chronic fatigue for you. It's part of my life...
#Lupus #Fibromyalgia #ChronicPain #DegenerativeDiscDisease #SpinalStenosis

I forget what it's like to not be sick.

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#ChronicIllness #ChronicPain #Fibromyalgia #LymeDisease #Lupus #CrohnsDisease #UlcerativeColitis #InflammatoryBowelDiseaseIBD #Gastroparesis #MentalHealth #Endometriosis #Migraine #RareDisease #Disability #EhlersDanlosSyndrome #Dysautonomia