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I have several different autoimmune diagnosis chronic pain, neuropathy , RA, adhd & everything in between . I have always had to write dates and notes of everything . This includes flare days, notes, dates of mri’s, labs, X-rays and as soon as soon as I leave a dr’s office I always note how my visit went & different remedy’s we’re going to change or add. Personally this has become really overwhelming for me as I attempt to keep track of it all. I’m already a very forgetful person and struggle with memory issues . I just do better overall by writing things down. I try to keep track in a notebook and my calendar & it’s just too much. I am so overwhelmed with keeping track of everything that life has been quiet chaotic. I guess the overwhelm of making sure I’ve noted everything that I’m finding it so hard to do very basic tasks in life . Can any of you reccomend an app that can help us navagate through life and actually live all at the same time .

Thank you so much

#RA #cognitive #Organizing #App #ADHD #AutonomicDysfunction

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FND and all it's crazy symptoms

So I have a new diagnosis to add to my ever growing list of conditions.
The newest one is called #FND functional neurological disorder.
Apparently it's the reason I have #Migraines with visual auras and strange #sensorysymptoms such as the feelings of a electric current running over my skin, water droplets on my skin. The sensations of my feet stood in puddles when they are completely dry. When these happen that can cause me to react with wiping my face constantly or scratching which makes me feel awkward. #cognitive problems such as stumbling over my words, saying the wrong words and putting a completely different word in its place and if I try to correct myself I get flustered and make things worse. These are but just a few of my symptoms that I deal with.
Add these to my already large list of complaints
Heds, osteoarthritis, hypertension, ibs and other horrible gastrointestinal disorders, chronic pain and fatigue .
I'm 46 in 8 days and most of the time I feel closer to 66.
I get told to exercise more. I used to go running/walking most days for anything up to 13 miles . I would do kick boxing and go to the gym. It didnt help the conditions or pain levels then it wont help now. Except now I'm to bloody exhausted to do much more then work an run a house .
Tell me there is hope for us that suffer daily. Because I'm beginning to run out of fake smiles to wear.



What am I doing wrong?

I really want to find support and/or help here, but I cannot figure out how to do so? Can someone please help? #TraumaticBrainInjury #confused #alone #cognitive -overload #exhausted

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Do you ever wish you could go back in time?

Does anyone ever obsess over "if only I had done differently" or "i wish I could go back redo?" Any tips for re- routing these thoughts or moving past them? It is so so hard for me to move on and I tend to get caught in a loop of thinking about the past, regrets, and things that I miss but can't get back. I try to distract myself but it is a real struggle. I hate feeling like I messed up and could have done differently and maybe I'd be happier if I did something different. Idk. Trying to find ways to move past... #Anxiety #Depression #MentalHealth #cognitive


Cognitive overload ##cognitive overload

My brain is really struggling with all the information that I have had to process I am having surgery on October 11 I was in the admissions process for three Guide dog schools now I have to push all these plans on hold. Plus working and getting ready to go to rehab after surgery. 😑 ugh I am really tired.


Does anyone feel like they're just not understood by others? #Bipolar #TBI #ADD #cognitive disorder #Depression

It often seems others don't understand me. I become frustrated, often angry trying to explain myself to family & friends. It seems like I'm talking a different language. I find it difficult to find the correct wording to describe my thoughts &/or feelings. Any suggestions please? Hugs