Dysautonomia

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Anyone else get nervous for meeting a new specialist?

I am meeting a cardiologist today and my biggest fear is that I will walk away from the appointment receiving no help and no plan of action of where to go or what to try.

The last time I met a new doctor I walked away, feeling very defeated. I’ve been chronically ill since age 10. I’m now 27 and I’ve grown a lot. But when you explain something that’s going on to a doctor and their response is “that can’t happen”, you feel very lost and defeated and lose trust in the medical system.

Fingers crossed for a good appointment 🤞🏼. #POTS #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #MentalHealth #Anxiety #NewSpecialist

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Don’t Stand Up Too Fast!

Today’s #chronicillness trading card is #FacePlant !  Many with chronic and rare diseases have bouts of #dizziness and #FaintingPostural Orthostatic Tachycardia Syndrome (#pots ), #Epilepsy , and #Dysautonomia are some of the many conditions that have random #dizziness and #Syncope . #Maladiemon

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Stronger by Melanie R.

Stronger by Melanie R.

I’m about to get back up stronger-
Stronger than ever!
I’m about to get back up stronger-
Stronger than ever!

Got knocked down.
The wind taken from me.
From all the trials….The suffering.

I’m about to get back up stronger.
Even in dark places-
when I’m feeling overwhelmed.

Seven times I fell down-
and got back up again!!

(listen my enemies)

I’m about to get back up stronger-
Stronger than ever.

(Don’t gloat,)
I will get back up stronger
Even as I sit in darkness, the Lord be my shining light.
Stronger….Oh believe!

(Believe it and receive!)

Stronger in the Lord!

Even in dark places,
when I’m feeling all alone.
The Lord will not forsake me,
He is right here by my side!

The God of second chances-
Give me strength;
Be my guide.

2 Timothy 2:1
You then, my son, be strong in the grace that is in Christ Jesus.

Proverbs 24:16
For a righteous man falls seven times, and rises again…

Micah 7:8
Do not gloat over me, my enemy!
Though I have fallen, I will rise. Though I sit in darkness, the Lord will be my light.

#MitochondrialDisease #InsideTheMighty #IfYouFeelHopeless #MightyPoets #PrimaryImmunodeficiency #ChronicPain
#MightyTogether #CheckInWithMe #ChronicIllness #Dysautonomia #HypothyroidismUnderactiveThyroidDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #MightyTogether

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Victory by Melanie R.

The battle is shifting!
Fresh courage be in your spirit.
(come Holy Spirit)
You are protected.
Burdens are lifted.

Divine restoration-
Transformed.
Put on the mind of Christ!
Strength Filled with renewal;
Given eyes of sight.

Healing has begun.
Washed over…
Mind and body.
All Through My Lord Jesus-

Victory is won!

God bless you all in a mighty way! I love to hear how God is working in your life and healing you!

You are protected:
For He will command His angels concerning you and to guard you in all your ways.
Psalm 91:12

Burdens are lifted:
Come to me all who labor and are heavy laden; and I will give you rest.
Matthew 11:28

Divine Restoration:
I will restore you the years that the swarming locusts has eaten, the hopper, the destroyer, and the cutter, my great army which I sent among you.
Joel 2:25

Put on the mind of Christ:
Have this mind among yourselves, which is yours in Christ!
Phillipians 2:5

#InsideTheMighty #CheckInWithMe #MitochondrialDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicIllness #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #PrimaryImmunodeficiency #Hyperparathyroidism #MightyPoets #MightyTogether

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Thanksgiving by Melanie R.

Thanksgiving by Melanie R.

Our hope brought thanksgiving;
The Lord Jesus Christ.
Our striving in sharing,
and doing what’s right.
As We come together to focus on Him;
For all thats been given.
The presence within.

Our hearts appreciation for all that we have.
For all that we’re stewards;
For answers to prayers.
Lord we say thank you,
for your love, for your grace!
It’s your name on high!
We sing of your praise!!

For all gifts received and all gifts bestowed.
It comes from the spirit.
Can’t be bought.
Cant be sold.
Our Lord’s plantings,
seed to sown.

We thank our Lord Jesus for His sacrifice,
the greatest gift given…
everlasting life.

#InsideTheMighty #PrimaryImmunodeficiency #ChronicIllness #Dysautonomia #ChronicInflammatoryDemyelinatingPolyradiculoneuropathy #HypothyroidismUnderactiveThyroidDisease #MitochondrialDisease #MightyPoets #MightyTogether #CheckInWithMe

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Manna by Melanie R.

Manna by Melanie R.

Jesus Christ;
bread from heaven.
The One that gives life eternally.
Supplies, and multiplies;
All through Christ, and Christ alone.

Our True Manna from the sky.
Assigned-
A shadow of what was, and is to come.
Jesus our substance.
Manna the standard.
(He gave the manna.)

The Father gave the manna offering salvation to the world.
Eternal bread.
Sufficiently God supplies.
But are we seeking for the food?,
Or the life that satisfies?

God bless you all to the fullness of Christ on this holiday! Body and spirit, take in The Life!

Please feel free to leave your prayer requests if you need extra prayer over this season.

#InsideTheMighty #PrimaryImmunodeficiency #MightyPoets #MightyTogether #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #Dysautonomia #HypothyroidismUnderactiveThyroidDisease #PosturalOrthostaticTachycardiaSyndrome #MitochondrialDisease

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The Veil by Melanie R.

The Veil by Melanie R.

Birthed in fire.

Called, Chosen, Appointed,
Confirmed, Anointed…

You hear, you see.

You know-

The gate is open!
The veil lifted;
Piercing our soul!

Moving beyond the tears, and suffering in pain.
The glory of the Lord rises upon us.
We wear heaven’s crown!!

Remnant revealed!!

Stand in awe and tremble at God’s healing work in me!

#MightyPoets #InsideTheMighty #MitochondrialDisease #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #RheumatoidArthritis #PrimaryImmunodeficiency #IfYouFeelHopeless #CheckInWithMe

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