Dysautonomia

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Tip Tuesday 💡- Journaling

Journaling doesn't have to be fancy, or even in a notebook. You can scribble thoughts down on scrap paper, a post it note or even a napkin. It can be a few sentences, a few paragraphs or even pages long. You'd be amazed how much it helps your brain to get the thoughts out on paper. Also, it can help you process thoughts or something that you're going through that's hard.

If you try it today, let me know how it goes!
#Anxiety #AnorexiaNervosa #Addiction #AutismSpectrumDisorder #ADHD
#Agoraphobia #BorderlinePersonalityDisorder
#BipolarDisorder #BipolarDepression
#Mania #ChronicFatigueSyndrome #CeliacDisease #Cancers #ChronicDailyHeadache #ChildLoss #ChronicIllness #ChronicPain #CrohnsDisease #Dysautonomia #Depression #EatingDisorder #Lupus #SjogrensSyndrome #PTSD #Schizophrenia #Selfharm #Fibromyalgia

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I'm new here!

Hi, my name is Zebramama0914. I'm here because I need as much help as I can get for myself and my kiddos. Dealing with hEDS, dysautonomia, MCAS, ADHD, SIBO, CCI, and Tourette’s amongst us.

#MightyTogether #Anxiety #Depression #Migraine

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Crimson Red by Melanie R.

Crimson Red by Melanie R.

Crimson red-
against the snow.
My heartache bleeds, and nearly froze!
I turn to you
and say a prayer,
release me Lord,
from pain and spare
my heart from this deep suffering.
The ache.
The hurt.
My mind wandering.

Crimson red.
Down and blue.
White of snow.
Thoughts of you.

Buffalo blizzard.
A frozen cry.
Of time felt lost, and days gone by.
Your memory will never fade.
Swirls like wind, still falls like rain.
Our hearts hold onto memories,
Days up,
then down…like swaying trees.
Crimson red.
Hearts of truth.
Cold of snow.
Thoughts of you.

Red cardinal singing
love’s forever song of faith.
Holy water springing;
by pearl of heaven’s gate.
A timely whispered love song,
her music sung deep blue.
Sets free-
releases sadness,
as spirit’s called to you.
Consecrated!
Soul guided!
As He has heard our cries!

He knows of all the suffering,
every groaning,
every sigh.

Crimson red-
the blood was poured;
robes washed white-Calvary brought forth.

A poem/song about the untimely loss of my mother in the winter of 2021.🌹

#Grief #COVID19 #MitochondrialDisease #AutoimmuneImmunodeficiency #Dysautonomia #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #PrimaryImmunodeficiency

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I’m new here!

Hi, my name is Nox_05. I've been diagnosed with
multiple chronic illnesses and many of them cause me severe pain. I don’t have anyone in my day to day life that I can tell about it, and especially not have them understand instead of try to fix. I’m here because I need to talk about it, to people who understand
#MightyTogether #Anxiety #Migraine #AutismSpectrumDisorder #EatingDisorder #Grief #ehlers-DanlosSyndrome #MastCellActivationDisorder #polycysticovarysyndrome(PCOS) #PosturalOrthostaticTachycardiaSyndrome #Endometriosis #Dysautonomia

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Anyone else get nervous for meeting a new specialist?

I am meeting a cardiologist today and my biggest fear is that I will walk away from the appointment receiving no help and no plan of action of where to go or what to try.

The last time I met a new doctor I walked away, feeling very defeated. I’ve been chronically ill since age 10. I’m now 27 and I’ve grown a lot. But when you explain something that’s going on to a doctor and their response is “that can’t happen”, you feel very lost and defeated and lose trust in the medical system.

Fingers crossed for a good appointment 🤞🏼. #POTS #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #MentalHealth #Anxiety #NewSpecialist

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