Dysautonomia

Hi, my name is Bighorse. I've been diagnosed with cutaneous lupus, fibromyalgia, ME, hyper mobility, possible Sjögren’s and dysautonomia.

#MightyTogether #Anxiety #Depression #Fibromyalgia

1 car accident with 1 neck surgery with a damaged vagus nerve…..5 years, 136 tests, lost profession, financial collapse, mental breakdown, unanswered questions, life interrupted, medically educated by necessity, forced into disability.

#MightyTogether #Dysautonomia #HemiplegicMigraine #PosturalOrthostaticTachycardiaSyndrome #LongQTsyndrome #AdrenalInsufficiency #Gastroparesis

I'm new to the platform. Our 11 yr old was recently diagnosed with Dysautonomia without specification. He frequently has episodes of dizziness, nausea, vomiting shaking, sweating, blood pooling and stomach discomfort.

With him being autistic, he sometimes struggles to tell us how he's feeling. We're keeping a journal of what he's eating, what he's doing when an episode occurs etc. We haven't known any common factors other than stress in some cases.

Any information or insight we can obtain in order to help him would be greatly appreciated. ❤️

Hi, my name is Nashnest. I'm here because our 11 yr old autistic son has recently been diagnosed with Dysautonomia. We want to know more about it and how best to support him along with his other diagnosis of ADHD & Tourette's.

#MightyTogether

Hi, my name is Beryl907. I'm looking for community and resources related to Long COVID, dysautonomia/POTS, ME/CFS, and chronic illness.

#MightyTogether #AutismSpectrumDisorder #ADHD #Depression

#EhlersDanlosSyndrome

Hi, my name is RSight. I've been diagnosed with Ehlers Danlos, Dysautonomia and Mast Cell Disorder.

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Hi, my name is Chronic_spoonie17. I've been diagnosed with Superior Mesenteric Artery Syndrome, Gastroparesis, Dysautonomia, POTS, chronic pain, and Fibromyalgia.

#MightyTogether #BipolarDisorder #Depression #Anxiety #Fibromyalgia #Migraine #PTSD #Grief

Hi, my name is pcochran. I've been diagnosed with dysautonomia by my pulmonologist. since 2021 i have not felt like myself , countless specialists 2 surgeries no one could figure it out. rapid heart beat , low BP is the latest development ., venous insuffiency in both legs. i cant catch my breath after walking through the grocery store .palpitations. cardiologist laughed at me , i went to the ER one night bc of shortness of breath and swelling in my legs, i told er dr i was concerned about blood clots , literally he laughed at me , i got up left . i knew something was wrong with me but all my tests were negative , but no one would listen to me . my husband thought i was a hypochondriac . i was starting to think i was crazy maybe it was all in my head.i a np at the vein clinic did a assesment test on me i had straps on my ankles and wrist , sat down and stood up .
thats what led to a dysautonomia , idk what kind yet tho.
#MightyTogether #Dysautonomia