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Hi, my name is AMETZ0626. I'm here because
Hi, my name is AMETZ0626. I'm here because
Sweet Release by Melanie R.
Let every voice of fear be silenced!
Let every anxious feeling be shut down;
and every dark thought that said you are broken, …or forgotten,
be CRUSHED under this Sweet Release!
The past is healed,
and the future is declared righteous!
Omnipotence pour over your spirit and be released!
Sweet release!
Thank You Jesus!
Moving mountains!
I’m free!
Sweet release!
Your future is in God’s Hands;
It’s unshakable!!
Nothing on this earth can come against you.
Miracles happen to this day!
Have faith!
Sweet release!
We ask Mighty God of Heaven to shake your spirit free!
Be free!
In Jesus’ name!
Be released!
Have faith!
Ooh sweet release!
Nothing’s impossible with The One and only True God!
Matthew 17:20
“Truly I tell you, if you have faith as small as a mustard seed, you can say to this mountain, Move from here to there, and it will move. Nothing will be impossible for you!”
#ChronicIllness #Dysautonomia #MitochondrialDisease #PrimaryImmunodeficiency #PosturalOrthostaticTachycardiaSyndrome #RareDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #InsideTheMighty #MightyPoets #MightyTogether #CheckInWithMe #ChronicPain
Destiny’s Door by Melanie R.
Ignite your spirit!
The final stretch is so close-
Feel divine fulfillment.
Holy Spirit, Holy Host.
What God has released is unstoppable! Sudden glory!
We are almost there!
Inches away from destiny’s door.
Surrender.
Endure.
Our life Authored by Heaven.
Positioned…aligned.
Refined vessels carry refined messages!
Elevated.
Silence doubt-
Reject fear!!
Activate divine movement!
Closer than you know.
Stay ready!
#ChronicIllness #Dysautonomia #MitochondrialDisease #PrimaryImmunodeficiency #PosturalOrthostaticTachycardiaSyndrome #RareDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #InsideTheMighty #MightyPoets #MightyTogether #CheckInWithMe #ChronicPain
Hi, my name is Alyssa. I've been diagnosed with Dysautonomia.
I'm Matt, and I just started the SFN Foundation to help people with small fiber neuropathy. This condition causes real pain and makes daily life hard, but many patients can't find good information or connect with others who understand.
I know how hard it is to feel alone when dealing with a rare condition as I have small fiber neuropathy. That's why we created our foundation to give patients and families the clear, helpful resources they need and to support research that could lead to better treatments.
Please help spread the word if you feel inclined and feel free to check out the website here: sfn-foundation.org
#ChronicPain #AutonomicDysfunction #Neuropathy #SmallFiberNeuropathy #Dysautonomia #MultipleSclerosis #POTS #Lupus #SjogrensSyndrome #MentalHealth #MastCellActivationDisorder
Chronic illness isn’t just what happens inside your body. It’s what happens around it too. It’s the maze of mirrors the world builds around you. You try to walk forward, but in every direction, there’s a disordered reflection of yourself. Not the kind you laugh at in a mall funhouse, but a warped, dizzying trap where every door leads to another hallway, another dead end, another gatekeeper pointing you the wrong way.
And the mirrors don’t just make you look shorter or taller — they show you as lazy, dramatic, hopeless, beyond fixing, too sick, not sick enough. And sometimes, even when you know your own truth, those mirrors convince you they’re real.
You spend months. Years. Decades. Wandering the maze. Bumping into glass. Begging someone to break it. You bump into the medical industry that silences you in polite language:
“We didn’t find anything.”
“Let’s wait and see.”
“It’s probably anxiety.”
You bump into caregivers who mean well — but trap you in their fear. Into insurance companies that tell you your survival isn’t cost-effective. Into doctors who send you down another hallway because they don’t know what else to do. You even bump into yourself — the part that whispers, Maybe it really is all your fault.
The system is built to look like it’s working, but inside it’s rotting. And people outside the maze can’t see that while they imagine you’re being “cared for,” you’re actually crawling, crying, begging anyone to stop the damage. You are surviving — barely — in a system that wasn’t designed to save you.
I’ve been bumping into mirrors for seven years. I survived neglect that so many others didn’t — not because the system saved me, but because God did. He kept me here for a reason. Maybe I don’t fully know what that reason is yet, but I do know I have a story to tell.
So I write. Even when my screen intolerance threatens to steal my voice.
I write for that people who didn’t make it.
I write for everyone still crawling through this maze, wondering if anyone sees them.
And if you’ve never stepped inside this maze yourself, maybe you’ve walked right by it, oblivious, — do you see me now?
👉 I even turned this piece into a spoken word poem. Here’s the video:
youtube.com/shorts/PpQ5dn1xCqE
#ChronicIllness #ChronicPain #ChronicFatigue #POTS #Dysautonomia #BrainInjury #MedicalTrauma #chroniclife #InvisibleIllness #chronicillnesscommunity #chronicwarrior #chronicillnessawareness #chronicpainawareness #PoetryCommunity #poetryvideo #spokenwordpoetry #chronicillnesspoetry #InvisibleIllness
I’ve had chronic pain since I was 17 due to undiagnosed hypermobility spectrum disorder. It could be hEDS but I haven’t seemed a formal diagnosis. I believe I also have MCAS and dysautonomia. I’ve been trying really hard to track my symptoms and make my pain/health better but I feel like I keep failing. I’m looking for a support group who gets how hard this daily struggle is every minute.
Hi, my name is SiennaBongo69511. I’m looking for information on symptom management for dysautonomia symptoms- POTS, gastrointestinal issues, bladder management, shaking hands, random headaches and pain.
Hi friends! I am desperately looking for a job I can do from home right now. With my POTS and EDS, I’m not able to work a normal job but all of the remote work I find is either AI or a scam! If anyone has any tips, please help a girl out! #Dysautonomia
Hey everyone, so right now I’m in need of some help. I’ve had multiple symptoms for years since 2013… palpitations, heart rate spikes during sleep, blood pressure spikes during the hr spikes, dry mouth especially in the morning, blood pooling in my hands and feet, livedo, unexplained bruises( the first few years) little to no sweating, and when I do sweat it’s in my hands and feet, feeling heavy, like I have weights tied to my ankles and chest, a constant head tightness but it’s more uncomfortable than painful, but so bad that I have to grit my teeth( might be nerve related ) can’t lie flat or bend down or even change positions too quickly I get an instant head rush, like the blood is rushing through my veins. Constant chronic back pain and stomach pain…. Got worse over the years, chronic neck pain….low bp at night , sometimes 90/57 however tonight it was 153/92 with my hr of 160 this was a spike and it came down after I calmed down and took the propanalol
My resting hr is mostly on the 90s if I’m lucky
I also get random rashes on my lips when I’m in a really bad episode, but it doesn’t happen often
No doctor has been able to really help me except suggest I might have a form of dysautonomia. I’m actually pushing to get some blood work done for autoimmune disease but I have done an inflammation marker in the past and it was normal, so I think that’s why they are hesitant to retake it again, however my symptoms have gotten more intense over the last year
I’ve been on Zoloft for 11 years but took myself off of it as I still had these same symptoms on it. Right now I’m taking apo propanalol 10mg to help with the adrenaline rush I get through the day, my hr gets up to 172, but I’m sure it was higher at one point. And it’s always together with a high bp. I’m wondering if anyone has a similar history and symptoms…and maybe what helped you feel better. whoever reads this fully thank you for your patience…..