Epilepsy Foundation

Autoimmune disease and work (above photo of me in life threatening DKA)

I’m 21 years old and I’ve never felt this out of touch with the world before. I’m really conflicted between getting a part-time job, or reaslising that I will not be able to work and do the things other individuals my age do. Often people will see me out with friends or family, laughing, smiling and not looking disabled at all. However many of my 7 health conditions are invisible, unless im in my wheelchair on seizing on the floor. Sometimes this can be a problem for me, people often tilt their heads when I say I don’t work, or im on health benifits, and for some reason there’s such a stigma around it that sometimes im even embarrassed to say. 21, most of my friends are full time workers or people I know have families and houses, not me, im stuck in a rut of not knowing what to do. I feel so lost and confused. Mentally and physically drained. What am I meant to be doing. Should I be trying harder, or should I go easier on myself and just enjoy my life without worrying about other peoples opinion of me. Ugh!!!!! it’s so frustrating that I want to be able to do all these things but my body just doesn’t let me. Time is the best healer in this situation I believe. Give myself time and a chance to self love and find myself before I go into looking for jobs and a house etc. Who cares when I get there or how!! I know I will someday (fingers crossed) just enjoy the here and now!! #AutoimmuneDisease #ChronicDepression #ChronicFatigue #EpilepsyFoundation #AutoimmuneHepatitis #Lupus #DiabetesType1 #AutonomicDysfunction #Hypothyroid #GettingHelp

This is just a post where you can vent what’s going on? #EpidermolysisBullosa #EpilepsyFoundation #Autism #Depression #DistractMe