fibromyalga

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    zoe

    What has helped you ease any pain you get after a long day?

    I got diagnosed with fibromyalgia last year when i was 16 and i’m currently at sixth form but i really struggle to get around all day as i don’t get much time to sit and rest. If anyone could help with some ideas of how to ease this pain that would be great! #fibromyalga

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    Finally

    I have just been given a name to what I have been dealing with for over 20 years, gastroparis. I have told people I do not like eating during the day and was looked at as anti social because I chose not to go sit in the teacher lounge with everyone as they ate. I tell people I don't eat much but they don't believe me because I weight 250 and can't seem to loose weight. I have been drinking a (1) shake for my daily calorie intake and it takes all day. If I drink it fast it comes back up...
    Finally, there is a name... but...I still need to eat tiny meals at night when I do not have to do anything but let food digest for 2 hours or more. I will still answer the questions when people access me of being a closet binger..
    Finally, I add another label to my already imbattled body mind game. Gastroparis #gastroparis #frustrated #fibromyalga

    Community Voices

    A little bit about me

    Hi, my name is Michelle.
    I'm a widowed mom to 4 children sense 2006. My kids were 2, 4, 6, & 16 years old when their dad died. They are now 18, 20, 22, and 32 years old now. My two youngest still live at home. They both have autism and they need extra help the second to the youngest also deals with type 1 diabetes and was diagnosed shortly before 2 years of age. My eldest adult child has struggled with depression and addiction. My second to the oldest was diagnosed with type 1 diabetes at age 6 months. My child is currently transgendering from male to female and lives far away from me.
    All 4 of my kids deal with ADHD.
    My pets help me personally to deal with the pain of fibromyalgia in that I have to get up my pets need attending to. A cat helps my youngest to de stress. My second to the youngest has found that his pet rats help him to be calmer and deal with anxiaty. I love and adore my children. They all are amazing people who are kind and they struggle but we survived every day of our lives so far.
    I've been through a lot in my life.
    I'm doing great today. I'm at my youngest son's school waiting for him to finish. He wants me to stay near by so he can except school if he needs to. So while I wait I take one of the dogs for a walk. I don't want to go for a walk but I got dogs that need it to make my self do it.
    Some days are easier then others with walking two big dogs.
    #Parent #Widow #fibromyalga #parentingDiffrentChildren

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    Everything that can go wrong will go wrong- it might as well be our family motto!
    #CPTSD #Ehlers -danlos#fibromyalga #dvsurvivior #Autism

    So this week I’m supposed to be having surgery on my foot - a foot that’s been damaged for 13 years. At that time I was in a dv relationship and over something trivial (I forget it’s all something of a blur) my foot was stomped on. hard.?I remember thinking f**k that’s broken, but of course I never got it checked or treated. Over the years after leaving the relationship my foot has played up from time to time and hurt on and off. I ignored it for many years, partly as a symptom of my c-ptsd (I’m not important enough to worry about, that kind of mindset) and partly because it took many years to be able to face up to me he trauma of my past. Fast forward 13 years to this February and a minor fall with my toddler aggravates the injury enough to the point I get it checked (or more my new husband pushed me into it) the injury I had sustained 13 years ago was called a lisfranc fracture and the bones in my foot are now in need of pinning together in surgery. I got a call last Thursday saying there a cancellation for Wednesday would I like it. YES, amazing, I rush around rearranging work, getting the covid test I need and isolate pending my surgery.
    Then Monday morning my husband hand that has been playing up for a week or so starts to become particularly painful and swell - a trip to a and e is in order. He’s now in hospital 40 miles away after being transferred from the local hospital awaiting surgery on his hand on intravenous antibiotics and may lose his finger. He’s being kept in until at least Friday so my surgery Wednesday well that’s unlikely to happen. I have no childcare for my 2 children nor anyone to collect me from hospital (I have to be collected in a car I can’t leave on public transport). This is just typical of mine and my husbands luck and the “it never rains but it pours” thing we seem to have going on.
    To give you an idea weve been together 6 years, married for 3 in that time we’ve been though
    • Losing twins
    •Me having a breakdown as the trauma of the miscarriage triggered my remembering many of the traumas from my dv relationship
    •My husband losing 3 jobs and fighting 2 pretty major legal battles to try and keep the jobs all because employers can’t understand and make adjustments for his autism (yes I know that’s illegal)
    • A MAJOR fall out with my family caused by my narcissistic mother
    • A difficult and stressful pregnancy that put me in hospital many times
    •Me losing 3 family members throughout my pregnancy (grandmother, cousin, uncle) and then my grandma a week after I gave birth. Me having to go to each funaral alone due to the falling out with family
    •A birth that ended in our son not breathing in nicu and with sepsis
    •6 days after the birth of my son me being rushed back to hospital and nearly dying and then diagnosed with heart failure
    • My mental health deteriorating to the point I was almost sectioned in the year after my sons birth
    • Oh and a pandemic
    And now this, can we get a break anytime soon please!

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    Community Voices

    What am I feeling?

    #Fibromyalgiao . What am I feeling? Is it RA? Is it #fibromyalga ? Is it just random pain. Who do I talk to?

    8 people are talking about this
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    Community Voices

    #Neuropathic Pain

    I have pain everyday with every joint. The bottom of my feet, toes , fingers, wrist hurt the most. They tingle a lot and go numb

    <p><a class="tm-topic-link ugc-topic" title="Neuropathic" href="/topic/neuropathic/" data-id="5e46869a21b38100eaec2440" data-name="Neuropathic" aria-label="hashtag Neuropathic">#Neuropathic</a>  Pain</p><p>I have pain everyday with every joint. The bottom of my feet, toes , fingers, wrist hurt the most. They tingle a lot and go numb</p>
    Community Voices

    I pulled myself through depression by foccusing on improving myself. Now i am less depressed than i used to be, but since i got physically ill i feel so guilty for gaming of watching tv. When my days where darkest i hid myself in bed with tv and snacks. So now when i do that i feel guilty because it feels like im avoiding my problems. There is just nothing i can do to help my physical issues exept rest.

    #chronicillnes #fibromyalga #MentalHealth
    #Depression

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    Community Voices

    To much pain to be here, to much to live for to do it.

    I was born in pain. Or so they tell me. I cried when I came home from school, I hugged my legs at night willing them to stop hurting. As I grew I was told the pain would go away. It never did.

    At 24 I developed an rsi. This turned to Fibromyalgia and chronic fatigue.

    At 37 I developed IIH Intercranial Hypertension. Risking my eyesight and setting off opcitical and trigeminal neuralgia.

    Age 39 now. I can get through a few days ok. In pain but ok. But most days I'm in agony, my legs, back, arms, neck, face all hurt constantly. My eyes hurt and my vision is often bleary. I get a migraine ever day or two.

    I've been waiting for over a year for injections that should help the head pain but due to covid all my appointments have been cancelled.

    I'm not going to so anything about it, I like living. I like my friends, my pets, my hobbies.
    But if I didnt wake up tomorrow everything would be ok. To not be in pain anymore. To not know that Every day I have to assess if I can get out of bed, if I'm safe to drive. If I have the strength to push through the agony and do anything even remotely normal.

    I dont want to live like this any more. But I have to because There is no other option for me.

    What plays on my mind the most, is if I was a beloved pet, a faithful dog or loved cat the vets would advise I was put down. It would be cruel to put me through this for the rest I'd my life. I'm only gonna get worse and the pain is making me miserable. I wouldn't put a dog through this suffering. Why am I expected to suffer. #SuicidalThoughts #PainAcceptance #passivelysucidial #fibromyalga #IIH #Inpainfrombirth

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