lung disease

You asked, an expert answered! 💡

🧠 Here’s what RA specialist Dr. Solomon had to say:

“Inflammatory arthritis that is not completely treated will cause cartilage degeneration; this is the same process that leads to osteoarthritis (OA). Thus, many patients with RA will develop OA later on in life.

RA can also impact areas outside of the joints, such as the lungs and the blood vessels in the heart and brain. Many studies find that RA has an impact on lung function and on cardiac function over the long-term.”

#RAAnswers #Arthritis #RheumatoidArthritis #Osteoarthritis #Stroke #ChronicPain #ChronicIllness #Disability #LungDisease

We know how important it is to have access to advice, resources and insights from medical professionals (especially when navigating a scary or mysterious part of your health journey) — which is why we want to help you facilitate those conversations!

In the comments below, we’ll collect questions from this group and pose them to a trained medical professional. We will try and get as many of your questions answered as possible! Once we have the information (it may take us a little while, but we’re totally on it), we will share them as a post within this group. Keep a look out! 👀

🤔 What makes a good question you ask? One that has broad appeal. As opposed to asking about your very specific health experiences, comment with a question that may apply to a lot of people. Those are the ones more likely to get answered by an expert, and they are more likely to help a larger number of Mighties!

🏥 P.S. If you need timely or more urgent medical advice, we recommend you make an appointment with your current provider.

#AskMe #Arthritis #RheumatoidArthritis #Stroke #UlcerativeColitis #LungDisease #Depression #Diabetes #Epilepsy

I sentiment I have super mixed feelings about is whenever someone tells me

“ You have just missed out on so much “

Do to my illness.

Like I know my life is far from the

“Normal route “

But
Is life suppose to be this “ paint by the numbers”

Sort of deal ,
Where every experience crossed off the list , is Colors added to your canvas .

Until we all have this super similar painting .

But what if my picture isn’t so simple .?

What if everyone else got monets
Water lilies .
A slightly abstract but mainly straight forward view of the picture of their life

And I got Van Goghs “ Starry night “
A random mixture of strokes and swivels , lights and darks.
That comes together to make something extraordinary.

2 completely different paintings.
2 completely different life experiences

But who is to say which one is more beautiful.. more valuable .

Just like how Christmas lights , and Roses
Both are beautiful. Just in a different way.

Why can’t people’s lives and life experiences be the same ?
#MightyTogether #RareDisease #Oxygen #UndifferentiatedConnectiveTissueDisease #Spoonie #LungDisease #CVID

Since I moved up to the Inogen One G3 I no longer need my homefill system but I do need the space it takes up. This thing is large enough to be added to my lease. I have been looking for months for a responsible way to move this piece of equipment on without luck. The company that gave it to me has changed names three times and denies any knowledge of me or the equipment (while trying to sign me up for additional equipment to abandon no doubt). I'm out of ideas. Have any of you ever been in this situation? What did you do? I want to do the right thing. But I'm tempted to set it outside the door of the oxygen company that supplied then denied it.🤬

#LungTransplant #ChronicLungDisease #COVID19 #Mesothelioma #non-SmallCellLungCancer #ChronicObstructivePulmonaryDisease #CongestiveHeartFailure

#COVID19

Hey Mighties 👋🏼

I actually was not planning to post this as a new thought, but posting accidentally because I just stumbled across the concept of posting a new thought a moment ago. I wad trying tio resound tio another post, yet somehow ended up here.

I just wasn't to check in because I know this is a difficult time for everyone with all that's going on, but for various reasons, I know this can be an extremely difficult time for many of us here on The Mighty due to our unique illnesses and circumstances.

So... how are you all doing??

Feel free to share your thoughts, feelings, coping mechanisms, etc.… anything that you feel could help a fellow Mighty, or anything you need help with at this time. I know many of us are feeling lonely right now with the isolation and restrictions, but we have this amazing community full of support, love, and inspiration, so let's continue to be present and accountable to one another as much as we individually & collectively can be.

Here's what's going on with me…

This really is a difficult time for me because with numerous immune and autoimmune illnesses, I don't get out the house much since I'm not working right now. I've been preparing to work for the 1st time in 5 years, but having challenges with my lungs (asthma, bronchitis, ABPA, allergies) and respiratory complications all around. That means I definitely don't need to be outdoors, but they have been working on our kitchen floor for the last 2 weeks, which means I can't prepare meals in our kitchen, and there are only but so many foods I can microwave. I'm going stir-crazy with wanting to get out of the house and avoid all the drilling, hammering, sawing and more… yet it's not safe for me to go outdoors.
I'm also preparing to relocate from the East Coast to Central Time Zone in the next several months, and I can't get anything done in this apartment with the work being done, nor do I really has space and opportunity to move around the way I've recently regained strength and energy to do so.

I watch a lot of YouTube since I can't study because of all the noise, but I'm getting tired of watching YouTube now as well. I study a lot, I don't do too much TV and Internet, so all of this is driving me nuts.

Frustration and irritation or just the beginning.

❤ Ashley A.

#COVID19 #ABPA #Asthma #Bronchitis #Allergies #LungDisease #Anxiety #OCD #Isolation #Depression #MentalHealth #EmotionalHealth #NormocyticAnemia #Anemia #hashimotos #thyroiditis #Hypothyroidism #Hyperthyroidism