lung disease

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    Lucky

    Every morning when I don't want to get out of bed (I have 20 conditions), I have to tell myself over & over, how LUCKY I am to still be alive. #HEDS #addisons #fibromyalga #indwellingcatheter #LungDisease #boweldisease
    #svt #thyroidfailure #anaemia #Photophobia #Cataracts #SjogrensSyndrome #BreastCancer #metabolicmyopathy #fibromyalga TMD/TMJ etc....

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    #AskMe : How does RA progress or worsen as a person ages?

    You asked, an expert answered! 💡

    🧠 Here’s what RA specialist Dr. Solomon had to say:

    Inflammatory arthritis that is not completely treated will cause cartilage degeneration; this is the same process that leads to osteoarthritis (OA). Thus, many patients with RA will develop OA later on in life.

    RA can also impact areas outside of the joints, such as the lungs and the blood vessels in the heart and brain. Many studies find that RA has an impact on lung function and on cardiac function over the long-term.”

    #RAAnswers #Arthritis #RheumatoidArthritis #Osteoarthritis #Stroke #ChronicPain #ChronicIllness #Disability #LungDisease

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    What questions do you have about rheumatoid arthritis (RA)?

    We know how important it is to have access to advice, resources and insights from medical professionals (especially when navigating a scary or mysterious part of your health journey) — which is why we want to help you facilitate those conversations!

    In the comments below, we’ll collect questions from this group and pose them to a trained medical professional. We will try and get as many of your questions answered as possible! Once we have the information (it may take us a little while, but we’re totally on it), we will share them as a post within this group. Keep a look out! 👀

    🤔 What makes a good question you ask? One that has broad appeal. As opposed to asking about your very specific health experiences, comment with a question that may apply to a lot of people. Those are the ones more likely to get answered by an expert, and they are more likely to help a larger number of Mighties!

    🏥 P.S. If you need timely or more urgent medical advice, we recommend you make an appointment with your current provider.

    #AskMe #Arthritis #RheumatoidArthritis #Stroke #UlcerativeColitis #LungDisease #Depression #Diabetes #Epilepsy

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    Who is to say which is more valuable #DistractMe

    I sentiment I have super mixed feelings about is whenever someone tells me

    “ You have just missed out on so much “

    Do to my illness.

    Like I know my life is far from the

    “Normal route “

    But
    Is life suppose to be this “ paint by the numbers”

    Sort of deal ,
    Where every experience crossed off the list , is Colors added to your canvas .

    Until we all have this super similar painting .

    But what if my picture isn’t so simple .?

    What if everyone else got monets
    Water lilies .
    A slightly abstract but mainly straight forward view of the picture of their life

    And I got Van Goghs “ Starry night “
    A random mixture of strokes and swivels , lights and darks.
    That comes together to make something extraordinary.

    2 completely different paintings.
    2 completely different life experiences

    But who is to say which one is more beautiful.. more valuable .

    Just like how Christmas lights , and Roses
    Both are beautiful. Just in a different way.

    Why can’t people’s lives and life experiences be the same ?
    #MightyTogether #RareDisease #Oxygen #UndifferentiatedConnectiveTissueDisease #Spoonie #LungDisease #CVID

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    What do you do with durable medical equipment you don't need anymore? #LungCancer #LungDisease #LungTransplant # #InterstitialLungDisease #Asthma

    Since I moved up to the Inogen One G3 I no longer need my homefill system but I do need the space it takes up. This thing is large enough to be added to my lease. I have been looking for months for a responsible way to move this piece of equipment on without luck. The company that gave it to me has changed names three times and denies any knowledge of me or the equipment (while trying to sign me up for additional equipment to abandon no doubt). I'm out of ideas. Have any of you ever been in this situation? What did you do? I want to do the right thing. But I'm tempted to set it outside the door of the oxygen company that supplied then denied it.🤬

    #LungTransplant #ChronicLungDisease #COVID19 #Mesothelioma #non-SmallCellLungCancer #ChronicObstructivePulmonaryDisease #CongestiveHeartFailure

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    EVERYTHING IS FALLING APART... Pt 1

    Hey Dear Mighties!!! I've decided to let my feelings out and tell you about how my life was look like then now. And... also ask for some help and advices. I need ya all. Thank you in advance 🙏🙏🙏

    I'm Bella(at least, my friend calls me like that). I'm only 19 years old. I grew up in a low-income family. I had a dream. To study. To get higher education in the U.S. I knew that my family can't help me to get this. So I learnt American English by myself. I did my best. I found the way to achieve my goal. I almost got it. I passed all exams and interview. They accepted me. I cried from happiness. But... My happiness didn't last longer than 2 months.
    I got sick. I had a strong cough with no stopping for a long time. I couldn't continue with study anymore and eventually I left it. I was crying day and night because I felt like something goes wrong. A lot of doctors examined me, but found nothing. I've been struggling with high body temperature and strong cough for 13 months. And... 13 months later, I've been diagnosed with disease that I was so afraid to be diagnosed. This is tuberculosis. When I heard it, everything just fell apart around me. All castles that I built, they are all destroyed.

    #Depression
    #MentalIllness
    #Anxiety
    #LungDisease

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    #Anxiety #Depression #MentalIllness #LungDisease

    I have a disease. I've been struggling with lung disease for 13 months. Today, doctors said to me the things I was afraid to hear. I'm afraid to tell someone that I'm seriously sick, because I know they won't be there for me as soon as they get to know about my illness. They'll leave me. They'll be afraid of getting close to me, communicate with me. They'll be afraid of me, because people like me usually isolated from normal people. Society doesn't accept me.

    I'm sick
    And...
    Completely broken

    I need your help at least to tell about my illness there on The Mighty. I'm pretty sure that people here will understand and support me. I got a lot of things to say. I'm just afraid...

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    Mental & Emotional Health Check-in


    #COVID19

    Hey Mighties 👋🏼

    I actually was not planning to post this as a new thought, but posting accidentally because I just stumbled across the concept of posting a new thought a moment ago. I wad trying tio resound tio another post, yet somehow ended up here.

    I just wasn't to check in because I know this is a difficult time for everyone with all that's going on, but for various reasons, I know this can be an extremely difficult time for many of us here on The Mighty due to our unique illnesses and circumstances.

    So... how are you all doing??

    Feel free to share your thoughts, feelings, coping mechanisms, etc.… anything that you feel could help a fellow Mighty, or anything you need help with at this time. I know many of us are feeling lonely right now with the isolation and restrictions, but we have this amazing community full of support, love, and inspiration, so let's continue to be present and accountable to one another as much as we individually & collectively can be.

    Here's what's going on with me…

    This really is a difficult time for me because with numerous immune and autoimmune illnesses, I don't get out the house much since I'm not working right now. I've been preparing to work for the 1st time in 5 years, but having challenges with my lungs (asthma, bronchitis, ABPA, allergies) and respiratory complications all around. That means I definitely don't need to be outdoors, but they have been working on our kitchen floor for the last 2 weeks, which means I can't prepare meals in our kitchen, and there are only but so many foods I can microwave. I'm going stir-crazy with wanting to get out of the house and avoid all the drilling, hammering, sawing and more… yet it's not safe for me to go outdoors.
    I'm also preparing to relocate from the East Coast to Central Time Zone in the next several months, and I can't get anything done in this apartment with the work being done, nor do I really has space and opportunity to move around the way I've recently regained strength and energy to do so.

    I watch a lot of YouTube since I can't study because of all the noise, but I'm getting tired of watching YouTube now as well. I study a lot, I don't do too much TV and Internet, so all of this is driving me nuts.

    Frustration and irritation or just the beginning.

    ❤ Ashley A.

    #COVID19 #ABPA #Asthma #Bronchitis #Allergies #LungDisease #Anxiety #OCD #Isolation #Depression #MentalHealth #EmotionalHealth #NormocyticAnemia #Anemia #hashimotos #thyroiditis #Hypothyroidism #Hyperthyroidism

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    You're not alone

    Hello beautiful people!!! Just wanted to ask how R U all doin' and say to all of you who suffers and struggles every single day that you're a very strong person. Just remember no matter what disease you have, you'll overcome it. It takes time but WE CAN DO IT.
    Don't let your disease overpower you!!!

    #Anxiety
    #Depression
    #ChronicPain
    #ChronicIllness
    #ChronicObstructivePulmonaryDisease
    #LungDisease

    Question

    #help #LungDisease #ChronicObstructivePulmonaryDisease

    Guys, I need your help. I have COPD and the past few days I have sharp pain in my right lung. Doctor said that it's OK to feel pain having COPD because it's common symptom, but this pain is getting worse so I can hardly breathe. Plz guys, tell me what to do? I need your advices!!!