hypermobility syndrome

Hi, my name is IntrepidCoyote313. I've been diagnosed with

#MightyTogether #PTSD #Depression #Anxiety #BipolarDisorder #Fibromyalgia #Migraine #HypermobilitySyndrome

After 20+ years, I feel like I’m getting close to answers on why life has been so hard from a health perspective. One speed bump ahead: a triage call with the only genetic testing option in my state. This clinic is overwhelmed with requests and incredibly hard to get into. It took me several tries and several doctor referrals before I made it to the “triage” list. Now I’m worried that I’ll be dismissed if I’m not super careful about every word I say. My doctors suspect I gave non-EDS hypermobility, and it would be incredible to know more of the why so that I can better adapt.

Has anyone gone through genetic testing / consulting for hypermobility? What was it like? Help.

#HypermobilitySyndrome #JointHypermobilitySyndrome

Hi, my name is BlooJay.

#MightyTogether #BorderlinePersonalityDisorder #Migraine #Fibromyalgia #AutismSpectrumDisorder #ADHD #OCD #HypermobilitySyndrome

Hi, my name is naurrrr. I've been diagnosed with anxiety, depression, bipolar, bpd, migraines, autism, ptsd, adhd, an eating disorder, ocd, epilepsy, chronic pain, hEDS, and much much more

#MightyTogether #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #Migraine #AutismSpectrumDisorder #PTSD #ADHD #EatingDisorder #OCD #Grief #Epilepsy #ChronicPain #HypermobilitySyndrome

Hello ! I need advice and tips to make car rides more tolerable... In a few weeks I will travel to see family, but they are FAR away so the rides will be 6h+ each time...

Knowing that I will only be passenger and not driver, here's what I was planning to do :

VERY frequent pauses (we have a dog with us and he needs it as much as I do! every 1 and half hour at least) Cervical collar (i got it very recently for my CCI, and car rides always are really hard on my neck so I hope it will help) compression socks loads of water, especially as we are going to places that are REALLY hot (the car has AC though) pain meds and tiger balm earplugs I don't know if wearing my lumbar support belt is a good idea, I fear it will just make me stiffer...

I am very aware that this will not be a pleasant experience, but if you have any more tips please share them ! I will take any advice to make these rides easier...

#Travel #HypermobilitySyndrome #EhlersDanlosSyndrome

Hi, my name is jlynnMiller.

#MightyTogether #Anxiety #Depression #ADHD #PTSD #AutismSpectrumDisorder #Gastroparesis #HypermobilitySyndrome

Hi, my name is Shelbie. I am here because I have recently been diagnosed with POTS and EDS. I am looking for some knowledge and support on how I can handle my disabilities.

#MightyTogether #HypermobilitySyndrome

Hi, my name is kodywithak112.

#MightyTogether #AutismSpectrumDisorder #HypermobilitySyndrome #Insomnia

Hi, my name is cate380. I'm here because I’ve been recently diagnosed with fibromyalgia and hyper mobility sindrome. I’ve gone through very low days but now I want to try to accept it and understand how to live with it the best I can.

#MightyTogether #Fibromyalgia #HypermobilitySyndrome

Hi, my name is WhimsicalAri. I'm here because

#MightyTogether #ADHD #AutismSpectrumDisorder #HypermobilitySyndrome #Anxiety