hypermobility syndrome

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hypermobility syndrome
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Long car rides - any tips ?

Hello ! I need advice and tips to make car rides more tolerable... In a few weeks I will travel to see family, but they are FAR away so the rides will be 6h+ each time...

Knowing that I will only be passenger and not driver, here's what I was planning to do :

VERY frequent pauses (we have a dog with us and he needs it as much as I do! every 1 and half hour at least) Cervical collar (i got it very recently for my CCI, and car rides always are really hard on my neck so I hope it will help) compression socks loads of water, especially as we are going to places that are REALLY hot (the car has AC though) pain meds and tiger balm earplugs I don't know if wearing my lumbar support belt is a good idea, I fear it will just make me stiffer...

I am very aware that this will not be a pleasant experience, but if you have any more tips please share them ! I will take any advice to make these rides easier...

#Travel #HypermobilitySyndrome #EhlersDanlosSyndrome

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I'm new here!

Hi, my name is Shelbie. I am here because I have recently been diagnosed with POTS and EDS. I am looking for some knowledge and support on how I can handle my disabilities.

#MightyTogether #HypermobilitySyndrome

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I'm new here!

Hi, my name is cate380. I'm here because I’ve been recently diagnosed with fibromyalgia and hyper mobility sindrome. I’ve gone through very low days but now I want to try to accept it and understand how to live with it the best I can.

#MightyTogether #Fibromyalgia #HypermobilitySyndrome

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Help! My hypermobility in my hands and wrists is unmanageable!!

I am so frustrated and have searched online to no avail as to how to deal with this but my hypermobility in my hands and wrists is causing so many issues with things I want to do (cooking, playing instruments and any other fine motor activities).

What should I be doing? I can't find any devices or anything that seems to help, there doesn't seem to be a way to remedy this and I don't want to give up more things I love to Chronic health problems and I feel like I'm almost there and I can't stand to lose something else--please someone help me!

#HypermobilitySyndrome #EhlersDanlosSyndrome #Hypermobility #handhypermobility #ChronicPain #JointHypermobilitySyndrome #Jointpain #HEDS

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My rib cage is crooked and I think my spine is bent?

Hi! I am diagnosed with ME/CFS and my connective tissue kinda sucks (I could probably get diagnosed with HSD if not heds, but I haven’t pursued that atp)

I was lying flat on the floor the other day (as one does) and noticed my entire ribcage is crooked, as in the left side sticks out noticeably more. So then I started researching and it said it could be an indicator of scoliosis. So I did some wacky maneuvering to try to get my spine on camera to look at, and it looks a bit curved to the left in the upper part of my back in the picture. But maybe that’s the lighting?

I plan on probably making a doctors appointment regardless, but would love to hear what other people think who know more about this than I would lol

#MyalgicEncephalomyelitis
#Scoliosis ?
#ChronicFatigue
#Dysautonomia
#HypermobilitySyndrome

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