hypermobility syndrome

Hi, my name is LizaDeMorte. I'm here because I was granted disability in 2017 and I still struggle with internalized ableism. I'm 34 now and was recently seriously hospitalized. I may not like myself but I refuse to go out before bigots without fighting. Vegas healthcare feels like a joke, it shouldn't be this hard..and I need help learning about disability and advocating for myself.

#MightyTogether #Anxiety #Depression #Fibromyalgia #PTSD #Migraine #Grief #HypermobilitySyndrome

Hi, my name is IntrepidCoyote313. I've been diagnosed with

#MightyTogether #PTSD #Depression #Anxiety #BipolarDisorder #Fibromyalgia #Migraine #HypermobilitySyndrome

After 20+ years, I feel like I’m getting close to answers on why life has been so hard from a health perspective. One speed bump ahead: a triage call with the only genetic testing option in my state. This clinic is overwhelmed with requests and incredibly hard to get into. It took me several tries and several doctor referrals before I made it to the “triage” list. Now I’m worried that I’ll be dismissed if I’m not super careful about every word I say. My doctors suspect I gave non-EDS hypermobility, and it would be incredible to know more of the why so that I can better adapt.

Has anyone gone through genetic testing / consulting for hypermobility? What was it like? Help.

#HypermobilitySyndrome #JointHypermobilitySyndrome

Hi, my name is BlooJay.

#MightyTogether #BorderlinePersonalityDisorder #Migraine #Fibromyalgia #AutismSpectrumDisorder #ADHD #OCD #HypermobilitySyndrome

Hi, my name is naurrrr. I've been diagnosed with anxiety, depression, bipolar, bpd, migraines, autism, ptsd, adhd, an eating disorder, ocd, epilepsy, chronic pain, hEDS, and much much more

#MightyTogether #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #Migraine #AutismSpectrumDisorder #PTSD #ADHD #EatingDisorder #OCD #Grief #Epilepsy #ChronicPain #HypermobilitySyndrome

Hello ! I need advice and tips to make car rides more tolerable... In a few weeks I will travel to see family, but they are FAR away so the rides will be 6h+ each time...

Knowing that I will only be passenger and not driver, here's what I was planning to do :

VERY frequent pauses (we have a dog with us and he needs it as much as I do! every 1 and half hour at least) Cervical collar (i got it very recently for my CCI, and car rides always are really hard on my neck so I hope it will help) compression socks loads of water, especially as we are going to places that are REALLY hot (the car has AC though) pain meds and tiger balm earplugs I don't know if wearing my lumbar support belt is a good idea, I fear it will just make me stiffer...

I am very aware that this will not be a pleasant experience, but if you have any more tips please share them ! I will take any advice to make these rides easier...

#Travel #HypermobilitySyndrome #EhlersDanlosSyndrome

Hi, my name is jlynnMiller.

#MightyTogether #Anxiety #Depression #ADHD #PTSD #AutismSpectrumDisorder #Gastroparesis #HypermobilitySyndrome