Hi, my name is cate380. I'm here because I’ve been recently diagnosed with fibromyalgia and hyper mobility sindrome. I’ve gone through very low days but now I want to try to accept it and understand how to live with it the best I can.
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3 comments
Hi, my name is WhimsicalAri. I'm here because
#MightyTogether #ADHD #AutismSpectrumDisorder #HypermobilitySyndrome #Anxiety
12 reactions •
3 comments
I am so frustrated and have searched online to no avail as to how to deal with this but my hypermobility in my hands and wrists is causing so many issues with things I want to do (cooking, playing instruments and any other fine motor activities).
What should I be doing? I can't find any devices or anything that seems to help, there doesn't seem to be a way to remedy this and I don't want to give up more things I love to Chronic health problems and I feel like I'm almost there and I can't stand to lose something else--please someone help me!
#HypermobilitySyndrome #EhlersDanlosSyndrome #Hypermobility #handhypermobility #ChronicPain #JointHypermobilitySyndrome #Jointpain #HEDS
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4 comments
Hi! I am diagnosed with ME/CFS and my connective tissue kinda sucks (I could probably get diagnosed with HSD if not heds, but I haven’t pursued that atp)
I was lying flat on the floor the other day (as one does) and noticed my entire ribcage is crooked, as in the left side sticks out noticeably more. So then I started researching and it said it could be an indicator of scoliosis. So I did some wacky maneuvering to try to get my spine on camera to look at, and it looks a bit curved to the left in the upper part of my back in the picture. But maybe that’s the lighting?
I plan on probably making a doctors appointment regardless, but would love to hear what other people think who know more about this than I would lol
#MyalgicEncephalomyelitis
#Scoliosis ?
#ChronicFatigue
#Dysautonomia
#HypermobilitySyndrome
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1 comment
Hi, my name is FrostedZebra5218. I'm here because
#MightyTogether #Depression #AutismSpectrumDisorder #ADHD #Fibromyalgia #Anxiety #Migraine #MultipleSclerosis #BipolarDisorder #Epilepsy #Crohn 'sDisease#PTSD #Grief #EatingDisorder #RheumatoidArthritis #BorderlinePersonalityDisorder #HypermobilitySyndrome #EhlersDanlosSyndrome
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3 comments
Hi, my name is lavenderbubbles I'm here looking for more support and connections from people who go through the same as me. I feel very tired, isolated and hopeless sometimes, so I hope this place can alleviate a few of these feelings.
#MightyTogether #AutismSpectrumDisorder #Arrhythmia #Dysautonomia #Asthma #HypermobilitySyndrome #GlossopharyngealNeuralgia #Migraine #ChronicPain #Undiagnosed
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Has anyone had great success with spinal cord stimulator implant? I have hEDS and chronic pain. I suffer from constant nerve pain.electrical current, tingling, and prickly, sometimes burning pain.. it affects all four extremities. I’m on strong pain meds and only can take twice daily that don’t always greatly help.. And lyrica 225 mg bid-has anyone felt like this? My 2nd spinal fusion, I had a CFS leak and since then i have nerve pain!!! 6 years ago- I just need relief!! Thank you for helping. #HypermobilitySyndrome #EDS
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I'm here because everything is adding up so rapidly with both medical and social, and what better community to relate with then the ones going through exactly what I am?
#ADHD #EhlersDanlosSociety #POTS #HashimotosThyroiditis #HypermobilitySyndrome #PerniciousAnemia #ChronicPain
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4 comments
Hi, my name is monkeymannnnnn111222. I'm here because
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Hi new here! I was just diagnosed with g-hsd and suspected hEDS (I’m going through some testing now) I had my echo a few days ago (haven’t got my results back) but the lady doing it kept commenting on the fact that my resting heart rate is high 100-120bpm and if I speak it jumps to 140bpm. Has anyone else experienced this (high resting heart rate) or could this possibly just be something unrelated all together.
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