Irritable Bowel Syndrome (IBS)

I won the lottery on genetic diseases, all diagnosed later in life. Sarcoidosis, Raynaud’s Syndrome, Autoimmune Arthritis & now Hypermobile Ehlers Danlos Syndrome.

The symptoms of Ehlers Danlos were there from the start. My Drs never added them up and missed these symptoms:
◼️HYPERFLEXIBLE ▪️Bend thumb to wrist
▪️Crisscross fingers
▪️Hyper flex elbows
▪️Jaw pops out of socket opening mouth
▪️Can put my hands flat on the floor bending over
▪️Knee caps dropped often
▪️Was teased because I ran strange
▪️Hips sublex out of alignment easily
▪️Mild scoliosis
◼️SENSITIVITY
▪️Clothing & fabrics irritated my skin
▪️Scars are sensitive to touch
▪️Can’t wear necklaces or heavy clothing on my neck
▪️Sharp bone pain when young
◼️SKIN SIGNS
▪️Smooth, soft, stretchy skin
▪️Horizontal scars across the back
▪️Wounds slow to heal
◼️IBS

My maternal grandmother, mom, daughter and son all have these same symptoms. I am the only one diagnosed thus far. What used to be a novelty as a child now causes great pain.
#EhlersDanlosSyndrome #IBS #HyperFlexible #TMJ

I won the lottery on genetic diseases, all diagnosed later in life. Sarcoidosis, Raynaud’s Syndrome, Autoimmune Arthritis & now Hypermobile Ehlers Danlos Syndrome.

The symptoms of Ehlers Danlos were there from the start. My Drs never added them up and missed these symptoms:
◼️HYPERFLEXIBLE ▪️Bend thumb to wrist
▪️Crisscross fingers
▪️Hyper flex elbows
▪️Jaw pops out of socket opening mouth
▪️Can put my hands flat on the floor bending over
▪️Knee caps dropped often
▪️Was teased because I ran strange
▪️Hips sublex out of alignment easily
▪️Mild scoliosis
◼️SENSITIVITY
▪️Clothing & fabrics irritated my skin
▪️Scars are sensitive to touch
▪️Can’t wear necklaces or heavy clothing on my neck
▪️Sharp bone pain when young
◼️SKIN SIGNS
▪️Smooth, soft, stretchy skin
▪️Horizontal scars across the back
▪️Wounds slow to heal
◼️IBS

My maternal grandmother, mom, daughter and son all have these same symptoms. I am the only one diagnosed thus far. What used to be a novelty as a child now causes great pain.
#EhlersDanlosSyndrome #IBS #HyperFlexible #TMJ

Finally had the energy to post an introduction of myself, I go by Kocho!

I found The Mighty from scrolling through chronic illness humor that I use to cope, and was very amazed that I finally found a community that talks about the conditions I have.

Specifically #CrohnsDisease but I also have #IrritableBowelSyndromeIBS along with some mental health conditions such as, #MajorDepressiveDisorder #GeneralizedAnxietyDisorder #AutismSpectrumDisorder

I’m also going through testing for my symptoms that don’t have answers yet, so I’m sort of using this as a log or journal while I meet people in the community.!

Fun fact, I go by Kocho due to butterflies being very pretty to me! 🦋

I don't know if there is a point in saying this anymore but a year ago I made a post after a very very bad doctor appointment while I was having a panic attack and vented and talked alot about how much I wanted to kill myself and how bad my suicidal thoughts were. I deleted the post afterwards when I had calmed down a bit but didn't give any context and also didn't post anything afterwards. I'm genuinely so sorry to anyone who the post because there were alot of people who did and we're concerned so I really had to say sorry if I scared anyone. I should've made a post afterwards telling that I'm safe but I didn't and I'm sure that might've concerned some people specially because I talked so heavily about suicidal thoughts in that post because my depressive episode was really really bad at the time and I genuinely did feel like I would do something bad to myself. I really hope this post finds the people that responded and commented on that post specially one person who wrote a very long comment giving me advice and wisdom and asked me to keep them updated and I didn't fullfil their wish. I am geniunely so so so so sorry if I caused even one person worry.
#Depression #ChronicIllness #IrritableBowelSyndromeIBS #ChronicPain #Fibromyalgia #Anxiety #PanicAttacks