1. It’s full of other people with connections to IBD.
2. It’s a safe forum to ask any and all IBD questions.
3. It’s a way to connect with others on the Mighty community.
4. I’m one of the group leaders (living with #UlcerativeColitis ), and I’m pretty cool.
5. We want to normalize talking about poop.
6. We do Q&As with partners like Girls with Guts.
7. It’s a small but “Mighty” community that we want to grow.
8. It’s supportive.
9. Why not?
10. Do it today!
Do folks ever feel like you're on a totally different life schedule to everyone else?
Like some friends have started having children or gotten engaged. Or they've been promoted...
(You're beyond happy for them)
...You're also moving up, but it's just achingly slowly and at times quite lonely...
So you stop wanting to answer questions, like: 'How's life going these days?'😄
Because you know, the person likely doesn't want to actually hear that you're *STILL* doing your course and are awaiting blood test results for yet another frustrating & debilitating symptom 🤪
As you can tell very excited for my next age milestone 🙃
#Fibromyalgia #ChronicPain #ChronicFatigue #BackPain #FunctionalNeurologicalDisorder #IrritableBowelSyndromeIBS #MentalHealth #Depression #Anxiety #Insomnia #Asthma #AgoraphobiaWithoutHistoryOfPanicDisorder
Don't know what to do. My GI issues are really bad right now causing me to not be able to eat much, which is triggering my eating disorder (restricting). Anyone ever had that? What's there to do? #EatingDisorders #EatingDisorder #Gastroparesis #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS
Sometimes I think “what will life throw at me next?”;
Will I receive a call from a family member or a friendly text?;
Since I became chronically ill I don’t hear from friends anymore;
It feels like – no matter how hard I tried to keep up – they showed me the door;
Maybe they couldn’t handle me being fine one minute and then convulsing on the floor?;
The fact that they unfriended me left with an open hole in my core;
Every morning I think: “what will chronic illness life throw at me today?”;
Will I have a debilitating headache or had it miraculously gone away?;
How many seizures will I have and how many falls will I endure?;
I pray that I’ll still be alive when the find that “magic’ cure;
How many dizzy spells will plague me – causing me to walk into walls?;
How many times will I lose my balance and take a hard fall?;
Will I be able to stand for longer than 5 minutes – or maybe less?;
Sometimes I want to stay in my bed all day – I must confess;
Will I have another IBS flare or will I experience terrible pain in my stomach?;
Or will I end up standing too long and feel my blood pressure plummet;
How many times will I feel like I can’t take in air enough to breathe?;
Will I have “internal tremors” or will you notice the flushing and hives on me?;
What will Dysautonomia surprise me with this day?;
Will my heart rate come down or is my heart rate of 170bpm be here to stay?;
Will I be able to remain standing long enough to make my lunch or will I collapse to the ground?;
Will my body cooperate enough to function and get me out of bed or will I again be bedbound?;
Can I find the strength to walk today or will I have to crawl on the floor like a child?;
Will my chronic pain feel like I’m being crushed or will it remain mostly mild?;
I wonder: what has my chronic illness had in store for me?;
If I stand will I be okay or will I lose my vision and temporally be unable to see?;
Will I be able to eat dinner without having terrible abdominal pain?;
Sometimes it feels as if I am stuck and that life has left me with nothing else to gain;
Today – will I be able to get a good night’s rest or will I be up gagging and in pain all night?;
Sometimes I feel like I want to give up and succumb to this unbeatable fight;
What will happen today – will I have enough energy to leave my house for awhile;
I’ll be in a wheelchair wearing AFOs and compression stockings like it’s come out of style;
Will I experience vertigo and severe nausea in the middle of the store?;
Sometimes I get dirty looks if I have to lay there on the Walmart floor;
How will my chronic illnesses affect me today – you may ask?;
For me – walking around without a mobility aide is no easy task;
What does Ehlers Danlos Syndrome have in store for me?;
Will my current visual issues cause my nerves to deteriorate – could I lose my ability to see?;
How many times will I dislocate my joints and partially dislocate my wrist;
Or will I be walking around slowly and have my knee cap randomly shift?;
Will my faulty collagen cause numerous joint issues and debilitating pain?;
Why does my opthmatologist say that my visual issues aren’t from my eyes – but from my brain?;
Will I be able to stand today and not cause every joint in my body to crack?;
Could I end up with an allergic reaction similar to one in a Mast Cell attack?;
What do my seizure-like episodes have is store for me today?;
When I convulse on the floor and people stare – it’s not some child’s play;
Will I end up with an injury or even have numerous “episodes” by this evening?;
Sometimes it looks like my lungs don’t work, I turn blue, and it feels like I’m not breathing;
Will I end up having one in public and being taken in an ambulance to the ER?;
Or will my aunt get me up into my wheelchair and take me to the car?;
Will I hear doctors say that there is nothing wrong and it’s all in my head?;
Will I be labeled as a hypochondriac or an attention seeker until I am dead?;
People don’t seem to realize that chronic illness can affect you in more than one way;
And it is often easier to hide behind a mask and pretend you’re okay;
Everyone seems to judge you because you don’t look sick on the outside;
But they need to not judge a book by its cover – I confide;
Not every disability is visible and not everyone with an invisible illness are lying;
But the more you put us down with your rude opinions – the more we want to stop trying;
Believe it or not – not everyone in a wheelchair can’t walk;
Just like not everyone who is deaf can’t talk;
Not everyone doing chemotherapy has cancer;
And not everyone with hypermobile joints is a ballet dancer;
Not everyone with chronic pain are in their older years;
What makes you think it’s okay to judge someone till they are in tears?;
People from all walks of life – both young and old – can have illnesses that are visible;
But what about those of us who’s chronic illnesses are invisible?;
Sometimes – when I get judgment from people – it’s empathy I seek;
So - before you say anything or judge someone – think before you speak
Imagine having the flu 24 hours a day 7 days a week.....
Imagine never feeling hungry or a salivating mouth or appetite......
Imagine you have just eaten a 3 course meal and you feel so full all the time that you have to vomit to realease some pressure.......
Imagine having intolerable pain in your stomach like someone has repetitively punched you in the stomach and it feels bruised.....
Imagine living off a diet of soup, meal replacement drinks and water, because anything solid will make you feel like you have eaten razor blades....
Imagine being a lab rat and the Drs test drugs in you, just in the slight hope it will relieve your intense pain, but it only makes your symptoms worse….
Imagine telling everyone that you are really sick and no one believes you or tells you it's all in your head….
Imagine being told you are depressed or suffering from anxiety, you are accused of having an eating disorder as the weight falls off your body and reveals the bare bones of you, or even the complete opposite and you mysteriously to some gain weight but what they don’t realize is it comes from the food collecting in your stomach for weeks…..
Imagine being told you have an illness that they can't fix or cure and you might feel like this forever..............
#Gastroparesis #ChronicIllness #ChronicPain #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS #GastroesophagealRefluxDisease #Pain #ChronicFatigue #Depression #Anxiety #MentalHealth #ParkinsonsDisease #Fibromyalgia #Endometriosis #MultipleHealthChallenges