Malaise

I LOVE YOU, ZOFRAN!!! Zofran is a prescription anti-nausea/vomiting medication. It's usually what they give you in the hospital bc of nausea. I have #CrohnsDisease , #GastroesophagealRefluxDisease and #UlcerativeColitis . My symptoms are generally nausea and general stomach #Malaise . I've been nauseous for the past 2 days, and I think it's from eating too much bread, but I'm not completely sure. Zofran takes me from trying to convince myself it's okay to throw up because I KNOW I'm going to throw up whether I want to or not (But I could at least do it on my terms): "Okay. If I just go throw up I'll feel better. I can do this...," to feeling 100% better, and I'll actually forget I was even nauseous in the first place. I wish Zofran was OTC. There is NO med I've tried that works as well at stopping #nausea , except for Promethazine and #CBD suppositories. I'm just grateful to have any Zofran at all. #InflammatoryBowelDiseaseIBD #stomachissues #nausea #Medication
*I know: Not everyone thinks meds are okay
*I'm sure Zofran has side effects, but it works for me
*Everyone is allowed to do what works for them, which is fine

Does anyone with this or a similar diagnosis ever have a very specific feeling that comes over them during a flare that is uber specific and of which is nearly impossible to describe to others? A feeling most closely matching the definition of the word "malaise" but a feeling of deep systemic sickness emanating throughout various systems of the body: in the bones, in the stomach, and namely in the head. The only way I can even come close to describing it is if you've ever been punched in the nose, you know that strange almost derpy ringing feeling in your face? Well it's nearly like that but this one emanates throughout your entire being and it is not at all pleasant. Does anybody know what I'm talking about? It's so frustrating and scary. Before I went through hepatitis C treatment I attributed it to my liver acting up and would immediately drink dandelion tea in hopes of making it stop. But now that I am cured of hepatitis C (as much as one can be) I am no longer sure what exactly this feeling is; is it a flare? Could it be blood cancer? Because honestly this is how I would imagine blood cancer feeling. I appreciate constructive feedback and any and all positive interaction. Thank you all.

Another week of fatigue, anxiety, depression. I don’t think I can live like this any more. The headaches are getting worse, the achy limbs too, it’s relentless and constant.. Dr Google isn’t helping, I’m starting to think it may be more than GAD. I feel completely wiped out.

Even things like watching tv, reading the newspaper, going on a walk amongst the other things I do when I’m not working feel like a chore to do, and usually I have the energy I’ve felt okay for maybe 2 hours in the last 7 days, when I was drinking a beer in the pub (just one, I hasten to add), but that was the only respite I’ve had.

. #Fatigue #Anxiety #InvisibleIllness #symptoms #Malaise