nausea

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    If there’s no finish line, then what’s the point

    I’m 24 and have been sick all my life. From a traumatic birth, getting diagnosed with asthma at one day old, getting a lung infection at a few months old and constantly having a cold, or flu, or headaches that take days to go away, or migraines that take weeks to go away, or muscle pain, or skeletal pain, or inflammation, or some weird new pain or ailment.

    I’m starting to have a real hare for healthy people. Not only do they have absolutely no idea how lucky they are, they don’t seem to understand that not everyone has that. They don’t seem to understand that I’m not doing it for attention, I’m not lazy, I’m not “obsessed with being sick”, I’m not incapable and I’m not someone that wants to be sick. Why the hell would I want to do this to myself?

    And why, for the Love of everything good in this world, am I expected to just function like everybody else. I’m expected to perform at work like everyone else, to be able to do everything from sleeping 8 hours (lol) to cooking, cleaning, working, eating, working out, do stuff on weekends.

    I just want to sleep, and cry in peace. No one understands the absolute mental toll their expectations or comments puts on me. You don’t think I feel guilty? You don’t think I think those things about myself?

    Explain to me how being worried that a flare up can happen at any point for any reason, that a new symptom will just appear and force itself to become my new normal, that I’ll lose my job, that my friends are irritated with me, that my partner is getting sick of me being sick, how would I want this?! Why the hell would I want this? Why would I want to spend thousands on medical bills, or have a doctors appointment on my diary at any give n point, or have a search history that would put a medical journal to shame, or have multiple spreadsheets tracking absolutely everything I do because you never know when a new illness will pop up.

    I’m exhausted. I’m so so exhausted. Mentally, physically and emotionally. I cry daily, I’m in pain every single day. And the worst part is I DONT KNOW WHATS WRONG WITH ME BECAUSE NO ONE WILL HELP ME. My body is literally trying to kill me and I can’t stop it. How am I expected to function like everyone else when at this point I’m barely a person or a human being?

    I feel like an empty, pointless bag of scrap molecules that’s being tortured for entertainment.

    I don’t know how long I can continue like this. I’m contemplating ending everything 3 times a week at the very least. I’m screwing up my liver with medication. For what? What’s the point? To stay alive so I can continue to do this every day? Hope that one day I’ll have a day where I’m just a normal girl with a normal life? That day hasn’t come for 24 years, why the hell would it come at all.

    I’m just. I can’t anymore. I’ve reached capacity. #tired #ChronicPain #nausea
    #Migraine #done

    9 reactions 10 comments
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    There's a crap ton of stuff going on in my life at the moment. My husband has been diagnosed with aggressive bladder cancer and will have his kidney and uriter removed at the end of March, along with the lymph nodes involved if they can reach them, then chemo. He drives long haul trucks and is our source of income, other than my SSDI, and he'll be off for at least 6 wks. To make matters worse, he's been home for a week R/T appointments surrounding this. My health problems alone are enough to make my life a crap fest. Now I'm having even more trouble with pain, insomnia, in ability to eat good food, and to top it off I fell for the first time in a year this morning.🙄 I'm also in need of getting what's left of my teeth out and fitted for dentures (because insurance companies haven't realized that implants last a lot longer there for are less costly in the long term)🙄 I also had to miss my Botox appointment at the beginning of the month and couldn't get in again until the 30th, so I'm having headaches on top of the fibro/arthritis flare I'm in the mitz of. I do get all kinds of kitty purrs and snuggles, especially in the loo🤣 Our smallest cat, Rosie, believes I should never be alone in there. She'll also sleep with me at night, except she's not allowed to when my husband is home. Thanks for listening.🐧#nausea #ChronicMigraineSyndrome #ChronicDepression #ChronicPain #SensoryProcessingDisorder #ChronicTinnitus #PTSD

    19 reactions 2 comments
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    Safety

    I am constantly processing how unsafe of a situation I was in. I didn’t fully realize it until recently.
    Now I’m dealing with the consequences with #Agoraphobia #PanicAttacks #ComplexPosttraumaticStressDisorder #ChronicMigraines #nausea #Flashbacks #IntrusiveThoughts
    And there is no safety net.
    Every time I hear the words “go to a shelter” I am immediately triggered. How does one stay in a shelter when they are so sick? I had an absolutely terror of a migraine because I couldnt get to my aimovig and I had to order a new one but first i needed an address to get it sent to.
    Not only was the pain off the charts for me, I couldn’t stop throwing up. But I couldn’t go to the ER because of the last experience I had when I was looking for safety from the relationship I was in and they called me paranoid and suicidal.
    I cannot manage my triggers. I cannot stop shaking. I’m rapidly alternating between hot and cold
    Also- for funsies my pharmacy doesn’t know when it’s going to get my #ADHD meds back in so I have a couple of pills to get me through… three days? If you have ever had the fun of trying to get a controlled substance switched to a different pharmacy during the holidays- you will recognize the impossibility of doing so.
    I’m tired of things being presented to me as options when they aren’t. It feels like these options are only illusions for healthy people to feel safe that if they got to this point, they’d get help.
    And I had a housing voucher- but the agency I was working with assigned to help me didn’t. And so now i have to go back on the waiting list while sitting in boiling water. Again. Like- it isn’t a slow simmer. It’s been a rapid boil for years now.
    Any proposed solution doesn’t take into account the myriad of obstacles that is my life.
    I am lacking most forms of personal/social support. No one in my life “gets it.”
    It feels like people are annoyed with me because there are no solutions. The number of people telling me “can’t you just work?” is astounding. Especially considering those people know my situation. They have seen how sick I get.
    It just all feels so unbearable and so inhumane.

    5 reactions
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    Is there something wrong with my stomach?

    Hey, everyone. I hope you’re all okay and staying safe and well.

    I have a bit of a strange question. I have several chronic health conditions, including Postural Orthostatic Tachycardia Syndrome, Dysautonomia, Ehler’s Danlos Syndrome, IBS, Non-Alcoholic Fatty Liver Disease, Diabetes, Interstitial Cystitis, Migraines, Gastro-Esophageal Reflux Disease and some mental health difficulties. So there’s a lot of stuff going on.

    Anyway, I regularly get stomach aches, or just an iffy stomach in general. I’ll sometimes go 2-5 days with a very minimal amount of food because I’m just not hungry and I feel sick. I’ve had lots of tests and scans and beyond having a Hiatal Hernia and some inflamed blood vessels in my stomach lining, they can’t find a reason behind this. But I’ve recently discovered that when I feel like this and/or I’m bloated… I can get it all to go away by drinking something fizzy. Doesn’t matter what it is, but as long as it’s fizzy… It almost instantly makes it better.

    Does anyone have any idea why this is? I do struggle to burp a lot - I always have. When I burp, they are tiny and don’t make much difference, even after I’ve drunk the fizzy stuff. I’m completely open to suggestions. I take all kinds of medication for my IBS and GERD. Antacids, Buscopan, Mebeverine, Metaclopramide (an anti-sickness). But they have a minimal effect when I have these stomach aches, bloating, nausea and loss of appetite.

    Thank you all in advance! Any suggestions would be greatly appreciated. Stay safe!

    #ChronicPain #chronicillnesswarrior #POTS #EDS #Dysautonomia #GERD #IBS #nausea #NAFLD #LiverDisease #InterstitialCystitis #Diabetes #Migraines #BPD #HiatalHernia #Advice

    3 reactions 8 comments
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    Ohhh food, my old friend and now constant foe

    As this Thanksgiving comes to an end tonight I wish all my #MightyTogether friends a good night.

    I am off to another dose of #nausea #Medication thanks to the beast that is #Gastroparesis and hopefully some sleep so long as #Fibromyalgia and the #Insomnia that accompanies it doesn’t make a guest appearance because I could really use a normal nights sleep. Ha! Who am I kidding? Normal? Now I feel like I may be delirious. And on that note, night all 🥴

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    🔸Good afternoon Mighty GP Warriors!🔸 Happy Thanksgiving everyone! Do you have a plan of attack on a holiday based around...food, food and more food?

    Hello all!

    I’m hoping that everyone is feeling the best that they can today and if you spend this holiday with a large group of family, maybe just a few, gather with friends, are currently solo, or even if you don’t really celebrate this day.

    Here is my question for you whichever way you spend it.

    What is your approach, your strategy, your plan of attack on a day that revolves around food?
    How do you manage it the best way you know how?

    🟩 ~tips, tricks, ideas and ways you manage are most welcome! It may just help someone that hasn’t found what works for them yet!~ 🟩

    #Gastroparesis #Food #nausea #TheMighty #MightyQuestions

    2 comments
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    I love all these men, that want to chat, just to find where u r from, if u r married, etc..

    They probably don't even have anything wrong with them IMO

    I've blocked soany men in the last 2-3 days, wow.

    I talked to one person regularly on here and this is supposed to be a support app???

    Where's the support???

    Now I know why I stay away and only check in periodically, it is me, and I knew it.

    #EssentialTemor
    #struggling
    #nausea
    #PeopleWhoDon 'tBelieveYou
    #sleepproblems
    #themightylife
    #HighlysensitivePerson
    #ThePainGame
    #MightyTogether
    #NavigatingTheMighty
    #noshame
    #CheerMeOn
    #ChronicFatigue
    #CheckInWithMe
    #AloneTogether
    #Upallnight
    #liftmeup
    #MultipleHealthChallenges
    #Chatspace
    #FamilyAndFriends
    #Insomnia
    #lonely
    #Lonliness
    WeAre#MightyTogether
    #FinancialIssues
    #Nosupport
    #Pain
    #ChronicPain
    #ChronicIllness
    #Christian

    7 comments