Mast Cell Activation Disorder

For those of us with multiple health conditions, there is a cost to everything we do, and often we get what I like to call the fun hangover. Do you get one and if so, what do you do to recuperate?
youtu.be/zHcrHrCn2J8 (this is the link to my video on the topic)

#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
#PTSD #FunctionalNeurologicalDisorder #Migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
#raynauds #MentalHealth
#Depression
#Anxiety
#ChronicPain
#ChronicIllness #Disability #DistractMe #Arthritis

CT shows it is unlikely cancer in my lungs, they don’t know what it is, but that’s a problem for another day!

youtu.be/ivZ72NM2GpI

#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
#PTSD #FunctionalNeurologicalDisorder #Migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
#raynauds #MentalHealth
#Depression
#Anxiety #ChronicPain
#ChronicIllness #Disability #grateful

While I am waiting for results, I am choosing to focus on the joy of spring. The results that have come in are so up-and-down and all over the place. My thyroid is low now, and there is protein in my urine and I am going through periods of exhaustion so bad I can barely move. Tomorrow I will get the CT results for my lungs. Instead of focussing on all that, I am choosing to focus on the birds chirping and the sun shining! I hope everyone has a wonderful day.

#Abunchofrarediseases #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
#PTSD #FunctionalNeurologicalDisorder #Migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
#raynauds #MentalHealth
#Depression
#Anxiety
#ChronicPain
#ChronicIllness #Disability #DistractMe

For me, getting out on my trike to photograph the sunrises is my favourite part of spring! ☀️

#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
#PTSD #FunctionalNeurologicalDisorder #Migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
#raynauds #MentalHealth
#Depression
#Anxiety
#ChronicPain
#ChronicIllness #Disability #DistractMe

Today we mourn and fight. I believe everyone has the right to live and die with dignity.

#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
#PTSD #FunctionalNeurologicalDisorder #Migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
#raynauds #MentalHealth
#Depression
#Anxiety
#ChronicPain
#ChronicIllness #Disability #DistractMe

Today is a day of awareness for rare diseases, of which I have a few. For those of you who belong to the rare disease family; Happy Rare Disease Day! 🥳💜

Anyone who wants to know more about rare diseases, click here: www.rarediseaseday.org

#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #PTSD #FunctionalNeurologicalDisorder #Migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma #RaynaudsDisease #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #DistractMe

It has been a while since I have posted. There is an odd feeling to surviving. Almost a guilt, because I said my goodbyes, and was at peace with going, but my body was not ready to let go. My best friend ended up calling an ambulance, I was hospitalized for more than two weeks and released. I have been doing a ton of testing since. I have found an amazing pain specialist. Working with a great physiotherapist I got walking again. I am trying to spend as much time as I can with my family, friends, puppies. I am eating good food and playing outside. Pain levels are really high, but I am coping and finding all the joy I can. I am very happy that I get a second chance to find as many silver linings as I can. Life is as always, more good than bad.

#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #PTSD #Migraine #Asthma #CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma #raynauds #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #DevelopmentalDisability #DistractMe