Meniere's Disease

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Meniere's Disease
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Hi! I'm new here. Just need a place to tell my story, and perhaps get some necessary help.

This morning I woke up with the migraine again, this is now day 6, off and on, but mostly on. I go through phases like this, where it seems I cannot escape the pain, then they might suddenly improve drastically, down to once or twice a week, and back again. The right side of my forehead feels like my skull is going to explode right off, or my brain is going to come through my temple, and the back of my neck, at the very point where it connects to the skull feels like I'm being stabbed with an icepick. This is the same pain as always, it rarely varies, and causes nausea, extreme light sensitivity and pressure behind the eyes like they want to just pop right out of there, and the dreaded panic attacks. No medicine the neurologist has tried helps to prevent them, but thankfully, the triptans prescribed do give me temporary relief. I've had multiple CT scans, MRI scans, X-rays, and blood tests. The only thing that showed up is rather severe arthritis in my neck. I also suffer from rather extreme allergies, meniere's disease, interstitial cystitis (under control), and asthma. I believe it is likely that I have mast cell activation syndrome, but have not as of yet found a doctor who is able to assess me, here on the outskirts of Atlanta. That pretty much covers the physical. The mental impacts of all of this can be quite a bundle as well, as I'm sure you folks understand. Today is a rough day, but I'll get through it. Thanks for listening.

6 reactions 6 comments

Advice #MenieresDisease

I was recently told I have Ménière’s disease. This is in addition to several other conditions.
My vertigo episodes first started in the spring, but have gotten progressively worse. I just spent 48 hours with nonstop vertigo and 20+ hours of vomiting.
I’ve previously been on disability, but am seriously considering going through the process again. I started a new job in November and haven’t worked a full week in any given week. I’m having to call off more than I’m working. Not working again is the last thing I want to do, but I feel like I’m running out of options.


I work for the menieres society and looking for people with Ménière’s willing to share their journey with us! Let’s get awareness out!


1 reaction 5 comments

I’m new here!

Hi, my name is Newlyrics718. I'm here because I was diagnosed with Menieres disease when I was 22, I'm now 38 and it's gotten so severe I'm scared to drive. I have lost 80% of my hearing in one ear and 40% in the other. I have 2 hearing aids but can't wear them much because it causes my attacks to be more frequent anytime their in my ears too long. I'm a marketer and thank God I'm an expert lip reader after all these years. Nice to read about ppl that suffer like me. I know how bad it can be. thanks for listening

#MightyTogether #meniere'sDisease

2 reactions 1 comment

I’m new here!

Hi, my name is wyntersnroses. I've been diagnosed with Menieres Disease and struggled with so much health wise. just reaching out to those who know the struggles

#MightyTogether #meniere'sDisease

5 reactions 1 comment

I am new here!

My name is Samuel. I have been diagnosed with 20 different illnesses and/or diseases over the years. The last one, early stages of Alzheimer’s. I am emotionally drained most days. It feels like my memory is being erased, besides having problems communicating and process thoughts, emotions, and ideas, etc. The other issues worsen the situation as these still need to be managed, but they have a severe impact on my mobility, comfort, and other human basic needs. Anyway, thank you for listening.














4 reactions 2 comments

I'm new here!

Hi, my name is Anoukm.
Im new on here, I'm here because I suffer from Meniere's disease and feel very alone and scared

#MightyTogether #Meniere 'sDisease

1 reaction 2 comments