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I'm new here!

Hi, my name is Ashton (Midnight_Muse1207). I've been diagnosed with all the fun things tagged below, and then some.
I have been chronically ill since birth. I would spend months of my life getting diagnosed and finally treated just to have another body malfunction pop up to start the process all over again. This year has been different though, it has brought me to my knees in a way I didn't think was possible. I have symptoms involving every system in my body all together, all the time. I am currently "undiagnosed" for whatever is going on. I think I have an autoimmune disorder/illness that I've just been putting band aids on when a specific issue would flare.
I have never felt so unheard or dismissed than I have this year. I'm currently very dismayed and frustrated with several of my doctors. I had one accuse me of being on drugs causing possible "drug-induced mania", and another putting Alcohol Use Disorder in my chart. I have been in recovery from addiction for over 4 years, and neither doctor bothered to drug test me or bring up their suspicions to my face. I am painfully aware that I have had a neurological shift causing me to talk and act differently than what I normally do. I now am scared to talk to anyone and avoid eye contact if I do have to speak, in fear that they may think I'm intoxicated.

Has anyone had this happen as well? Whether you're in recovery for addiction or not has a doctor dismissed your symptoms because they thought you were possibly intoxicated?

#MightyTogether #Anxiety #Depression #BipolarDisorder #Migraine #PTSD #Grief #Migraine #Vertigo #HS #HidradenitisSuppurativa #Psoriasis #GastroesophagealRefluxDisease

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My original free song/video called Vertigogo, kinda funny about an unfunny subject. The video has some spinning stuff (warning). Bandcamp has no video

youtu.be/JG8mP0yrX-c

treeshadefrance.bandcamp.com/track/vertigogo

#POTS #ChronicFatigueSyndrome #Vertigo

Vertigogo (Lyrics)

I got the Vertigogo, when is it gonna gogo?

I got the Vertigogo, I really want it to gogo?

Standing on this global world

Dancing like I’m being twirled

Getting spun and getting whirled

Everything is swirly-swirl

Don’t have to go to an amusement park

Have to be careful in the dark

Which ways up, which ways down

If I’m not careful I’ll be on the ground

Spinning, Spinning Spinning

Spinning, the world is spinning

Vertigogo, when will it go go go go?

O Vertigo, I got to move in slow mo

I got Vertigogo, it’s like a brain tornado

I wish it would stop before I drop

Before I flop OH NO NO

Been spinning for a while

Probably went a mile

I’m getting nowhere fast

My future’s in the past

This crooked world is spinning

Moving through outer space

Why do we have to spin so fast

Is this a cosmic race?

Kaleidoscope within

Turning while I spin

I’m being so misled

By the vortex in my head

No no no no no

I don’t like Vertigo

This stupid bop has got to stop

This stuff has got to go

Spinning. spinning spinning

Spinning spinning

Spinning spinning, spinning spinning

The world is spinning, the world is spinning

Wanna go for a spin NO THANK YOU, NO THANK YOU

Vertigogo

This is a humorous song about a very humorless symptom...vertigo...spinning
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Lonliness

I was speaking to my therapist the other day and I said I have always felt "other." Like I wasn't accepted or fit in. Like I wasn't the cool one. Wasn't worthy of love and belonging.

Today I find myself emotional and lonely. I don't trust a lot of people. I want to be that person I am looking for to trust, but if I am honest I have never been able to love myself.

I have done so much work and still I struggle. It is validating to read messages on here.

#Depression , #hospitalizations #Vertigo #Migraines #Loneliness

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New episode to be released tomorrow, 4/1!

We’re talking humor and laughter as coping strategy! Ridiculousness and absurdity ensued while recording this episode and laugh out loud Brain Fog truly happened which we decided to not edit out. Come Listen and Laugh with us!
00:05 am EST release 😄👏🏻.

(At this time, we have no episode transcripts but hopefully soon there will be. Please Be patient as we are doing this on our time and not getting paid for it.)
anchor.fm/creative-copes
#ChronicHeadaches #ChronicIllness #ChronicMigraines #ChronicPain #Fibromyalgia #Agoraphobia #Anxiety #MyalgicEncephalomyelitis #Spoonie #spoonielife #CrohnsDisease #Endometriosis #RaynaudsPhenomenon #Dysautonomia #Vertigo #ChronicOrthostaticIntolerance #Podcast #creativecopes #ChronicFatigue #Migraine

Creative Copes Podcast • A podcast on Spotify for Podcasters

A podcast featuring two friends wanting to inform, educate and raise awareness into our ways of Creatively Coping with mental and physical restrictions. We want to add flavor and color into the bland landscape of chronic and invisible illness. Through wit, crazy and sometimes dark humor, we will explore how to channel our energy through creative means while searching for balance and flow to stay sane with dynamic disabilities. Love and Light ♥
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@Maxspinningnofocus

When I’ve hit my limit my Vertigo will kick in spinning me so I can’t move. I_can’t_focus_on _anything! #Vertigo #anxiousannie #scatterbrain

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New vertigo diagnosis (8/12/22)

After putting up with dizziness for 2 months, went & saw the dr today. I figured it would clear up on it's own. Nope, silly me. I had a "fluke" one time occurrence in late March and thought I was done. #Vertigo

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Best I Can

Today was hell.

I overdid it with the vestibular exercises and ended up getting really intense double vision and needing to lay down. My boyfriend helped me through it. He’s a cool cat. We talked about how shitty our days were today. To be honest, he’s one of the reasons I didn’t spray vomit everywhere last night.

Yeah, I’m hilarious. At least that’s my supportive employment case manager says. It’s more of a deadpan/dry sense of humor though. Personally, I prefer gallows humor considering everything I go through.

I overdid it but the next day later I feel amazing...so it was worth it? I like this feeling: energized and happy. My anxiety and compulsions aren’t too bad today. No pulling hair (yet) and no obsessive checking of my temperature and scanning for health symptoms.

But I did have a bunch of dizzy spells today. So I am taking it easy. I’m doing the best I can.

#vertigoattack #Menieres #Vertigo #dizzyspells #OCD