vertigo

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    Under Informed

    When I was diagnosed with Intercranial Hypertension my Neurologist told me I had Pseudotumor Cerebi, I asked him what it was and he explained, I asked him the risks and he didn't tell me anything except I need to lose weight. I went home and looked it up on my one and found it on the government medical library website, thank God I did. We planned on flying up to see my baby niece and in laws this year, little did I know the risks in flying with Intercranial Hypertension were. Once I saw that I decided I'm never flying again. I've had four spinal taps in the last year and 2 of them failed and caused me severe pain and the wort after effects. Is there anything that alleviates pressure besides a spinal tap? I'm afraid to get one again. I've lost 30 lbs already and still losing but still suffering. Stay strong everyone 💪🏽
    #wearethemighty #ChronicPain
    #ChronicIllness #RareDisease #IIH #iihwarrior #Migraine #Vertigo #VestibularMigraine #chronicmigraine #IntercranialHypertension #CheckInWithMe #checkupwithme #StayStrong #Pain #chronic #neurology

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    Hi, I'm new here. I have already shared some of my frustrations on here. Looking forward to meeting others.

    #MentalHealth #MenieresDisease #Deafness #Vertigo #Tinnitus #Anxiety #Depression #PTSD

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    New vertigo diagnosis (8/12/22)

    After putting up with dizziness for 2 months, went & saw the dr today. I figured it would clear up on it's own. Nope, silly me. I had a "fluke" one time occurrence in late March and thought I was done. #Vertigo

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    Best I Can

    Today was hell.

    I overdid it with the vestibular exercises and ended up getting really intense double vision and needing to lay down. My boyfriend helped me through it. He’s a cool cat. We talked about how shitty our days were today. To be honest, he’s one of the reasons I didn’t spray vomit everywhere last night.

    Yeah, I’m hilarious. At least that’s my supportive employment case manager says. It’s more of a deadpan/dry sense of humor though. Personally, I prefer gallows humor considering everything I go through.

    I overdid it but the next day later I feel amazing...so it was worth it? I like this feeling: energized and happy. My anxiety and compulsions aren’t too bad today. No pulling hair (yet) and no obsessive checking of my temperature and scanning for health symptoms.

    But I did have a bunch of dizzy spells today. So I am taking it easy. I’m doing the best I can.

    #vertigoattack #Menieres #Vertigo #dizzyspells #OCD

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    Mobility Aids

    Anyone know where to buy a walking cane and shower chair? #FunctionalNeurologicalDisorder #Mobilityissues #ChronicPain #Vertigo #mobilityaides

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    World gone topsy-turvy: How many here struggling with vertigo (BPPV)?

    Spending a lot of time in bed lately. My wife/caregiver is having another bout of benign paroxysmal positional vertigo (BPPV). It's an inner ear condition that goes away in days or weeks. Since she's been getting this 18 months ago, we've met several others who do too.

    We already visited the ENT specialist. He prescribed exercises (Epley maneuver) and waiting it out. It's tough on her but keeping spirits up.

    #multiplesclerosis #BPPV #Vertigo #Wheelchair #Bedrest #Depression #newlydiagnosed #MightyTogether #ChronicIllness #Disabilities #Caregiving #Disability #Support

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    #AskMe : What is the correlation between migraine and vertigo?

    You asked, an expert answered! 💡

    🧠 Here’s what migraine specialist Dr. Berk had to say:

    “Vertigo can be a symptom of migraine aura and precede the migraine attack, and it can be a symptom associated with the migraine attack -- like light and sound sensitivity.

    There are many areas of the brain which, if stimulated, can lead to vertigo symptoms -- a sensation of movement when nothing is moving.

    If these areas are affected by abnormal electrical activity of the brain prior to the migraine pain happening, the sensation is a migraine aura. If it happens at the same time as the migraine attack it will manifest as a migraine associated symptom.”

    #MigraineAnswers #mightywithmigraine #Migraine #ChronicIllness #ChronicPain #Spoonie #RareDisease #Disability #ChronicVestibularMigraine #MenieresDisease #Vertigo

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    #ThisIsMe

    I realized I hadn’t updated my “medical conditions” list on my medical ID bracelet site in awhile. I realized after looking over my list that most of my conditions are “invisible”, except for my knee problem that I wear a knee brace for and sometimes use a cane. So often, I feel overwhelmed by the number of conditions I live with (Am I a “bad seed”?) and the physical and emotional pain that they cause; even the ones that have been “repaired” have come with lingering pain from scarring, incomplete cure or subsequent Dx. I’m thankful for my caring husband and a few really close friends who understand to a point. But even they get tired of my need to share my emotions about what I’m going through. I’m thankful for this group who gets what I mean and can give support without judgment or weariness.
    I’m no longer able to work fulltime; I used to be an educator in various special education programs as well as in schools.
    I try to help others who have conditions like mine as well, so I’m not just a “taker”.
    Here is my list. Dates indicate either diagnosis date or surgery date.

    Right inner ear imbalance 1998
    Narcolepsy 1999, 2021
    Allergies - plants, animals, foods and meds
    Asthma
    Hypothyroid
    Sliding hiatal hernia 2011
    Sphincter of Oddi dysfunction Type 3 2007 - result of gallbladder removal 2005
    Diabetes Type 2 1996
    GERD 2005
    Mild/moderate disc degeneration neck & low back and mild spinal stenosis
    Slip & fall back injury 10/15- MRI Nov 2017 SI joint injury
    Fibromyalgia - 1995
    Sleep apnea 2019
    History of ruptured ovarian cysts 2006 -
    Recurrent tingling/"electrical shocks" all over body 2007 - diagnosed as Small Fiber Polyneuropathy 2020
    Scoliosis (curved and twisted)
    Right knee cartilage deterioration (injured 1979 & 1986) - diagnosed permanently dislocated kneecap 2019
    Arthritis - neck, hips, knees, hands
    Carpal Tunnel syndrome - 2019
    Bursitis - left hip 2017
    Recurrent "tennis elbow"
    Plantar fasciitis and tendonitis both feet - custom orthotics 1991
    Fatty liver
    Cardiac "regurgitation"
    Major Depression,
    Anxiety, C-PTSD, possible BPD
    Multiple concussions (5)
    Multiple whiplash injuries
    Vaginal Hysterectomy with Rectocele and Cystocele repairs - 2018 - Urinary incontinence
    Frequent Migraines

    #Multiplediagnoses
    #ChronicPain #MentalIllness

    #SuicidalIdeation
    #Trauma
    #SexualAbuse #SexualAssault
    #ChronicIllness
    #PostconcussionSyndrome #SmallFiberPolyNeuropathy
    #InvisibleIllness
    #Vertigo
    #Migraine

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    Sharing my day #Chatspace #Sharing is caring #Caregiving #chronic #ASD #cowdens #longterm chemo #Vertigo

    I woke up this morning feeling like hell my head hurt my body ached I was dizzy and nauseous. My sons program canceled, so I took him to the supermarket with me where I chased him around as he took about 100$ worth of merchandise off the shelves and threw them in my trolley. I came home cooked and baked and watched him. Then hubby came home. Then my older kids came home and guess what I was able to nap for twenty minutes. Not ready to run a marathon but not at proverbial deaths door