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I was speaking to my therapist the other day and I said I have always felt "other." Like I wasn't accepted or fit in. Like I wasn't the cool one. Wasn't worthy of love and belonging.

Today I find myself emotional and lonely. I don't trust a lot of people. I want to be that person I am looking for to trust, but if I am honest I have never been able to love myself.

I have done so much work and still I struggle. It is validating to read messages on here.

#Depression , #hospitalizations #Vertigo #Migraines #Loneliness

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New episode to be released tomorrow, 4/1!

We’re talking humor and laughter as coping strategy! Ridiculousness and absurdity ensued while recording this episode and laugh out loud Brain Fog truly happened which we decided to not edit out. Come Listen and Laugh with us!
00:05 am EST release 😄👏🏻.

(At this time, we have no episode transcripts but hopefully soon there will be. Please Be patient as we are doing this on our time and not getting paid for it.)
#ChronicHeadaches #ChronicIllness #ChronicMigraines #ChronicPain #Fibromyalgia #Agoraphobia #Anxiety #MyalgicEncephalomyelitis #Spoonie #spoonielife #CrohnsDisease #Endometriosis #RaynaudsPhenomenon #Dysautonomia #Vertigo #ChronicOrthostaticIntolerance #Podcast #creativecopes #ChronicFatigue #Migraine

Creative Copes Podcast • A podcast on Spotify for Podcasters

A podcast featuring two friends wanting to inform, educate and raise awareness into our ways of Creatively Coping with mental and physical restrictions. We want to add flavor and color into the bland landscape of chronic and invisible illness. Through wit, crazy and sometimes dark humor, we will explore how to channel our energy through creative means while searching for balance and flow to stay sane with dynamic disabilities. Love and Light ♥
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When I’ve hit my limit my Vertigo will kick in spinning me so I can’t move. I_can’t_focus_on _anything! #Vertigo #anxiousannie #scatterbrain


Under Informed

When I was diagnosed with Intercranial Hypertension my Neurologist told me I had Pseudotumor Cerebi, I asked him what it was and he explained, I asked him the risks and he didn't tell me anything except I need to lose weight. I went home and looked it up on my one and found it on the government medical library website, thank God I did. We planned on flying up to see my baby niece and in laws this year, little did I know the risks in flying with Intercranial Hypertension were. Once I saw that I decided I'm never flying again. I've had four spinal taps in the last year and 2 of them failed and caused me severe pain and the wort after effects. Is there anything that alleviates pressure besides a spinal tap? I'm afraid to get one again. I've lost 30 lbs already and still losing but still suffering. Stay strong everyone 💪🏽
#wearethemighty #ChronicPain
#ChronicIllness #RareDisease #IIH #iihwarrior #Migraine #Vertigo #VestibularMigraine #chronicmigraine #IntercranialHypertension #CheckInWithMe #checkupwithme #StayStrong #Pain #chronic #neurology


New vertigo diagnosis (8/12/22)

After putting up with dizziness for 2 months, went & saw the dr today. I figured it would clear up on it's own. Nope, silly me. I had a "fluke" one time occurrence in late March and thought I was done. #Vertigo

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Best I Can

Today was hell.

I overdid it with the vestibular exercises and ended up getting really intense double vision and needing to lay down. My boyfriend helped me through it. He’s a cool cat. We talked about how shitty our days were today. To be honest, he’s one of the reasons I didn’t spray vomit everywhere last night.

Yeah, I’m hilarious. At least that’s my supportive employment case manager says. It’s more of a deadpan/dry sense of humor though. Personally, I prefer gallows humor considering everything I go through.

I overdid it but the next day later I feel it was worth it? I like this feeling: energized and happy. My anxiety and compulsions aren’t too bad today. No pulling hair (yet) and no obsessive checking of my temperature and scanning for health symptoms.

But I did have a bunch of dizzy spells today. So I am taking it easy. I’m doing the best I can.

#vertigoattack #Menieres #Vertigo #dizzyspells #OCD

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World gone topsy-turvy: How many here struggling with vertigo (BPPV)?

Spending a lot of time in bed lately. My wife/caregiver is having another bout of benign paroxysmal positional vertigo (BPPV). It's an inner ear condition that goes away in days or weeks. Since she's been getting this 18 months ago, we've met several others who do too.

We already visited the ENT specialist. He prescribed exercises (Epley maneuver) and waiting it out. It's tough on her but keeping spirits up.

#multiplesclerosis #BPPV #Vertigo #Wheelchair #Bedrest #Depression #newlydiagnosed #MightyTogether #ChronicIllness #Disabilities #Caregiving #Disability #Support

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