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How do changes in the weather affect your symptoms?

It’s muggy in my neck of the woods today, and my POTS symptoms are flaring big time. While I love the transition from spring into summer here in the Northern Hemisphere, the change in seasons — and the changes in weather that come with it — can take a toll on my symptoms. On the one hand, the rapid shifts in humidity trigger migraine attacks and my worsening allergies seem to exacerbate all my other chronic illness symptoms. On the other hand, the hot weather and sunshine help me manage my mental illness symptoms better.

How do changes in the weather affect you? These could be seasonal changes, temperature and humidity fluctuations throughout the week, or those days when the weather seemingly cycles through every pattern imaginable. How do you take care of yourself before, during, and after these changes occur? ☀️ 🌧️ ❄️

#MightyMinute #CheckInWithMe #Chatspace #SeasonalAffectiveDisorder #Depression #ChronicPain #Arthritis #Migraine #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #Disability #BipolarDisorder #Lupus #MentalHealth

46 reactions 19 comments

Hitting a wall.

How many of you have had to quit school due to chronic health problems?

WARNING ⚠️ the rest of this post is lengthy!!!

I have been working on my bachelors in community health through online courses (one class at a time) for the past seven years. A few months prior to beginning my degree program I was diagnosed with fibromyalgia following a car wreck that required a neck fusion surgery. From there my chronic illness diagnoses have continued to accumulate. I now have chronic migraine, endometriosis, interstitial cystitis, chronic fatigue, degenerative disc disease, tinnitus, IBS, C-PTSD, and a long list of food and environmental allergies. I have 2 sons and 2 daughters. My youngest son (15yr) has serious ADHD. Both of my daughters (21yr & 20yr) have long lists of chronic health conditions. They live with me and probably will for their whole lives due to the impact of the disability that their issues cause. Neither girl can drive either. The oldest has Asperger’s, fibromyalgia, Ehlers Danlos, ADHD, C-PTSD, severe anxiety, depression, Eosinophilic Esophagitis, IBS, mild Ulcerative Colitis, numerous food allergies and possible Borderline Personality Disorder. The youngest has Chronic Fatigue Syndrome, Dysautonomia, C-PTSD, depression, anxiety, disordered eating, restless legs, Eosinophilic Esophagitis, constant skin picking, and numerous food allergies. All three of us girls and my youngest boy has severe sleeping problems. Me and both my girls have applied for and been turned down for disability. Up until 2022 I had been a stay-at-home, homeschooling mom. At the beginning of 2022 me and my 2 girls and youngest son ( oldest son is in college and pretty much living on his own) loaded up and left my narcissistic abusive husband of 16 yrs. and began to start over in a tiny apartment in a small town with me re-entering the work force and starting a full time job in retail and officially divorcing him at the end of that year. My youngest daughter has since tried to commit suicide twice and my oldest has had several mental breaks that were extremely hard to deal with. Throughout the whole time I have continued with my school classes. Determined to finish what I started. However, my health has continued to decline from all my illnesses and the stress of my life and it is taking a toll on my cognitive abilities. I took a 8 month break from my classes but have started back recently and I’m struggling to keep up with the assignments and not learning as I know I should be. I only have 6 classes left, that will take me the next year to complete due to the schedule I’m following, but my body, mind and finances seem to be making it extremely hard for me to keep going. I’m really considering quitting, but feel like I would be a real failure if I didn’t finish it.
If you read all this……Thank you! 🙂 #ChronicFatigue
# Migraine
#c -PTSD

21 reactions 9 comments

Anyone else having huge energy crashes with the spring allergies? This happens every year around this time and puts me in bed for weeks. I was curious if it happens to anyone else and if you have been able to identify what the trigger is?

7 reactions 3 comments

Big dog feeling very down and sick

Sneezins greetings from my home to yours. My allergies aren't bad but it seems like all my friends are having a hard time with the pollen. I usually get bad hay fever around this time of year but it's not affecting me. Small wins still count. Unfortunately I have a GI problem yet again. I'm feeling miserable today. But I'm gonna video chat with my girlfriend tonight. We got each other gifts. Mine to her is for mother's Day. Her's is just because. I'm excited to see how she likes it. It's an electric self mixing tumbler for protein shakes. She drinks protein drinks every morning for breakfast and this will help with making them. I don't have a clue what she got for me except she asked me what was my favorite animal right before she said she got me a gift. That's not suspicious, right? LoL 😆

Her daughter is very sick. I feel awful for her. The dress I got for her is going to arrive next week. So is the new clothes I ordered for myself. I'm so excited to try it on. I got some really nice stuff.

1 reaction

Can't sleep vent 😕 #Allergies #Bipolar2

So I'm up at 3am and I have to work tomorrow morning. Thankfully I can work remote so I can hide that I'm feeling under the weather.
The seasonal changes have literally affected my sleep. I have allergies to tree pollen it seems. Allergies to various air pollen/ spores.
I was pretty stubborn and should have just taken the antihistamine last night.
But I already take daily medication, and my stomach has been irritated lately so I really didn't want to add another thing.
Fingers crossed I get some sleep!!

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Feeling MY Way Through this Journey #CrohnsDisease #DiabetesType2 #MentalHealth #Allergies #ChildLoss #SpinalMuscularAtrophy #ADHD

I've been going through multiple situations over the past 30 days. #1 My eldest daughter got arrested at a public facility, #2 the year anniversary of my middle daughter's death quickly approaches, #3 Mother's Day is when my mother transitioned, #4 fighting for my life with these UNPROFESSIONAL MEDICAL CARE TEAMS, #5 I have 3 grandboys from my deceased daughter that are in foster care and they refuse family communications. There's so much more, but this is THE TOP 5 STRESSES.


29 reactions 8 comments

Have you ever felt like you are a mistake and should not reproduce?

This post really might be silly, and I know that many many people are going through much worse things.
I just needed to put it out of my chest. Since tomorrow I have been wondering that maybe nature does not want me to reproduce.
When I recall on all the things I have been through with health and being only 28 years old I feel like a failure.
I have dealt/been dealing with:
- serious kidney inflammation when I was a kid
- bladder reflux
- allergies literally on everything (food, animals, dust, plants...)
- asthma
- ekzema
- immunity problems
- anemy
- problems with sudden loss of vision in one eye
- incontinence
- gall bladder stones
- acid reflux
- OCD, anxiety
- chronic stress which often leads me to do different kinds of muscle twitching to release the tension
- and looks like maybe I also have $p€*m allergy
- I also have MTHFR and PAI mutation which means I badly metabolise follate and during pregnancy I would need to take anticoagulant injections

Really sorry for this post
I just really feel like a total failure of nature and having children and a happy family is my dream come true
#MentalHealth #Anxiety #Allergies

17 reactions 5 comments

Pacemaker offers more surprisers ten years lager

Part 1 of 2 I know a lot more about pacemakers than I did in 2013 when I had the first one implanted. In 2022 I had a battery switched out and believed I was a professional pacemaker user. A few months ago, however, I discovered there is a lot more to this little battery pacing my heart.
For clarification, my heart is structurally sound. Dysautonomia- an umbrella term used to describe the malfunction of the autonomic nervous system- slowed the heartrate. By 2013 I was operating mostly in the low to mid 40s and felt crummy. Medication did not help, and I was diagnosed with chronotropic incompetence (basically the heart’s inability to sustain a normal heartrate). A pacemaker cannot cure dysautonomia, but it took away the bradycardia symptoms which had left me exhausted and winded.
In the last 10 years, the cardiologist and I have surmised why I have bradycardia and dysautonomia. At the age of 20, I had mononucleosis (viral infection number one). My heart started beating more slowly. I had a few medical tests run and doctors said the slow heartrate was due to allergies. I ran when I felt the heart too slow and then went to sleep, typically feeling better the next day.
In 2010, I had a string of sinus infections culminating with the flu in 2010 (viral infection number two and more). The month of December was horrendous and the day after Christmas I experienced my first of many experiences with dehydration. Again, the dysautonomia specialist believes those viral hits are what essentially “damaged” the autonomic nervous system, resulting in a myriad of symptoms and consequences.
Fast forward to August 2023. That was the month I learned of a complication of pacemakers. I had felt unwell for a couple days, and even had a horrible bike ride in which lying down did not help me recover. There was intense pain from my shoulder to my hand- I literally could not hold the bike handle and had to dangle arm (not a heart attack).
I received a phone call from a pacemaker representative that adjusts the settings. He wanted to see me as something was wrong with the pacemaker. In 10 years, I never received a call regarding the battery; I wasn’t sure anyone reviewed it.
Here is the biggest surprise _ pacemaker leads can “break.” After nearly 10 years, the coating of my one lead is coming undone. What does this mean? First, the pacemaker switched from one setting to another, which does not feel good. I passed out once and came close a second time before I knew what was occurring. The pacer can sense orthostatic intolerance I deal with (drop of blood pressure upon standing). It will then shoot my heart rate up, so I feel ok. Unfortunately, with the lead not working properly and actually pacing in both chambers instead of just the top, it doesn’t decipher these changes in my body.
To fix the situation, I am having laser lead extraction surgery at the Cleveland Clinic. I could have had it in Buffalo, but it is a complicated surgery, and the expertise is in Cleveland. It took more than two months to secure an appointment with the surgeon; it’s four months total from the time the pacer stopped working accurately until the lead is replaced. I have not biked since early August, have had to be extra careful with increased symptoms and have dealt with additional fatigue and nausea.
This is my third pacemaker surgery; the most complicated one. The surgical team uses a laser to burn and then slowly pull out the lead. If it is deemed too difficult to extricate the lead without damaging anything, the lead will stay, and I will get a new one that works. Ideally, however, it is hoped the lead can be removed and replaced.
A few months ago,  I went for a bike ride at the Buffalo waterfront believing it was any other summer morning ride. Little did I know the crazy medical detour I began. This is reminiscent to the bike rides in the summer of 2010 in which I had to hop off my bike as I felt like I was going to pass out. These bike rides were the clue that something was wrong with my body, other than an easy fix.
I am annoyed that this has happened; I never even knew of such a complication _ which occurs in one to four percent of the population. I guess I am once again the “lucky one.”
I have learned several things in the last four months including:
1. I need to bike. But walking and using an indoor bike is ok. (Putting weight on my left arm causes “noise” on the pacemaker, which is a problem).
2. My husband and family are of great support.
3. I don’t have to take the first medical opinion I receive. I have a great local cardiologist who can manage my care but for such an intricate surgery I want to be in a top-notched facility that does thousands of these surgeries.
4. Many hospitals do not perform lead extraction surgery because it is rare, the equipment is costly, and a doctor must have specialized training.
5. I am fortunate to be able to travel to Cleveland

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Ash-Burger's Syndrome (the story of my life)

I'm clumsy. I've always been clumsy. People are terrified of telling me to take a break because I do. I break cups, glasses, plates - you name it. They nicknamed me Zorba the Greek, one place I worked because of this. Talking of jobs - with me they've always been few and far between. nothing lasts long. I either get bored and leave or get sacked.

"Now look what you've done!" or "What happened to that order I gave you, to send out to Mr Harvey on the eighth?" (Well he didn't specify which month, did he?).

To say I was socially inept, is mildly true too. If I had a drink in my hand, I'd either drop it or spill it on someone.

"You clumsy idiot!" (Well yes, I know that - can you be more specific or add something else of interest to that point?).

I was never a great talker and got on better with kids and animals, than I ever did with adults or the human race altogether.

"Stop grimacing at me you nutter!" And other plaudits like this, would come my way. Talk? How could I? I could barely get my body to work, let alone my brain. Occasionally I'd let slip a terrible pun, to break the ice, in social situations. Every time I tried to be clever, an uncoordinated load of stumbling rubbish would come out.

"What do you mean, I-I-I, ig ag ooh?"

Ruthless Mickey takers at work or down the pub, would plough right into me as soon as I opened my mouth, so I shut up again or I'd burst into hysterical laughter as I found the joke funnier than anyone else.

"For Christ's sake shut up! The joke's over!"

Then there were the times I couldn't understand what anybody else said. It was like that Far Side cartoon - What you say and what a dog hears:-

"Blah, blah Rover. Rover blah, blah."

It was like I was hearing a foreign language or none at all.

"Cat got your tongue? Well it bloody should have - you don't use it enough, to need it!" (Ha-ha - very funny I thought but couldn't stand the humiliation of trying to actually say it).

Hugh and Milly Asian? Now that's a couple I know well! Yes, my literal sense of humour categorised me as autistic, even if nothing else did. Then there was phonetic spelling.

"That's not how you spell it Wright - get a dictionary!" ( Wright, wrong again! School, who needs it? If they want to spell it that way, why can't they say it that way too? It's all so jumbled up and illogical!).

There's some legend that says having Asperger's makes you a mathematical genius - not me. On the way to school I obsessively count the telephone poles, yes but I couldn't add up to save my life or yours, when in the classroom. Oh yes, the stories of us being selfish and self centred are true. We live in our own little world and you can't enter, even with a valid passport. Our borders are closed Mr Schickelgruber and nobody can come through without our express permission, so turn your tanks round and go home.

We are a strange mix of contradictions - egotistical, blunt in our speech, when we do open our mouths. Bloody minded and stubborn, yet fearing confrontation because in a fight, we wouldn't know when to stop - at least that is what we believe. It takes a hell of a lot to get us going and just as much to put the brakes on: Quick to anger, slow to cool down and come back into Earth orbit, if we don't miss it altogether. Innocent, vulnerable, trusting and blundering. It is this openness and honesty that turns us into the brainy creature we so often are. While others play about in the classroom or outside it in the playground, developing their social skills through interaction, we shut up, sit still and, look and learn. We shut them out and let the light of understanding in. Ordinary people connect with the outside world, through talk and physical contact - not us. We are geeky, clumsy and inappropriate in our comments and movements but we connect internally with ideas. They can dance, play football, cake on make up or make cup cakes but not us. Books are our only friends - failing that our computer screens are. We'd rather text than talk, write and read rather than speak - even to each other. We want to know how the universe works and maybe even one day, we'll find out how we work but not today, oh no, not today...

We know we are not liked - even feared and despised by some people or why attack us? (You only bully what you're afraid of - what challenges you to be what you are not or at least makes you think about it as a subject). Limited intelligence, criminality and defensiveness go together - leading to ignorance and suppression, by those wanting to shut out the light. Perpetual motion and emotion, keeps them on the move but not us. We don't want to leave home or even go out. We just want to collect our train numbers or plonk about on our computers in peace. Failing that we want to vegetate in front of the goggle box. We are not active participants in life. We are just passive viewers, along for the ride (Don't ask us to drive -we're not up to it or up for it either). We understand sound and motion go together (as with music and dance) but we are detached because we are observers of life, not activists (We don't move with the times because we are lumps of rock - orderly and controlled, not relaxed). We see only chaos and confusion in the world - danger we are not ready to face. Go for a swim? No thanks! You could drown and then there's all the pollution in the sea and God knows what in the rivers and swimming pools! We don't enjoy our lives, we study them for that great examination in the sky, when we all kick the bucket (Did we do well?). Live our lives? Maybe next time. Spontaneity is for wimps - we love routine. Order and discipline, that's us.

We're not in our bodies but always outside, looking in. This explains our odd gait as we're not in contact with life or society's natural rhythms.

We feel continually under stress because we are. Our twitching, tics and odd mannerisms show this. I need to crack my joints continually because of this (neck, between the shoulders, lower back (especially this point), ankles, knee caps, wrists, fingers and toes - by the way did I mention we're obsessive list makers?). This is why you'll see me and others like me, suddenly tilt their heads to one side or move our hands and feet into strange positions, for no apparent reason - we need to relieve our spasticity (Perhaps this is where 'Jerk' comes from as an insult?). It could explain the difficulty swallowing, indigestion, sensory sensitivity and allergies as well. Maybe too, it explains the dietary fads of eating nothing but a particular food - like crisps, beans, bread or biscuits, for months, even years on end (I've heard that we're carb eaters, avoiding protein and choking on fats).

Is it any wonder that we're stressed? Our attention to detail driven characters, fear of making mistakes, rigid personalities (love of tight clothing), passion for order, discipline and routine - all contribute to the pressure we feel under and put ourselves under. If we weren't so visually orientated, we probably wouldn't be so language impaired, continually swallowing nervously in social situations. This passivity and receptivity is probably what allows us to be so logical but it also leads to the need for space and the temper tantrums that follow, should we not get it and find we cannot cope: The sensory influx that drives us insane - the obsessive compulsion to wash our hands and protect ourselves from every other potential danger , turns us into an explosive powder keg of emotions, which blows up like a volcano every so often.

They say it is a male thing - this turning down and in, in curiosity, then up and out with answers and insights. This mental pressure is the same as physical pressure as in sex and other expressions, I believe. The physics of it is male concentration versus female dispersal of attention and energy. This is why males are more volatile and suspicious because of it (wound up and easily triggered into