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Hello, all! I’m Bridgette. I live with RA, Type 1 Diabetes and chronic allergic sinusitis as well as several allergies. I’ve been a Sooonie since 19 years old. I’m currently 41, 42 this year. I’m seeking refuge from the ableism and just plain lack of understanding I face in the workplace, at the doctor and from even people I know and love.

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Hey y'all!

I'm new, my name is Labradored. I am here because of multiple medical and mental health issues. My oldest daughter was born with Rett Syndrome (a pervasive developmental disability with serious health issues) and died from a seizure in my arms at 12 years old in 1993. My youngest daughter died in a car accident at 17 in 2000. They were my only children. I was so very blessed to be their momma.
My medical issues include long term insulin dependent diabetes II, exocrine pancreatic insufficiency, Celiac disease, asthma, osteoarthritis, severe food, drug and environmental allergies, dysphasia, Barrett's esophagus, eosinophilic esophagitis, GERD, chronic stomach issues, and IBS.
My mental health concerns include Major depressive disorder, generalized anxiety, OCD and ADHD, and complicated grief related PTSD.
The memes on this site are helping me get through this current gastro flare, I've been nauseous all day today with vomiting and diarrhea for the last 12 hours . This happens about twice per month. My food menu is quite limited due to allergies to gluten, soy, most non citrus fruit, lactose intolerance and tree nut and peanuts. I feel like I develop a new food allergy every year.
My medical issues began shortly after my youngest girl died. Don't let anyone tell you that grief is just an emotional response, grief has wrecked serious havoc on my body.
I have a wonderful husband, supportive and loving friends, a great career as a behavioral health counselor and three fur babies who provide unconditional love and entertainment.
Most of the time I manage pretty well, but when my health conditions flare, it tanks my mental health as well.
Looking forward to sharing and receiving. 🩵🩷 Blessings upon you all.

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Burnt-out from the ignorance that comes from the mouths of so called trained medical professionals whom attended society's schools to acquire a stamp of approval that they specialize in whatever 🙄 and obtained A DEGREE.

#Allergies #SpinalMuscularAtrophy #Anxiety #GastroesophagealRefluxDisease #SpinalStenosis #ChronicFatigueSyndrome #BrainInjury #MentalHealth #CardiovascularDisease #RheumatoidArthritis #Osteoporosis #Peripheral #InflammatoryBowelDiseaseIBD #InflammatoryArthritis #CrohnsDisease

34 reactions 9 comments

Hi! I'm new here. Just need a place to tell my story, and perhaps get some necessary help.

This morning I woke up with the migraine again, this is now day 6, off and on, but mostly on. I go through phases like this, where it seems I cannot escape the pain, then they might suddenly improve drastically, down to once or twice a week, and back again. The right side of my forehead feels like my skull is going to explode right off, or my brain is going to come through my temple, and the back of my neck, at the very point where it connects to the skull feels like I'm being stabbed with an icepick. This is the same pain as always, it rarely varies, and causes nausea, extreme light sensitivity and pressure behind the eyes like they want to just pop right out of there, and the dreaded panic attacks. No medicine the neurologist has tried helps to prevent them, but thankfully, the triptans prescribed do give me temporary relief. I've had multiple CT scans, MRI scans, X-rays, and blood tests. The only thing that showed up is rather severe arthritis in my neck. I also suffer from rather extreme allergies, meniere's disease, interstitial cystitis (under control), and asthma. I believe it is likely that I have mast cell activation syndrome, but have not as of yet found a doctor who is able to assess me, here on the outskirts of Atlanta. That pretty much covers the physical. The mental impacts of all of this can be quite a bundle as well, as I'm sure you folks understand. Today is a rough day, but I'll get through it. Thanks for listening.

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The Heck? Has anyone else heard of this? #Undiagnosed #Allergies #Migraine #Asthma #SeizureDisorder

So, all those hashtags are stuff I have thought this is but apparently it's really something else... although I do have the seizures.

For years I have thought I had all this stuff and sometimes I just passed for apparently no reason besides that my head apparently likes the floor. I always got a whole batch of seemingly unrelated symptoms, often at the same time. The real winner was the crushing headach (I mean really impressive) with nausia, dizziness, and sometimes confusion or difficulty speaking, or memory loss. But this came with a bunch of scary level "allergy" looking symptoms too.

There has also usually at least seemed to be an "alergy trigger." That
has usually been a water damaged building or bread baking, although deasil fuel absolutely hates me, as do some perfumes, and second hand pot. Also, just plain exercising in cold air does bad-bad things. The result is a bunch of surpluss mucus in all the wrong places, a serious tightness in my chest, a cough that just wouldn't let me catch my breath. I have passed out plenty of times, or else had periods of time I can't remember, and then there would also be inflammation to follow, usually sore joints and just bone crunching exhaustion.

I never got a real allergy test because I guess I was raised to be tough (not in a good way) and, the allergy wasn't life threatening ( I have had people conclude otherwise, but I always took it for granted this thing is survivable). I figured, what could anyone do about it anyway?

A few times friends bundled me into an emergency room, to get checked for a brain aneurysm, stroke, cancer, or a concussion, but when nothing showed on the scans the hospital staff was usually shockingly disrespectful and I guess I just didn't like the implication that I was "faking," "wasting their time," or "being a sissy." That stuff was always getting thrown around both in medical settings and at home too, especially when I was still a kid, though it continued as an adult (on the few occasions when I did try and get some help). I absolutely felt guilty for being sick and kept it to myself as much as I could.

Milder forms of this kind of symptoms were already part of my life when I was 7 or 8, but as an adult things have mostly gotten more dramatic. These days I am dizzy (at minimum) most of the time, I have also had car accidents during periods of time I am pretty sure I can't remember. I currently don't drive because I'm scared of killing someone by accident.

I don't go places where I might encounter the stuff I think are triggers. A lot of those are fun places that I really want to go (restraints, breweries, concerts, people's houses), but the simple fact is that accidently convincing everyone I might be iminently dying of a brain aneurysm (that seems to be the go-to bystander assumption when I have a bad eppisode) is about the most surefire way there is to ruin a perfectly good evening FOR EVERYONE (especially me, obvs.)

I also don't want to go to the ER for scans that show nothing and staff that are rude, and so there is usually a big argument between me and whoever is around. Durring that argument I'm probably not actually saying anywhere near all the words I'm thinking, and if I'm conscious enough, getting enough air, and also not puking, then i'm probably heavily slurred. A lot of the stuff I'm reporting is stuff I don't remember either. People tell me about it afterwards.

This experiance is a lot like having been really drunk, but without the alcohol. Whatever I'm saying, during one of these episodes, nobody is particularly inclined to think much of my judgement at the time, also, much like if I was drunk. That said, as the years have passed, most people who are close to me have gradually learned to accept that the emergency room is going to be a way to spend all night and a bunch of money being really uncomfortable, to no result.

Recently, I started to see a therapist for PTSD and she started to get nosy about why I don't do most of the things I want to do. These days I mostly stay home, full stop. Keeping me employed in a way that doesn't constantly trigger my symptoms has proved to be either impossible or just more trouble than the pay is worth. My wife has a good job, a sec onds income would be nice, but we don't really need the income, though my ego definitely wants that, and so much else that isn't comparable with having PTSD and a mystery disease. Part of the reason I stay in is the result of the PTSD that got me to see the therapist, but a lot of it is that I'm just scared of encountering mold, bread, diesel, pot smoke, etc. and ending a perfectly respectable day with an unwanted trip to the ER. Sure, at this point that might be a perfectly respectable second reason to have PTSD, but my therapist started pressuring me to see an allergist, in the hope I might get allergy shots and just end up with less risks to worry about.

My wife also finally saw me pass out, on Christmas morning no less, and what she described was textbook for a seizure. This is the first time I have gotten a clear description of what it looks like when I am out. My doctor gave me referrals to both an allergist and a neurologist.

So, just a couple days ago, I went to the allergist. What he told me has me absolutely shocked and confused. The allergy tests he did were almost all negatives and nothing that was positive was really, really strong positive. What he told me is that it's probably my nervouse system that does all this weird stuff, even actually triggering off stuff like mold, yeast, diesel, perfume, etc. much as if it were an allergy, but just neuro, not an allergy.

It really sounded like this allergyst didn't have much real information. He is an allergist though, not a neurologist. I do have a consult with the latter coming up, thanks to the Christmas seizure thing.

All the allergyst really told me was that the condition he thinks my nervouse system has usually gets worse over time and that I need to keep avoiding all this stuff, which feels like half the world, to try to minimize how fast things get worse. On one hand I'm actually more glad than I can express to have somebody just finally say they have heard of other people living like I do, but I'm also just stumped and confused because this is absolutely the first I have heard of this. I'm also scared of this getting worse and sad to still get told nobody can actually make my situation work any better. Has anyone else on here heard of this condition?

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Quick Tip Thursday: New Diets Need Medical Consultation

It's a new year and many of us are making lifestyle changes, including our diets. You have many options when it comes to diet changes, but you should do your due diligence before making a decision:

Before beginning a new diet to manage diabetes, make sure it is compatible with your individual healthcare needs. You should take into consideration any allergies or food intolerances you may have, as well as treatment-related conditions that require restriction or avoidance of certain foods.

Having experienced devastating health consequences from not listening to medical professionals when I started a new diet 4 years ago, I urge you to take heed and get started in the right way. 💙

#Diabetes #DiabetesType1 #DiabetesType2 #lada #mody #EatingDisorders #ChronicIllness #MightyTogether

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