Mixed Connective Tissue Disease (MCTD)

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Mixed Connective Tissue Disease (MCTD)
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I'm new here!

Hi, my name is UnpredictableRobin5. I'm here because I have been diagnosed with Mixed Connective Tissue Disease and Small Fiber Neuropathy along with a host of the "regular" things.

#MightyTogether

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I'm new here!

Hi, my name is Danicole1103. I'm here because ive been diagnosed with mctd, I have three little girls and a failing partnership. Im looking to offer any advice or help that i am capable. I hope I find peace in doing so and a family that understands me finally.

#MightyTogether #Migraine #Depression #Anxiety

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I'm new here!

Hi, my name is Warrioress1109. I'm here because I'd like to know anyone can offer advice on how to get an appointment with a physician specializing in MS. I've not been diagnosed with MS, nor has it ever been suggested to. I've been suffering with a multitude of increasingly debilitating illnesses and symptoms for over 30 years now. Seen by a long list of specialists. Tests, procedures, medications...targeted to a specific complaint. None of the neurology, rheumatology or ortho specialists have/are taking my comprehensive medical history into account. Which I believe is why existing and new symptoms have gotten worse over the years. In doing research on my own, I found that all of my symptoms & ilnesses have been seen in persons diagnosed with MS - in all or in part. I'd like to find out or rule out MS as a cause.

#MightyTogether #Anxiety #Depression #Fibromyalgia #EatingDisorder #Osteoporosis #Uveitis #dry eye #RaynaudsPhenomenon #BackPain #CarpalTunnelSyndrome #Vertigo #MixedConnectiveTissueDiseaseMCTD

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Zen 🧘‍♀️

Went home unbelievably nauseous with a migraine since I opened my eyes and I’ve been having a heck of a couple weeks. Yet getting to enjoy this - zen - my GSD girls - nature - a book - quite . Did I mention it’s 75 with a slight breeze blue sky’s and suns out. Ideal for me. #MixedConnectiveTissueDiseaseMCTD #MentalHealth #RheumatoidArthritis #AutonomicDysfunction #ADHD #Anxiety #ChronicFatigue #RaynaudsPhenomenon

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Mirror

Better at giving good advice than taking it. How can I naturally give sound advice , but I have a hard time using my own advice to help myself . Why do my words tend to help others but it just goes in and out a ear when it comes to me. #depresison #MentalHealth #AutonomicDysfunction #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #Anxiety

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Off Switch

Anyone know where the off switch is ?! Brain just keeps going and going it’s Friday afternoon (530pm) and I’m still wound tight - sitting out in nature for the last hour on my swing . Trying to settle . Where is that dang switch ? #MentalHealth #Anxiety #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #AutonomicDysfunction

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Lane Issues

Guidence needed: how to handle when someone asks you to stay in your lane when the only reason you feel a compulsion to act is because someone else is falling flat on there responsabies. So you agree shrink yourself (which triggers a childhood traums of always having to be presentable and on your A game but blend into the background and try not to be noticed) . As you watch things catch fire because your not stepping in to fix it. I know i am at fault - what to do. In my head its helping and being a team player.
There head im over stepping. Yet when i step back im just asked a million questions and being asked to give them validation on there decision. Its dumb. Why do i need to shrink myself - to make them feel valid but still have to hold there hand. If i decline im being petty and moody. What people don’t see is I’ve already shrunk myself due to medical I am not at the full capacity I once used to be. Sorry a bit off topic from your great post I read - #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #MentalHealth #AutonomicDysfunction #Anxiety #ChronicFatigue

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Cracked

Feeling …. Exactly that nothing . Have an inevitable cloud that’s been hanging around for the last couple of years. Getting harder to see the light in the lining. Stuck. Social life is non existent. Relationship is like a rock stuck in a stream. Work is driving me insane- not the work load but the people. Major communication issues in the place and my personality with my drive does not function well in the environment. Therapy helps some but spend more time talking about others than my own issues. Processing and handling things is an extreme high and I get worked up or it’s no existent and I’ve lost the ability to care. Body is the same , different days different pains . #MentalHealth #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #AutonomicDysfunction #ChronicFatigue #Anxiety #DepressiveDisorders #RheumatoidArthritis

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Realization

I’ve come to the realization that I’m going to need to up my therapy sessions from bi weekly to weekly. My insurance with cover it thankfully .

I started therapy to work on healing my inner child that needless to say wasn’t great time for me . That of what I remember. Mind you I can’t remember earlier than 15 and even what I remember from 15 to current is splotchy at best. Lots of blacked out moments . I see it in photos don’t recall it etc etc .

Then when I get there lately my current life I am living is becoming of subject. To be honest I think I’ve talked more about the gray hairs a 16 almost 17 year old step daughter is giving me and the household .

I’m not even sure what I’m working on at this point besides decompressing .

Trying to pull myself out of this stagnet rut I’m in . There’s no order .

#MentalHealth #Anxiety #MixedConnectiveTissueDiseaseMCTD #ADHD #RaynaudsPhenomenon #AutonomicDysfunction #POTS #Depression #RheumatoidArthritis

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