Mixed Connective Tissue Disease (MCTD)

Here it goes y’all. I have been feeling so defeated and down lately. My husband switched our insurance with his work from their hmo to a crazy hmn (I have never heard of this type) and no one is covered. I lost the ability to see my complex care internal medicine doctor who took care of *everything* for me.

So in an attempt to find resources to help all of my laundry list of illnesses, I started with a rheumatologist who supposedly helps my mixed connective tissue disease according to Dr. Google.

Spoiler, he did not and basically told me I need to find a functional medicine doctor who prescribes traditional medicines and takes my insurance, a neurologist, a endocrinologist and a new primary care doctor “to start”, his words not mine. Also I have to continue with the new heart doctor who also is referring me to a dysautonomia specialist because it is above his comfort level of treatment he said. He can try but he’d feel better sending me down town. I can no longer drive fyi.

All of this with my new crazy insurance who does not cover even a box of tissues for these stress tears that they’re causing. My husband promised he’d help try and coordinate all of these new crazy doctors I need but this was nearly two weeks ago and nothing has happened. I’ve been trying to dig and dig for a functional medicine doctor who treats whole body and not “gut health” only type things or box o’ vitamins. It’s just so gimmicky. #Depression #Fibromyalgia #Dysautonomia #AutoimmuneThyroidDisease #MentalHealth #LymeDisease #Anxiety #MixedConnectiveTissueDiseaseMCTD

Hi, my name is UnpredictableRobin5. I'm here because I have been diagnosed with Mixed Connective Tissue Disease and Small Fiber Neuropathy along with a host of the "regular" things.

#MightyTogether

Hi, my name is Danicole1103. I'm here because ive been diagnosed with mctd, I have three little girls and a failing partnership. Im looking to offer any advice or help that i am capable. I hope I find peace in doing so and a family that understands me finally.

#MightyTogether #Migraine #Depression #Anxiety

Hi, my name is Warrioress1109. I'm here because I'd like to know anyone can offer advice on how to get an appointment with a physician specializing in MS. I've not been diagnosed with MS, nor has it ever been suggested to. I've been suffering with a multitude of increasingly debilitating illnesses and symptoms for over 30 years now. Seen by a long list of specialists. Tests, procedures, medications...targeted to a specific complaint. None of the neurology, rheumatology or ortho specialists have/are taking my comprehensive medical history into account. Which I believe is why existing and new symptoms have gotten worse over the years. In doing research on my own, I found that all of my symptoms & ilnesses have been seen in persons diagnosed with MS - in all or in part. I'd like to find out or rule out MS as a cause.

#MightyTogether #Anxiety #Depression #Fibromyalgia #EatingDisorder #Osteoporosis #Uveitis #dry eye #RaynaudsPhenomenon #BackPain #CarpalTunnelSyndrome #Vertigo #MixedConnectiveTissueDiseaseMCTD

Hi, my name is LinCraft2. I'm here because

#MightyTogether #MultipleAutoimmuneSyndrome #MixedConnectiveTissueDiseaseMCTD

Better at giving good advice than taking it. How can I naturally give sound advice , but I have a hard time using my own advice to help myself . Why do my words tend to help others but it just goes in and out a ear when it comes to me. #depresison #MentalHealth #AutonomicDysfunction #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #Anxiety

Anyone know where the off switch is ?! Brain just keeps going and going it’s Friday afternoon (530pm) and I’m still wound tight - sitting out in nature for the last hour on my swing . Trying to settle . Where is that dang switch ? #MentalHealth #Anxiety #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #AutonomicDysfunction

Guidence needed: how to handle when someone asks you to stay in your lane when the only reason you feel a compulsion to act is because someone else is falling flat on there responsabies. So you agree shrink yourself (which triggers a childhood traums of always having to be presentable and on your A game but blend into the background and try not to be noticed) . As you watch things catch fire because your not stepping in to fix it. I know i am at fault - what to do. In my head its helping and being a team player.
There head im over stepping. Yet when i step back im just asked a million questions and being asked to give them validation on there decision. Its dumb. Why do i need to shrink myself - to make them feel valid but still have to hold there hand. If i decline im being petty and moody. What people don’t see is I’ve already shrunk myself due to medical I am not at the full capacity I once used to be. Sorry a bit off topic from your great post I read - #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #MentalHealth #AutonomicDysfunction #Anxiety #ChronicFatigue

Feeling …. Exactly that nothing . Have an inevitable cloud that’s been hanging around for the last couple of years. Getting harder to see the light in the lining. Stuck. Social life is non existent. Relationship is like a rock stuck in a stream. Work is driving me insane- not the work load but the people. Major communication issues in the place and my personality with my drive does not function well in the environment. Therapy helps some but spend more time talking about others than my own issues. Processing and handling things is an extreme high and I get worked up or it’s no existent and I’ve lost the ability to care. Body is the same , different days different pains . #MentalHealth #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #AutonomicDysfunction #ChronicFatigue #Anxiety #DepressiveDisorders #RheumatoidArthritis