mononucleosis

Hi, my name is karina, new here but looking for community to connect with - been struggling with chronic mono for 10 years and very heavily this year. Didn’t know it was the same EBV I had in high school until causing me many different sicknesses (mono, strep, tonsillitis, viral infections) until this year so I’m finally wrapping my head around having a chronic illness. Have had mono 4 times this year and it’s been very hard mentally & physically. Also living with chronic back pain with no sign of any answer why yet for almost 4 years. Lots of love to all those in a similar boat, or any boat at all!

#MightyTogether #ChronicMono #ChronicPain #mononucleosis #EBV #ChronicEpsteinBarrVirus #ChronicActiveEpsteinBarrVirus

I haven’t been sick for awhile. Obviously some would say I’m constantly sick because I have a chronic illness. But that’s not necessarily true. I’m not sick, I just have a variety of wacky symptoms. I know that I have those symptoms and I can control them to a certain extent. Based off of how much I take care of myself and just depending on the day, I can make my symptoms less debilitating. With an illness such as the common cold, mono, strep throat, the flu, etc. I don’t necessarily have control over that. Today for the first time in a really long time I was stuck in bed actually sick. Sore throat, headache, fatigue, feeling like I was hit with a bus. It was annoying to say the least. I couldn’t do anything. I was stuck in bed all day, but not by choice. I’m not sure if anyone else understands the difference between the two but I think I might go crazy over the next little bit during recovery. Any tips on not going stir crazy in bed?
#PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #ChronicIllness #sick #Spoonie #SpoonTheory #Fatigue #ChronicFatigue #mononucleosis #BedriddenForNow #stuckinbed #stircrazy #Headache #sorethroat #control

#EpsteinbarrVirus #mononucleosis #ChronicFatigueSyndrome #sleepingbeauty

So I’m fairly sure I contracted my chronic fatigue syndrome as a result of the underlying Epstein Barr virus in my system after a bad case of mono when I was 19. I have other symptoms still but my main problematic symptom that gets in the way of me hiding it and appearing to live “normally” is the fact that no matter what my health is like or how stable my weeks are, I still have one or two days each week where my body NEEDS an excess amount of consecutive sleep hours. It feels like my body and mind must be trying to “catch up” with this extended period of hibernation, even though I haven’t done anything exertion all all week nor have I missed sleep each night. just no matter what I always need a day or two each week where I sleep for between 15-18 hrs (with no drugs or sleep meds or anything that would seem to make sense). It’s a very deep sleep that I just don’t wake up from easily, and if I do wake up once I’m half asleep still and I go right back to sleep as if I were just sleeping through a normal full night when I’m reality it’s like an early night and half of the next day followed by another early night and another 12-16 hr. sleep again. Anyone else go through this each week or is this abnormal even for chronic fatigue syndrome?