Myelodysplastic Syndromes - MDS

I had my second reblozyl injection. Y'all, I am laid out. I can't. Nada.

I need to go grocery shopping, do laundry, put gas in my car to get to work next week. I need to email parents, post assignments online, and lesson plan for the week after. #distra

And yes...as the picture indicates, I don't like asking for help. It's not that I don't appreciate it or are grateful when it comes. I literally don't know how to ask.

These are the moments I can't stand being sick...when I need to hustle but my body physically can't. I see these beautiful stories of other teachers with cancers teaching from their hospital beds and I really, really don't know how they do it. #MyelodysplasticSyndromesMDS #RareDiseases #BloodCancers #DistractMe

This is my own class motto: This year, we are going to do common things in uncommon ways.

I can't tell you how scared I was when the news alert popped on my phone that said we had new covid cases in the triple digits. Uncommon indeed. Reflecting on my decision to continue teaching is complicated. My health puts me into a very dangerous, very narrow category of people who would struggle with fighting this disease; my financial situation requires that I work. I haven't even met my students yet, but I'm anxious for their safety too.

So...I'm going to try to focus on what I can control. I can control the cleanliness of my classroom and the protocols in place there. I can control my transmission risk by not going out to other stores, restaurants, places when not absolutely necessary.

I'm wishing all teachers and those involved in education (looking at you PTTs, PPTs, EAs, TAs, office/clerical staff, and custodial staff and anyone else I've missed) a safe new school year. #RareDisease #ChronicIllness #Anxiety #MyelodysplasticSyndromesMDS

This came in my dog's BarkBox today and, well...obviously it was meant for me and not my dog.

If people every wonder what teachers could possibly do during the summer, I spent most of my day cleaning out closets that had old curriculum from before I graduated high school (while back y'all) and sitting through professional development that could bore you to tears, but is required.

So yeah, today was not a day I could give my all. Today only got my some. Tomorrow's looking that way too.

#MyelodysplasticSyndromesMDS #Spoonie #ChronicIllness #COVID19 #sendfunnies