For almost two years I have been battling this decision on my own. The decision of having a intrathecal pain pump implanted after being referred from my GI. I would silently make my list of my why and why nots, pros and cons of having the intrathecal pain pump implanted into my young body. As a healthcare professional, fortunately I was tuned into more than just the generic side effects the surgeon initially rumbled off to me. I have taken two years to make this decision. I felt out the opinions of others despite that this is my pain, my fight, my body. Their opinions made clear the misconceptions of the pain pump was going to take significant education. I made the decision it would really be worth it if I had a successful trial.
I’m currently scheduled August 6, at 28 years young. It’s scary. In so many ways. I could list a hundred scary reasons why I didn’t want to do this initially and I took two years to say yes. But I can tell you the 1 reason I said yes... I want my quality of life back, and the chance may be there with this machine.
While my trial was successful, sometimes the pump fails. I’m praying I’m successful as well and can experience the life changing quality of life that I have seen in other patients that have received the pump.
This journey is terrifying. I’m scared as hell. The risks are high. I have two children... what if something happens?
I’m scared. But I’m having it placed.