Peripheral Neuropathy

Some mornings the pain is so bad I just want it to end but I know the only way it will end is when I die. Rare disease with no cure or treatment a genetic mutation that slowly takes out all your muscles. You don't think every muscle in your body can be affected it's sometimes unbelievable but this gene MYH7 is responsible for instructing muscle structure for skeletal muscles and cardiac muscle. I feel so trapped in 58 so who cares I guess they are finally noticing congenital heart failure in the genetic sense in adults. If they do find a cure it will be too late especially since funding for research is being taken away .#OCD #BPD #RareDisease #ChronicPain #MuscularDystrophy ##MDD #DegenerativeDiscDisease #PeripheralNeuropathy #

I know many people have a wide variety of health and mental onditions on this forum who turn to the Mighty to get some insight.

Many times I go onto the Mighty for these same reasons and more and I like welcoming new members because I was shown the same kindness and compassion.

I have to tell you that today someone on this forum that I follow, said that he appreciates my comments and to keep fighting the good fight. It really hit me hard you know, I'm so isolated because of my health and these words today were so kind and inclusive.

You see sometimes it's a few kind words that can stop someone from giving up on life it's good we lift our fellow man when he or she is in a struggle.☀️🙂💙##BPD #OCD #ChronicPain #Muscular dystrophy #Rare disease #MDD #PeripheralNeuropathy #myoconfritis #loely

I had a total crap Sunday. Slept from 6 pm until 7 am this morning. Only woke up bc the wife made breakfast before she went to work. I hate that she does everything and I get one day a week where I feel like I have contributed something around the house/yard. I am extremely tired and frustrated. I hope I can work my 3 days this week. #RelapsingPolychondritis #ChronicFatigue #PsoriaticArthritis #Psoriasis #PeripheralNeuropathy

Hi, my name is oldjc. I've recently been diagnosed with Relapsing Polychondritis. I have had the other 3 for 20 plus years.
#PeripheralNeuropathy #PsoriaticArthritis #RelapsingPolychondritis #Psoriasis

I went to urgent care yesterday as I had a very different #chronicmigraine come on suddenly along with additional visual pain and reduced vision. My regular left sided daily chronic migraine with many sensory issues in my head, face and body, still existed. I also have #HNPP in my limbs, a peripheral neuropathy. I was very weak, shaking in my limbs and tired, much more so than usual. From the tests results I received an unexpected result. I had likely had a TIA, a mini stroke. The carotid artery in my left neck was extremely clogged with plaque. I have to be assessed by the neurologist in the TIA clinic on Tuesday. ??? Has anyone else been to a mini stroke clinic? It would be nice to have an idea about what to expect. Thanks. ☺️

Hi, my name is MissBallerina37. I'm here because I would like to meet other people diagnosed with Peripheral Neuropathy (mine NOT due to Diabetic) to hear their stories and to share our experiences and share advice.

#MightyTogether #PeripheralNeuropathy