pheo

For the first time ever, I am premiering a video. This video is more important than I can put into words! You, my sweet friend are invited to my Pheochromocytoma Attacks and More watch party on YouTube: Monday May 17th at 10 am est. Be sure to bring a friend and share the link!!! Don’t forget your party gear: a drink, fun snack, and cute and comfy outfit.

An amazing YouTube friend (subscriber), recently asked what happens during a Pheochromocytoma attack? I wanted to sit down to explain a little more, what is a Pheochromocytoma? I also talk a bit about the Adrenal glands and Adrenal Insufficiency. What is an attack? I go into as many symptoms as I can with as much detail as possible (with my foggy brain). There are tons of resources in the description for curious minds, care givers, patients, or anyone with a heartbeat.

www.youtube.com/watch

#Awareness #Cancer #RareDisease #adrenalgland #adrenalinsufficency #addisions #ButYouDontLookSick #InvisibleIllness #RareCancer #MedicallyComplex #MentalHealth #MentalIllness #mystory #symptoms #ChronicPain #attacks #Pheochromocytoma #pheo #NETCancer #NeuroendocrineTumor #Tumors #Pain #HighBloodPressure #AdrenalGlandCancer #AdrenalGlandTumor #Caregiver #Education #notalone #Hope #ChronicallyHopeful

In 2014 I presented with an abnormal heartbeat, superventricular tachycardia (SVT), in January 2015 I had a catheter ablation and expected life to go on as normal... I was sadly mistaken. Later that year I found out I had a rare adrenal tumor, pheochromocytoma, I had it removed along with my left adrenal in May 2016. While struggling with this tumor I also found out that I have hypermobility Ehler's Danlos Syndrome (hEDS), a rare (or underdiagnosed) connective tissue disease. Shortly after my tumor was removed I was then also diagnosed with Mast Cell activation syndrome (MCAS) and Postual orthostatic tachycardia syndrome (POTS). Life has not been easy but I feel so blessed to have discovered the illnesses I have as I was able to pave the way for my mom and my sister who also struggle with hEDS and POTS.

#RareAndMighty #HEDS #POTS #pheo #RareDiseaseDay #zebrawarrior #blessedtwinmommy2018