ChronicallyHopeful

Join the Conversation on
30 people
0 stories
3 posts
Explore Our Newsletters
What's New in
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

The picture says it all #CheckInWithMe

I wish there was more I could say other than I am frustratingly the same. I do everything I can and nothing has changed. IIH is unrelenting and as I’ve said before, it’s basically a waiting game for now. Only the waiting game is not a very fun game. It’s actually quite painful. And exhausting. And lonely.

The only positive thing I can add is I did purchase this crewneck for myself and I can’t wait to get it. Any Harry Potter fans out there?

Anyway, I wish I had more to add to this, but I want to say I’m still hopeful for the future. There is hope for remission for me. I’m not going to be stuck at home for the rest of my life, and I truly believe that. It might not be exactly be the timeline I expected, but I believe in the life I’ve been dreaming of.

#IIH #IdiopathicIntracranialHypertension #IntracranialHypertension #IH #ChronicDailyHeadache #ChronicIllness #ChronicFatigue #chronicallyill #chronicallyillteen #chronicallymighty #RareDisease #ChronicallyHopeful #CheckInWithMe #HarryPotter

1 reaction 3 comments
Post

You Are Invited!

For the first time ever, I am premiering a video. This video is more important than I can put into words! You, my sweet friend are invited to my Pheochromocytoma Attacks and More watch party on YouTube: Monday May 17th at 10 am est. Be sure to bring a friend and share the link!!! Don’t forget your party gear: a drink, fun snack, and cute and comfy outfit.

An amazing YouTube friend (subscriber), recently asked what happens during a Pheochromocytoma attack? I wanted to sit down to explain a little more, what is a Pheochromocytoma? I also talk a bit about the Adrenal glands and Adrenal Insufficiency. What is an attack? I go into as many symptoms as I can with as much detail as possible (with my foggy brain). There are tons of resources in the description for curious minds, care givers, patients, or anyone with a heartbeat.

www.youtube.com/watch

#Awareness #Cancer #RareDisease #adrenalgland #adrenalinsufficency #addisions #ButYouDontLookSick #InvisibleIllness #RareCancer #MedicallyComplex #MentalHealth #MentalIllness #mystory #symptoms #ChronicPain #attacks #Pheochromocytoma #pheo #NETCancer #NeuroendocrineTumor #Tumors #Pain #HighBloodPressure #AdrenalGlandCancer #AdrenalGlandTumor #Caregiver #Education #notalone #Hope #ChronicallyHopeful

1 reaction 1 comment
Post
See full photo

#SpringWillCome #ChronicallyHopeful

I took this photo the other day of the peach tree blossoms in our backyard. I think they're so beautiful.

7 comments