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Does anyone here have #dysarthria I need an understanding friend to talk to who will understand my #RareDisease
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rarediseaseawarenes
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Disorder: The Rare Disease Film Festival
Hi All,
We just put tickets on sale for Disorder: The Rare Disease Film Festival. November 9 and 10 in San Francisco. We'll have over 50 films. www.rarediseasefilmfestival.com/attend2019
I hope you can join us there.
#rarediseaseawarenes
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September 12, 2019
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To the person who feels hopeless on their diagnosis journey.
I see you.
I have been you.
I am sorry you feel lost.
Not having a name to put to the thing that hinders your bodies ability to function is menacing.
But don’t give up.
It may not be today, or tomorrow, or this year,
But if you are persistent and advocate for yourself,
Someday you will meet the right doctor that will give you the diagnosis that you have been yearning and praying for.
The diagnosis that makes everything else make sense.
So just keep keepin’ on.
Because I see you,
Because I have been you,
and because no one deserves to feel hopeless.
The is light at the end of the diagnosis journey.
❤️🦓
#MightyPoets #EhlersDanlosSyndrome #EhlersDanlosSociety #RareDisease #GeneticDisorder #LivingWithPOTS #RaynaudsPhenomenon #ChronicPain #Osteoarthritis
#ChiariMalformation #ArnoldChiariMalformation #PosturalOrthostaticTachycardiaSyndrome #MCAS #MCAD #MastCellActivationDisorder #MastCellDisease #SpinaBifida #TetheredSpinalCordSyndrome #TetheredSpinalCord #rarediseaseawarenes #Dysautonomia #ChronicIllness #Spoonie
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Does anyone here have a rare disease? Isf so it would be great to talk to you #BeYourself #RareDisease #eosiniphillic #Disability #rarediseaseawarenes
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