So, I set goals back in January to get out of my wheelchair this year and get rid of my picc line. It's only April, so I still have two thirds of a year left to do that. My current situation is that any time I stand on my legs I get pain in my shin that feels like my bone is bursting. X-rays haven't shown anything yet, but my doctor fears it might be a stress fracture forming. So I'm having to listen to my body, even if that means using the wheelchair 24/7. As for getting rid of the picc line. It's going to be a long process. My body has depended on fluids, electrolytes, medicines coming through a vein for the past four years. Now I have to slowly wean from those things because my body has to relearn getting nourishment from the things I eat and drink. A home health nurse draws my blood every other week. We base my treatment each week on how i feel and what my labs show.
I tried reconnecting with my community. It didn't go so well. One family showed up for my family game night. Although I was disappointed that more people didn't come, I made the most of the time I had with those who did come. I also started my craft group back up. Three people showed up for it. We did enjoy being together working on a crochet project together.
Things might not be going the way I want them to go, but I'm a warrior and I refuse to give up or back down. I'll just try again and if it doesn't work out, I'll make changes or try something different. I've learned that alternatives always exist.
#52SmallThings #Update #Reconnecting #NeverGiveUp #chronicillnesswarrior #adapting