New member here
I am experiencing a huge flare that seems to haunt me every day, as soon as I am able to sleep and as soon as I wake up.
My pain levels recently have a baseline of 7.5 out of 10, with surges of pain 8 to 9.
I also suffer from Occipital Neuralgia and that has also been acting up alongside my fibro flares and it takes a toll.
I am fearful that I will end up quitting my current job because I can't function as I am rn.
Insurance takes time to process my procedures that (may) help. Unable to use my left hand as I normally would be able to and intense nausea and headaches keep me bedridden when I'm not pushing my body to make food/eat food, use bathroom, etc.
All the daily things I normally can do before the "relaspe" in my chronic illnesses seem to go poof and is 10x times more difficult than before.
The vaccine seemed to affect my physical state and I will be talking with HR at my job today over the phone, so fingers crossed, but honestly I've made my peace if worse comes to worse with it.
**But I'm not encouraging anyone not to get the vaccine btw.
I just needed to get this out. **
I cry almost everyday/every other day from the pain, but doing my best not to give up and keep my body moving, whether it is floating in the pool and praying this cool body of water helps or starting off with seated yoga because my hands and arms are hurting too much to do the normal yoga that I do.
Even though it hurts more than my words can describe, I refuse to let myself give up on my body like I did when my fibromyalgia first fully "set in". I lost alot of mobility back then and it took a long while to even get to half the active I used to be.
My doctor often says, like "You're only 27, so young. You have some much going on."
And I reply in my head at least,
"Well, chronic illnesses don't discriminate against ages, more often than not. I've been through a lot in these last 10 years of my diagnostic journey. It was like we found one part of the puzzle and then we kept finding extra pieces that don't belong, yet are here to stay."
In these trying times, I just want to wish good things, especially for people who deal with chronic pain or illness. 💜