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Niagara Falls Lights Up for DES (Diethylstilbestrol) Awareness Week

With special thanks to the Niagara Falls Illumination Board, #niagarafalls will illuminate Orange, Red, and Black for DES Awareness Week on Monday, April 26, 2021, at 10 pm EST for fifteen minutes. Six other locations in America will also illuminate this week.

Do you know about the #DES #tragedy ? For decades, millions of pregnant women were given the synthetic #estrogen, DES (Diethylstilbestrol), thereby exposing them and their future offspring to a teratogenic, carcinogenic mutagen. Adverse effects are now appearing in the fourth generation after these genetic mutations, including vaginal #clearcelladenocarcinoma in girls under ten. Major issues related to the reproductive system and fertility, causing excessive miscarriages and birth defects. Serious #cardiac issues are common.

At least 200 separate #genes are impacted by #diethylstilbestrolexposure. #Bigpharma and the #fda does not want this publicly discussed. As such, a group of DES Exposed women led by Daphne Grant, teamed up to create an illumination awareness campaign around the cause to make the noise they don’t want us to make! We need research, education, better health care... we need to save lives! Too many have died too young due to #DESExposure . Do you know if you or anyone in your family is DES Exposed?

#DrugDEvaStation #DESSyndrome #Diethylstilbestrol #EndocrineDisruptor #Cancer #dna #heart #GenderDysphoria #trans #nonbinary #DESSyndrome #DESInfo #DESAwareness #DESAwarenessWeek

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Price Gauging the Sick and Disabled #Fibromyalgia #AutoimmuneDisease #Cancer #RheumatoidArthritis

1. I have insurance. I have a job.
2. The majority of my lifespan, I have been a healthy individual who pays my taxes, volunteer my services to the less fortunate and contributes to society.
3. Unfortunately at the age of 38, I have been battling fibromyalgia and arthritis. I have three kids, a husband, a car, a house and student loan payments which have been denied for forgiveness (Note: 98% of public service employees were denied this year alone-whole other issue on another day).
4. Big Pharma needs to STOP abusing their power and WE the people need to raise our voices about costs for medication.
5. I use the GoodRx app and got both scripts filled at Costco for $35. No way could I afford $343 a month for two medications which doesn’t include the Epsom salts, turmeric, CBD oil, gluten free diet that I am trying to naturally beat/manage this beast of a disease.
6. I’m fortunate to have options. But what about rural America or others who don’t have transportation?
7. Change needs to happen or you or someone you know will be financially crippled by greed and corruption. Why are Americans allowing price gauging to continue to destroy families and people lose their quality of life?
8. No one should have to get a GoFundMe campaign for their medical bills and medication. Two of my friends have children battling cancer. They should not have to worry about how they are going to pay to save their child’s life or whether or not they can afford their medication.
9. Rant over! Change needs to happen now.
10. Remember to vote. #Bigpharma #Fibromyalgia #Cancer #Arthritis #changeiscoming

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One Magic Pill

One magic pill.
We’ve all wished it was real. Something we could take to cure us. Make us normal. Take away all the bad things and make us whole again.
Psychiatry, the idea of getting on medication, is often a tough choice for some of us and an easy one for other. Whatever it is for, the journey is not the same. Some have luck and others don’t.
I like to think of it as one big guessing game.
As in other fields of medicine, you have a disease process and a course of treatment. In most cases it’s that simple. But with mental illness, it’s not. It’s far less simple than that.
You have all these psychiatric medications and you get to see your psychiatrist once a month. So, once a month you try a medication. Then the fun part. Some of these medications take weeks to work, so the wait. Then the side effects. On the other hand, they can completely not work all together or even worse do the complete opposite and make your symptoms ten times worse. So, next month, back to the drawing board.
Suppose it does work, but then it doesn’t take all the symptoms away. Then you have to start the cycle over again. You have to add another medication.
Then, finally you find the right combination that works. Everything is going fine for a few years and then BAM. You need to adjust the dosage or the medications have stopped working all together. Back to the drawing board. Back to the cycle.
Like, picking out of a hat.
These medications are so abstract and have so many applications in how they treat various symptoms. The lists go on.
And one day you wake up and you realize, you aren’t just a person seeking treatment for your mental illness but you’ve become a slave to these medications, a product of the pharmaceutical companies.
I’m not saying that taking medication for is bad. Absolutely not. I have no right to. I am on numerous medications just to be a functioning member of society. But, do I wish I could remember what it was like to handle it on my own or learn to handle it on my own. Yes, I do. Do I hate carrying around 6 pill bottles with me, when I go out? Yes. But, I’ve learned to have no shame in taking out my meds when needed because who the f*** cares what they think. I need them. I need to take care of myself.
But, oh, how I do wish, that there was one magic pill...
#MentalIllness #MentalHealth #PsychiatricMedication #AnxietyMedication #Antipsychotics #MedicatedAndMighty #BPD #PharmaceuticalCompanies #Bigpharma #Psychmeds #bpdandmeds