Brachial Plexus Injuries

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Brachial Plexus Injuries
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    Community Voices

    How do you feel about “that happens to everyone?” #ADHD #neurodivergent

    I was recently in an ADHD Facebook group and venting about how tough things have been lately.

    I got a lot of messages from well-meaning people saying “oh, it’s ok, it happens to your neurotypical coworkers too.”

    I know these comments come from a good place, but they make me feel awful.

    For me, the way it makes me feel is “well, if everyone else struggles with this too and they’re staying afloat, what’s my excuse?”

    Similarly, I have a #BrachialPlexusInjuries that causes my left hand to not work well. I don’t expect myself to type as well as I did before. I don’t think anyone would. For me, it helps to remind myself “hey, of course I’m struggling, I’ve got these wonky things wrong with me, I can’t compare to others.”

    It’s the same with my #ADHD as well. I like reminding myself “hey, I’m playing with one hand tied behind my back, of course I’m struggling sometimes.”

    How do others feel about this?

    #ADHDInGirls #Neurodiversity #Disability

    7 people are talking about this
    Community Voices

    Just need to vent a little #ChronicPain

    Why am I like this?

    My #nervepain is flared up. It’s not horrible, but it’s distracting and at the point where it’s affecting me.

    But in a way I did it to myself. It had been getting worse anyway, but I pushed myself too hard at the gym and now it’s bad.

    The thing is, it wasn’t an accident. I knew I was pushing myself too hard. I knew the smart thing would be to stop and rest. But I forced myself to do it. In part because I was having a good time. I like seeing how strong I’m becoming. But part of it was that I don’t want to use my chronic pain/permanent injury as an excuse. I would feel like a quitter if I let myself stop. I would feel like I was taking the easy way out and like my arm was a limitation.

    I wish I could learn to accept myself and my limitations. I wish I could learn to see myself as just as worthy even if I let myself quit when it’s beneficial to me.

    I also wish I could take a sick day without feeling weak.

    #BrachialPlexusInjuries #Chronicpainwarrior #MentalHealth

    8 people are talking about this
    Community Voices

    What to call my #ChronicPain issue?

    I have a chronic pain issue with my left arm. The gist of it is that my shoulder is very tight. That sends #nervepain down my hand. There isn’t really a diagnosis on it, but it’s a form of a #BrachialPlexusInjuries

    Anyway, I don’t know how to describe it. It’s not really an injury. That gives the implication that it was caused by one specific thing and that it’s temporary.

    But it’s not truly a #Disability . It slows me down. My typing is a little slower. It’s tough to grip something too long. I work out a lot and my left side is measurably worse than my right. But there’s nothing I can’t do because of it. So I feel like I can’t use the term disability to describe it. I also know people who know me would be floored if I called myself disabled by it because again I’m not. There’s nothing I can’t do.

    So what is it? It’s not even a fully diagnosed condition.

    5 people are talking about this
    Community Voices

    What advice do you have for nerve pain? I get some nerve pain in my hand because of a #BrachialPlexusInjuries It’s not very bad pain, but it sure is distracting.

    3 people are talking about this
    Community Voices

    Does anyone else have a “ranking” of what kind of pain is worse? #ChronicPain

    I have both muscle pain and nerve pain, and, personally, the nerve pain is worse even though the muscle pain is more severe. I just find nerve pain so distracting.

    Anyone else like this? #BackPain #BrachialPlexusInjuries

    11 people are talking about this
    Community Voices
    Community Voices
    Community Voices

    Anyone else lazy about #Selfcare

    I have #ChronicPain (#SpineProblem #BrachialPlexusInjuries and related stuff). For me, those things are made better by physical therapy exercises. Like, a lot better if I do it regularly over a long period of time.

    I just can’t get in the habit of doing it. I almost wish my bad hand were my right. If my bad hand were my dominant hand, it would motivate me to actually stop being so lazy.

    Anyone else struggle to do self care even if they know how important it is? I do have #ADHD so I know habits can be challenging. But maybe I’m just lazy?

    5 people are talking about this
    Community Voices

    How do you describe your health conditions?

    Between my #SpeechImpediment my #Scoliosis (technically it’s not that but similar) my #ADHD and other related stuff, I describe myself as “God did a science experiment when He made me and got interesting results.”

    When I describe my musculoskeletal system (wonky #SpineProblem #BrachialPlexusInjuries and #Nerve and joint pain #Jointpain ) I just say “my musculoskeletal system is a series of unfortunate events.”

    Anyone else have a fun/creative way to describe their wonky body/brain?

    1 person is talking about this
    P.L. Rohe
    P.L. Rohe @plrohe

    Netflix's 'Lucifer' Season 5 Features Character With a Limb Disability

    As a loyal “Lucifer” fan, I had been so excited to watch the show’s Season 5 (part 1) on Netflix… until I watched the first few minutes of episode 2, “Lucifer! Lucifer! Lucifer!” As the archangel Michael talks to himself in the mirror, we see his true nature, both physically and morally. Michael, it seems, is a modern-day Richard III, a worn-out caricature of a villain whose scoliosis and other physical differences are supposed to telegraph a corrupted internal nature. I see Michael’s arm hanging carefully to one side. I notice how Michael puts his jacket on with the affected arm first. I hear Lucifer talking about his brother with the “sloped shoulder.” I can’t focus on the plot anymore. All I can do is look for other clues about Michael’s arm in the way he carries himself and moves. Does Michael have what I think he does? Is that really where they are going? You see, I’m the mother of a 4-year-old child with an obstetric brachial plexus palsy (OBPI) — my daughter was permanently injured while she was being delivered. As a result, she has a paralyzed left arm and has undergone two surgeries, weekly therapy, dozens of braces and electronic stimulation therapy. The injury impacts her entire body — her balance, her breathing and her core strength. She carries her unaffected shoulder higher than the other. She started to develop scoliosis because of her condition. She puts on her jackets and shirts by putting the affected arm in its sleeve first. But maybe this isn’t what the showrunners plan. Maybe they have something else in mind for Michael. It’s just that I keep a close watch on arms. Most parents of children with OBPI do too. We know about legendary actor and jacket-flipper extraordinaire Martin Sheen and Super Bowl ring-wearing NFL player Adrian Clayborne. We look out for others who are like our kids, because OBPI is such a rare and stigmatized condition. Imagine explaining to a new acquaintance at a birthday party that your child was injured at birth, and that’s why she uses her mouth to open a gift bag. We were once stopped in a restaurant by another OBPI family because they “couldn’t help but notice…” We shared a lot of hugs and tears over chips and guac that evening. A good friend of mine was pulled aside at her son’s track meet when another OBPI family noticed “how he was carrying his arm.” Our children’s disability is sometimes easy to see, but hard to find in common with others. That’s why many OBPI families often have a sacred and almost immediate bond when they run into each other. That shared experience and support helps us to get through days when we experience overt discrimination, or the smaller, but also painful cuts that come from ignorance or lack of compassion in daily life. Many OBPI parents I know will tell you that it hurts most when our children pick up on how they are different from other kids or when our children are actively excluded from things other children get to do. For example, watching a dance class not adapt choreography so your child can fully participate, or hearing another little girl wouldn’t let Eva on the tire swing with her because Eva had a “bendy arm.” Children often want to know, why them? Whose fault was it? Why didn’t Mommy or Daddy stop the accident? If Mommy and Daddy are angry about the accident, does that mean that they are angry at their child? Mental health therapy can help to answer these questions and help parents deal proactively with the trauma of the birth accident. As parents of children with disabilities, we must therefore be especially careful in what we expose our children to as they grow. We seek out and show them disability-inclusive entertainment like “Llama, Llama” and “Paprika” (also on Netflix and frankly, great shows for any child to watch to encourage inclusiveness, understanding and compassion). We take care to introduce them to positive examples of people with limb differences doing amazing things. While Eva, at “4 and a half,” as she likes to remind me, is too young for “Lucifer” right now, there are many teens with limb differences who might be watching. I wonder what they think of Michael, and how Michael’s disability might make them feel when the whole world already tells teens to look a certain way to fit in. Show writers Ildy Modrovich and Joe Henderson haven’t explained yet why Michael has, in an Entertainment Weekly reporter’s ill-chosen words, “a lazy arm.” They do say they feel Michael will be a hero at the end of the story. I would simply ask that they consider everyone in their audience for their ultimate message. What has made “Lucifer” compelling entertainment from the beginning is the concept that good and evil are not so clearly defined by looks, stereotypes, or old-fashioned ideas. A demon can be a hero. The Devil himself can be a force for justice. I hope that Season 5, Part 2, will speak to all of our better angels, those with disabilities and those without.