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    Community Voices

    Anyone else lazy about #Selfcare

    I have #ChronicPain (#SpineProblem #BrachialPlexusInjuries and related stuff). For me, those things are made better by physical therapy exercises. Like, a lot better if I do it regularly over a long period of time.

    I just can’t get in the habit of doing it. I almost wish my bad hand were my right. If my bad hand were my dominant hand, it would motivate me to actually stop being so lazy.

    Anyone else struggle to do self care even if they know how important it is? I do have #ADHD so I know habits can be challenging. But maybe I’m just lazy?

    5 people are talking about this
    Community Voices

    How do you describe your health conditions?

    Between my #SpeechImpediment my #Scoliosis (technically it’s not that but similar) my #ADHD and other related stuff, I describe myself as “God did a science experiment when He made me and got interesting results.”

    When I describe my musculoskeletal system (wonky #SpineProblem #BrachialPlexusInjuries and #Nerve and joint pain #Jointpain ) I just say “my musculoskeletal system is a series of unfortunate events.”

    Anyone else have a fun/creative way to describe their wonky body/brain?

    1 person is talking about this
    Community Voices

    #ChronicPain and dumb decisions

    Guys I’m suffering, but it’s all my own fault.

    I have chronic #BackPain and some other musculoskeletal problems. My back had been mostly ok.

    Then yesterday I watched a movie lying on the floor. It felt so comfortable while I was doing it. I had some nice pillows. It was cozy.

    Then I stood up and my back ached. It was ok last night, but when I woke up in the morning I was in so much pain I considered calling in sick to work. I could barely change my clothes or walk to the kitchen to pack my lunch. I couldn’t bend over to grab the yogurt I wanted.

    My legs are on fire too because that’s how my spine problems work.

    I feel like the biggest idiot in the world. I know I have a #SpineProblem Why did I lie on the ground for a whole movie?

    The dumb thing is my #PhysicalTherapy exercises demand I lie on the floor, but there’s no way I can get down to the floor today.

    3 people are talking about this
    Community Voices

    My vertebrae are playing tricks on me

    So I had to have my spine realined by #ManualTherapy 4 times in the past 3 days due to #Hypermobility . Yesterday I had 5 vertebrae partially dislocated in the morning, and different 4 ones in the evening... The doctor said I'm doing everything right, and my lifestyle choices are ok. But all of this #Pain is just so annoying. I can't help but feel that I'm doing something wrong or moving weird or.. IDK. I couldn't work a single day this week, as I was so dizzy. Couldn't even walk straight. It totally looked like I was drunk in the middle of the day 🤦‍♀️ Apparently my brain was getting only ~70% of bloodflow. Now that my spine is aligned again, I still have #BrainFog . As I'm writing this, I heard another pop in my neck 😳#GoodPopOrBadPop ? I wanna do stuff and not be bored laying in bed not moving, but my body is just saying 'nope'. #EDS sucks.

    #CervicalSpineInstability #SpineProblem #EhlersDanlosSyndrome #dislocations #Subluxations #spinal subluxations

    3 people are talking about this
    Community Voices

    How to tell my parents about my health worries?

    I have had #ChronicPain for a while now. My  #BackPain and  #SpineProblem have caused pain in my legs and joints. That's all normal for me. I've recently been dealing with new symptoms, however, and that worries me.

    I want to see a doctor to look into whether these new symptoms could be signs of something new.

    Unfortunately, I'm still on my parents' insurance, so I would have to ask them before seeing a doctor. I don't want to freak my parents out for nothing, but I want to see a doctor.

    How can I ask them without worrying them? Is there a good gentle phrasing I could use?


    7 people are talking about this
    Community Voices
    Community Voices

    I overdid things yesterday. For some reason I felt really good and my pain levels weren’t out of control. But today, omg. I couldn’t move and I’m still struggling. And then I find out that my daughter has an orchestra concert tonight. How will I do this???? #ChronicPain #SpineProblem #Fusion

    3 people are talking about this