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Anyone else lazy about #Selfcare

I have #ChronicPain (#SpineProblem #BrachialPlexusInjuries and related stuff). For me, those things are made better by physical therapy exercises. Like, a lot better if I do it regularly over a long period of time.

I just can’t get in the habit of doing it. I almost wish my bad hand were my right. If my bad hand were my dominant hand, it would motivate me to actually stop being so lazy.

Anyone else struggle to do self care even if they know how important it is? I do have #ADHD so I know habits can be challenging. But maybe I’m just lazy?


How do you describe your health conditions?

Between my #SpeechImpediment my #Scoliosis (technically it’s not that but similar) my #ADHD and other related stuff, I describe myself as “God did a science experiment when He made me and got interesting results.”

When I describe my musculoskeletal system (wonky #SpineProblem #BrachialPlexusInjuries and #Nerve and joint pain #Jointpain ) I just say “my musculoskeletal system is a series of unfortunate events.”

Anyone else have a fun/creative way to describe their wonky body/brain?

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#ChronicPain and dumb decisions

Guys I’m suffering, but it’s all my own fault.

I have chronic #BackPain and some other musculoskeletal problems. My back had been mostly ok.

Then yesterday I watched a movie lying on the floor. It felt so comfortable while I was doing it. I had some nice pillows. It was cozy.

Then I stood up and my back ached. It was ok last night, but when I woke up in the morning I was in so much pain I considered calling in sick to work. I could barely change my clothes or walk to the kitchen to pack my lunch. I couldn’t bend over to grab the yogurt I wanted.

My legs are on fire too because that’s how my spine problems work.

I feel like the biggest idiot in the world. I know I have a #SpineProblem Why did I lie on the ground for a whole movie?

The dumb thing is my #PhysicalTherapy exercises demand I lie on the floor, but there’s no way I can get down to the floor today.


My vertebrae are playing tricks on me

So I had to have my spine realined by #ManualTherapy 4 times in the past 3 days due to #Hypermobility . Yesterday I had 5 vertebrae partially dislocated in the morning, and different 4 ones in the evening... The doctor said I'm doing everything right, and my lifestyle choices are ok. But all of this #Pain is just so annoying. I can't help but feel that I'm doing something wrong or moving weird or.. IDK. I couldn't work a single day this week, as I was so dizzy. Couldn't even walk straight. It totally looked like I was drunk in the middle of the day 🤦‍♀️ Apparently my brain was getting only ~70% of bloodflow. Now that my spine is aligned again, I still have #BrainFog . As I'm writing this, I heard another pop in my neck 😳#GoodPopOrBadPop ? I wanna do stuff and not be bored laying in bed not moving, but my body is just saying 'nope'. #EDS sucks.

#CervicalSpineInstability #SpineProblem #EhlersDanlosSyndrome #dislocations #Subluxations #spinal subluxations


How to tell my parents about my health worries?

I have had #ChronicPain for a while now. My  #BackPain and  #SpineProblem have caused pain in my legs and joints. That's all normal for me. I've recently been dealing with new symptoms, however, and that worries me.

I want to see a doctor to look into whether these new symptoms could be signs of something new.

Unfortunately, I'm still on my parents' insurance, so I would have to ask them before seeing a doctor. I don't want to freak my parents out for nothing, but I want to see a doctor.

How can I ask them without worrying them? Is there a good gentle phrasing I could use?


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A somewhat positive outcome #ChronicPain #Hospital #a &E

I came across some incredible people during my stay at the CDU and one member of staff in particular really went above and beyond for me and I feel super grateful for that right now.
All it takes is someone to really listen and just give a fxck! Thankfully I now know a little more about my body and how to try and manage it. Finally I understand certain things a little better and I know that I need to push a lot more to get support that I’m entitled to. I understand more than I have in all the years that I’ve suffered, and hopefully will have a bit of a brighter future because of it.
The people were incredible... the paramedics, the nurses, the doctors, the physio therapists, the consultants, the general staff, so many incredible people that made such a difference. They weren’t all amazing but I’ll bite my tongue about those people.
I honestly don’t know what would have happened to me if I wasn’t able to access the help I received from the NHS and without it I certainly couldn’t cope. So a huge huge thank you goes out to them and I really hope we can, as a nation, do more to support them. #NHS #Hospital #Crisis #a &E #ChronicPain #Appreciation #NervePains #BackPain #SpineProblem



I overdid things yesterday. For some reason I felt really good and my pain levels weren’t out of control. But today, omg. I couldn’t move and I’m still struggling. And then I find out that my daughter has an orchestra concert tonight. How will I do this???? #ChronicPain #SpineProblem #Fusion